adie_syndrome@yahoogroups.com wrote:
There is 1 message in this issue.
Topics in this digest:
1. Re: 2 adies groups
From: "axtis7"
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Message: 1
Date: Wed, 26 Apr 2006 04:50:31 -0000
From: "axtis7"
Subject: Re: 2 adies groups
Hi Helene/Gary
I think the second site is about the same thing, it's just not using
the medical term. There's now a Yahoo group for it too:
http://health.groups.yahoo.com/group/ADIES_EYES/
As for me - I first noticed my Adie's pupil about 3 years ago. It has
improved a lot since then but is still more sensitive to light than
the other eye and my vision gets blurry especially when I'm tired.
I did seem to get a huge improvement after receiving a particular form
of alternative treatment but I have no idea why it worked. It's called
Neurolink if you're interested (I have no commercial involvement with
them) - but I'm not sure where it's available (I'm in New Zealand).
Good luck with your daughter
Jay
--- In adie_syndrome@yahoogroups.com, "heleneandgary"wrote:
>
> About 2 years ago my daughter's optician noticed that she had
> asymmetrical pupils during a routine eye test when she was 12. She had
> recently complained about sensitivity to bright lights and had also had
> 3 attacks of shingles that year. She saw 2 eye specialists at London's
> Moorfields Eye Hospital and Portland Hospitals who both said, "fancy
> that". It hasn't got worse, but I'm still a bit worried about it and
> check this site occasionally.
>
> Today I accidentally logged on to another very similar site which has
> the group name ADIES_EYES rather than adie_syndrome. What is the
> difference?
>
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