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Adie Syndrome Diagnostic   Message List  
Reply | Forward Message #1115 of 1249 |
Re: [adie_syndrome] Adie Syndrome Diagnostic

I have just entered my second year with adies and although I still find a few things difficult, I have been able to adjust well.  My best advice to you is to make sure that you encourage your daughter to tell you of any new symptoms that occur.  Just tell her that if she does this, it can be helped quicker and the pain or anything else that accompanies this symptom will lessen.  If she enjoys reading encourage her to continue, but when I was first diagnosed I was not able to read for more than a half hour without my eyes hurting.  Over time I am able to go an hour and a half without pain.  I am going in to get new reading glasses this week though, with hope to extend the time further.  As far as the light, it has always hurt my eyes and without dark glasses it is worth.  As long as she needs new glasses I would invest in the transition for the safety of her eyes.  The last thing is that my specialist said that fluorescents seem to be a problem for many of his adies patients and if they are the school should know.  There are things that they can do to help her with this.  I have almost no reflexes anymore, less in my right than my left.  It does not bother me much except for when someone tries to tickle me.  Then I notice that it doesn't bother the right, but it tickles on my left. 
Best wishes,
Amber


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Fri Mar 31, 2006 7:17 am

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Message #1115 of 1249 |
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Hello everyone, My 10 year old daughter was just diagnosed with Adie's syndrome. Going through the web, I realize that there isn't much interesting information...
natlevreault
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Mar 28, 2006
7:14 pm

As for me I am in to my 5 th yr and I just lost my reflexes this year. Light does bother the eye or eyes. Try using dim lighting and avoid overhead lights....
Trisha Marie
qcgirl63
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Mar 28, 2006
8:38 pm

Thank you very much Marie for your help. It is amazing that the doctor didn't give me any advice! Amazing! I really appreciate your advices. Thanks! Nathalie ...
natlevreault
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Mar 29, 2006
1:20 pm

Dear Worried Mom, I think I can say the light is an issue for everyone with adie's. I wear sunglasses all the time. Some people do develop headaches because...
Rita Cullum
ritac42
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Mar 28, 2006
8:53 pm

Thank you Marie. I will certainly consider your advices! Your help is very precious to me. Nathalie...
natlevreault
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Mar 29, 2006
1:24 pm

Hope this helps: 1. Light could cause the headaches. You would also have to be careful long term about the ultraviolet rays entering the pupil and causing...
MStafford
pea007nut
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Mar 28, 2006
10:01 pm

Thank you for your advices! Yes, she has been wearing glasses for about 5 years, for her 'close' vision. I am seeing an ophtalmologist this week for a new...
natlevreault
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Mar 29, 2006
1:20 pm

I have just entered my second year with adies and although I still find a few things difficult, I have been able to adjust well. My best advice to you is to...
A Friend
hot_chica58368
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Mar 31, 2006
7:17 am

Thank you Amber for these precious advices. I will consider them for sure. Luckily, she doesn't seem to suffer from any pain, only telling me that she 'feels'...
Nathalie Levreault
natlevreault
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Apr 1, 2006
2:37 pm
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