I have just entered my second year with adies and although I still find a few things difficult, I have been able to adjust well. My best advice to you is to make sure that you encourage your daughter to tell you of any new symptoms that occur. Just tell her that if she does this, it can be helped quicker and the pain or anything else that accompanies this symptom will lessen. If she enjoys reading encourage her to continue, but when I was first diagnosed I was not able to read for more than a half hour without my eyes hurting. Over time I am able to go an hour and a half without pain. I am going in to get new reading glasses this week though, with hope to extend the time further. As far as the light, it has always hurt my eyes and without dark glasses it is worth. As long as she needs new glasses I would invest in the transition for the safety of her eyes. The last thing is that my specialist said that fluorescents seem to be a
problem for many of his adies patients and if they are the school should know. There are things that they can do to help her with this. I have almost no reflexes anymore, less in my right than my left. It does not bother me much except for when someone tries to tickle me. Then I notice that it doesn't bother the right, but it tickles on my left.
Best wishes,
Amber
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