Thank you Marie. I will certainly consider your advices! Your help is
very precious to me.

Nathalie



--- In adie_syndrome@yahoogroups.com, Rita Cullum <ritac42@...> wrote:
>
> Dear Worried Mom,
>
> I think I can say the light is an issue for everyone
> with adie's. I wear sunglasses all the time. Some
> people do develop headaches because of the sun, I am
> not one of them. If the sun is an issue for your
> daughter, then ask the eye doctor about lenses that
> auto-shade. In fact if your daughter says the sun
> hurts her eyes, by all means do what ever it takes to
> shade the sun from her eyes. In answer to your 3rd
> question, yes, my reflexes are slow. I have them, but
> a reflex check does not produce the same results as a
> normal person and I am not that ticklelish either.
> I've had adies for a little over eight years, as of
> yet, my pupil has not gotten small. It isn't as huge
> as it use to be. I have more trouble with shadows and
> I can't explain double vision, because it's not really
> double vision, but I see a thing and a shadow of the
> thing close to it. I have adies in my left eye only.
> I do require reading glasses now. I have contact
> lenses that keep distance looking the same and then
> plain dollar store reading glasses to read. In the
> beginning I had to have bi-focals and different
> strength in each eye because of the adies'. And to
> help her "just love her", stess is a big factor with
> adies. I'm not saying to spoil her, but notice when
> things make her nervous or afraid. Maybe someone else
> can comment on helping more. I find that when I eat a
> high protein/low carb diet my adies gets better, but
> I'm an adult not a child. Above all help her to learn
> about her adies so she doesn't feel it's a death
> sentence. Adies is mainly trial and error, what works
> for one doesn't for another, but it doesn't hurt to
> try different things as long as it is not life
> threatening. Let her know that there are others in
> her shoes. My best to you and your daughter. I will
> put her on my prayer list.
>
> ut--- natlevreault <natlevreault@...> wrote:
>
> > Hello everyone,
> >
> > My 10 year old daughter was just diagnosed with
> > Adie's syndrome.
> >
> > Going through the web, I realize that there isn't
> > much interesting
> > information about the symptoms and long term effects
> > on one's life.
> >
> > During the exam, the doctor tested her nervous
> > system reflexes (knees
> > and elbows) and to my big surprise she had none! He
> > confirmed this
> > was due to Adie's Syndrome.
> >
> > He also told me that with time her pupil (which is
> > quite dilated now)
> > will end up shrinking to a very small size.
> >
> > As I read your messages, I realize that some of you
> > have been
> > diagnosed a while ago...and I have a few unsanswered
> > questions (as it
> > is sometimes hard to get precise information from a
> > child and a
> > doctor) for which your help would be very
> > appreciated.
> >
> > 1. Is the light really an issue for someone with
> > that syndrome,
> > meaning is this what seems to cause the headaches?
> >
> > 2. She is now due for new prescription glasses;
> > would it be justified
> > to get her lens that auto-shade in the sun?
> >
> > 3. Have any of you noticed lack of nervous reflexes
> > also?
> >
> > 4. If her pupil ends up being very small eventually,
> > won't it be hard
> > for her to see in the dark?
> >
> > 5. Does it have any impact on your vision (reading
> > for example)?
> >
> > 5. Do you think there is anything I should be made
> > aware of to help
> > her?
> >
> > Thank you for your help.
> >
> > From a worried mom.
> >
> >
> >
> >
>
>
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