Thank you very much Marie for your help. It is amazing that the
doctor didn't give me any advice! Amazing!
I really appreciate your advices.
Thanks!
Nathalie

--- In adie_syndrome@yahoogroups.com, Trisha Marie <qcgirl63@...>
wrote:
>
> As for me I am in to my 5 th yr and I just lost my reflexes this
year. Light does bother the eye or eyes. Try using dim lighting and
avoid overhead lights. Keep her sun vissor down in the car and make
sure she wears her sunglasses and a bucket hat if possible outside.
It's all about adjusting to your situation and everybodys case is
different. If all possible shorten her computer time and when she is
online adjust your monitor so it isn't as bright.
>
> natlevreault <natlevreault@...> wrote: Hello everyone,
>
> My 10 year old daughter was just diagnosed with Adie's syndrome.
>
> Going through the web, I realize that there isn't much interesting
> information about the symptoms and long term effects on one's life.
>
> During the exam, the doctor tested her nervous system reflexes
(knees
> and elbows) and to my big surprise she had none! He confirmed this
> was due to Adie's Syndrome.
>
> He also told me that with time her pupil (which is quite dilated
now)
> will end up shrinking to a very small size.
>
> As I read your messages, I realize that some of you have been
> diagnosed a while ago...and I have a few unsanswered questions (as
it
> is sometimes hard to get precise information from a child and a
> doctor) for which your help would be very appreciated.
>
> 1. Is the light really an issue for someone with that syndrome,
> meaning is this what seems to cause the headaches?
>
> 2. She is now due for new prescription glasses; would it be
justified
> to get her lens that auto-shade in the sun?
>
> 3. Have any of you noticed lack of nervous reflexes also?
>
> 4. If her pupil ends up being very small eventually, won't it be
hard
> for her to see in the dark?
>
> 5. Does it have any impact on your vision (reading for example)?
>
> 5. Do you think there is anything I should be made aware of to help
> her?
>
> Thank you for your help.
>
> From a worried mom.
>
>
>
>
>
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