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Adie Syndrome Diagnostic   Message List  
Reply | Forward Message #1111 of 1249 |
Re: [adie_syndrome] Adie Syndrome Diagnostic

Hope this helps:
1. Light could cause the headaches. You would also have to be careful long
term about the ultraviolet rays entering the pupil and causing cateracts.
2. That's up to you. I found they do not get dark enough though.
3. Yes. I have no knee reflex on the adie's side as well as a non-sweating
forearm.
4. I've had adie since 1992 and it has not gotten to that point yet even
though it is smaller than it was at the beginning.
5. Yes. Does you daughter already wear glasses? She may need reading
glasses or have to hold the material further away. Or may need to have
glasses changed more ofter than one or two years.





Tue Mar 28, 2006 10:01 pm

pea007nut
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Message #1111 of 1249 |
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Hello everyone, My 10 year old daughter was just diagnosed with Adie's syndrome. Going through the web, I realize that there isn't much interesting information...
natlevreault
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Mar 28, 2006
7:14 pm

As for me I am in to my 5 th yr and I just lost my reflexes this year. Light does bother the eye or eyes. Try using dim lighting and avoid overhead lights....
Trisha Marie
qcgirl63
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Mar 28, 2006
8:38 pm

Thank you very much Marie for your help. It is amazing that the doctor didn't give me any advice! Amazing! I really appreciate your advices. Thanks! Nathalie ...
natlevreault
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Mar 29, 2006
1:20 pm

Dear Worried Mom, I think I can say the light is an issue for everyone with adie's. I wear sunglasses all the time. Some people do develop headaches because...
Rita Cullum
ritac42
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Mar 28, 2006
8:53 pm

Thank you Marie. I will certainly consider your advices! Your help is very precious to me. Nathalie...
natlevreault
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Mar 29, 2006
1:24 pm

Hope this helps: 1. Light could cause the headaches. You would also have to be careful long term about the ultraviolet rays entering the pupil and causing...
MStafford
pea007nut
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Mar 28, 2006
10:01 pm

Thank you for your advices! Yes, she has been wearing glasses for about 5 years, for her 'close' vision. I am seeing an ophtalmologist this week for a new...
natlevreault
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Mar 29, 2006
1:20 pm

I have just entered my second year with adies and although I still find a few things difficult, I have been able to adjust well. My best advice to you is to...
A Friend
hot_chica58368
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Mar 31, 2006
7:17 am

Thank you Amber for these precious advices. I will consider them for sure. Luckily, she doesn't seem to suffer from any pain, only telling me that she 'feels'...
Nathalie Levreault
natlevreault
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Apr 1, 2006
2:37 pm
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