Hello everyone,

My 10 year old daughter was just diagnosed with Adie's syndrome.

Going through the web, I realize that there isn't much interesting
information about the symptoms and long term effects on one's life.

During the exam, the doctor tested her nervous system reflexes (knees
and elbows) and to my big surprise she had none! He confirmed this
was due to Adie's Syndrome.

He also told me that with time her pupil (which is quite dilated now)
will end up shrinking to a very small size.

As I read your messages, I realize that some of you have been
diagnosed a while ago...and I have a few unsanswered questions (as it
is sometimes hard to get precise information from a child and a
doctor) for which your help would be very appreciated.

1. Is the light really an issue for someone with that syndrome,
meaning is this what seems to cause the headaches?

2. She is now due for new prescription glasses; would it be justified
to get her lens that auto-shade in the sun?

3. Have any of you noticed lack of nervous reflexes also?

4. If her pupil ends up being very small eventually, won't it be hard
for her to see in the dark?

5. Does it have any impact on your vision (reading for example)?

5. Do you think there is anything I should be made aware of to help
her?

Thank you for your help.

From a worried mom.