Hi,
I just have a quick question for you. Can you tell me
the medicine that your doctor was referring to? I am
curious as to what kind of side effects that the
medicine in question might have. I take Pilocarpine
drops and I worry about the side effects that they
might have. Although, I have read several people that
take them, without any problems.
Thank you,
Denise

--- Rita Cullum <ritac42@...> wrote:

> When I went to the nuro-opthamologist, he put a
> solution of medicine that had actual cocaine in my
> eyes to make sure I had Adies.  My pupil did what it
> was suppose to do and he announced I had Adies.
> Then
> I had to do some eye exercises with these moving
> beams
> of lights and dots and a control in my hand to push
> when I saw these lights and dots.  He told me that
> there was nothing to do about Adies and the medicine
> he could prescribe had bad side effects, but he did
> give me the choice.  I left owing a big bill for a
> second opinion that I had Adies.
>
> --- ozzymommy1962 <ozzymommy1962@...> wrote:
>
> >      Wow - so many people with the same problem! I
> > thought I was the
> > only one with this *syndrome*. Quite the
> frustrating
> > little bugger -
> > it is! I went to the regular doc yesterday. The
> > neurologist wanted
> > her to perscribe drugs for the headaches. Why
> didn't
> > He help me with
> > that??? I am VERY sceptical of docs., and will not
> > go through life
> > all drugged up (unless I was terminal). They just
> > seem to make a bit
> > too many mistakes, so I always question their
> > decisions - ticking off
> > more than my share of professionals, I'm sure,
> > mainly the one's that
> > feel that patients should be seen and not heard.
> >      Anyway, she perscribed Triazalam, to help me
> > sleep, which I will
> > gladly take being as I haven't slept *normal* in
> > close to 25 years.
> > Does anyone have problems sleeping????
> >      She aslo ordered me up some beta blockers -
> > Atenolol - to
> > prevent migraines. I have very low blood pressure
> as
> > it is and don't
> > want to take this. I e-mailed the doc. and asked
> her
> > if there was
> > anything else I could use. Anyone else have
> chronic
> > migraines????
> >      The last drug she ordered me was Amerge, a
> six
> > pill perscription
> > that costs WAY too much. So, I cannot justify the
> > cost and will not
> > be taking those either.
> >      This doc. never even heard of Holmes Adies
> > Syndrome!!! She was
> > asking me questions!?!? I am supposed to go and
> see
> > a neuro -
> > opthomologist (spelling???) Honestly, I don't know
> > what he is
> > supposed to do to help me. Has anyone else gone to
> > one of these
> > specialists??? I won't let him mess with my
> pupils.
> >      I hope that I am doing this correctly. Am I
> > supposed to go to
> > the site and post - or answer e-mails??? Do the
> > e-mails go to this
> > site as well as the individuals???
> >      The neurologist told me that I will end up
> > using a cain - anyone
> > have that prognosis yet??? Does anyone know if the
> > joints are
> > affected to the point of cains, or walkers, or
> > wheelchairs???
> >      Does anyone know of any books that are aimed
> at
> > Adies and it's
> > wonderful little *syndrome*???? (excuse the
> attitude
> > please - it's a
> > very sunny day)
> >       
> >        Hope to hear from someone soon,
> >                Thanks,
> >                 Kath
> >     
> >
> >
> >
> >
> >
> >
>
>
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