When I went to the nuro-opthamologist, he put a
solution of medicine that had actual cocaine in my
eyes to make sure I had Adies. My pupil did what it
was suppose to do and he announced I had Adies. Then
I had to do some eye exercises with these moving beams
of lights and dots and a control in my hand to push
when I saw these lights and dots. He told me that
there was nothing to do about Adies and the medicine
he could prescribe had bad side effects, but he did
give me the choice. I left owing a big bill for a
second opinion that I had Adies.

--- ozzymommy1962 <ozzymommy1962@...> wrote:

> Wow - so many people with the same problem! I
> thought I was the
> only one with this *syndrome*. Quite the frustrating
> little bugger -
> it is! I went to the regular doc yesterday. The
> neurologist wanted
> her to perscribe drugs for the headaches. Why didn't
> He help me with
> that??? I am VERY sceptical of docs., and will not
> go through life
> all drugged up (unless I was terminal). They just
> seem to make a bit
> too many mistakes, so I always question their
> decisions - ticking off
> more than my share of professionals, I'm sure,
> mainly the one's that
> feel that patients should be seen and not heard.
> Anyway, she perscribed Triazalam, to help me
> sleep, which I will
> gladly take being as I haven't slept *normal* in
> close to 25 years.
> Does anyone have problems sleeping????
> She aslo ordered me up some beta blockers -
> Atenolol - to
> prevent migraines. I have very low blood pressure as
> it is and don't
> want to take this. I e-mailed the doc. and asked her
> if there was
> anything else I could use. Anyone else have chronic
> migraines????
> The last drug she ordered me was Amerge, a six
> pill perscription
> that costs WAY too much. So, I cannot justify the
> cost and will not
> be taking those either.
> This doc. never even heard of Holmes Adies
> Syndrome!!! She was
> asking me questions!?!? I am supposed to go and see
> a neuro -
> opthomologist (spelling???) Honestly, I don't know
> what he is
> supposed to do to help me. Has anyone else gone to
> one of these
> specialists??? I won't let him mess with my pupils.
> I hope that I am doing this correctly. Am I
> supposed to go to
> the site and post - or answer e-mails??? Do the
> e-mails go to this
> site as well as the individuals???
> The neurologist told me that I will end up
> using a cain - anyone
> have that prognosis yet??? Does anyone know if the
> joints are
> affected to the point of cains, or walkers, or
> wheelchairs???
> Does anyone know of any books that are aimed at
> Adies and it's
> wonderful little *syndrome*???? (excuse the attitude
> please - it's a
> very sunny day)
>
> Hope to hear from someone soon,
> Thanks,
> Kath
>
>
>
>
>
>
>


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