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Holmes Adie's Syndrome   Message List  
Reply | Forward Message #1096 of 1249 |
Re: [adie_syndrome] Holmes Adie's Syndrome

I have adies in both sides, and my neurologist believes that it was caused by a mild to severe concussion on my left side. Although I have Adies in both eyes, my right side has been much more affected than my left.  I have diminished reflexes and feeling, mostly in my right side.  Although the loss of feeling is still moderate, my optha neurologist has not predicted it getting any worse or that I may need a cane in the future.  When he diagnosed me he was not dissapointed, but slightly awed by it, because he has so few patients with it.  I was diagnosed just over a year ago and he has told me that from here on out my symptoms should not get any worse for four maybe five years.  Which is when he predicted that my pupils will become too small. From what he said, this can take anywhere between three and ten years, and some never become too small, but I have yet to hear of anyone needing a walker, cane or wheelchair simply because of adies.  One last thing that he told me is that since my diagnosis I have shown signs of fibromyalgia.  I do have a family history of it, but some of the more severe symptoms that I've had may be caused by that.

Amber


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Mon Jan 16, 2006 1:24 am

hot_chica58368
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Message #1096 of 1249 |
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Wow - so many people with the same problem! I thought I was the only one with this *syndrome*. Quite the frustrating little bugger - it is! I went to the...
ozzymommy1962
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Jan 15, 2006
3:18 am

Kath, Not much is known about this syndrome. Please be aware that other illnesses share some of the same symptoms. The neurologist I saw was not impressed...
MStafford
pea007nut
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Jan 15, 2006
3:51 am

Thank you for the reply - I'm not sure of your name. I was diagnosed with Adies in 1990. I was diagnosed with Holmes Adies Syndrome about a month ago....
Kathy Erickson
ozzymommy1962
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Jan 15, 2006
4:43 pm

I have adies in both sides, and my neurologist believes that it was caused by a mild to severe concussion on my left side. Although I have Adies in both...
A Friend
hot_chica58368
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Jan 16, 2006
1:24 am

Kathy, I'm not sure where you live, if it might be in a high lyme disease area, but, a dilated pupil can be a sign of neurological lyme. If not treated, lyme...
MStafford
pea007nut
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Jan 15, 2006
10:52 pm

When I went to the nuro-opthamologist, he put a solution of medicine that had actual cocaine in my eyes to make sure I had Adies. My pupil did what it was...
Rita Cullum
ritac42
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Jan 16, 2006
4:34 pm

Hi, I just have a quick question for you. Can you tell me the medicine that your doctor was referring to? I am curious as to what kind of side effects that the...
Denise Thilmony
pollyanna95926
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Jan 22, 2006
9:06 pm

Dear Kath , I share your thinking on the medical profession as I came up with the same lack of understanding ,strangely enough this has recent;y improved ,I am...
Robert Batey
bobbikesanda...
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Feb 6, 2006
3:04 am

Bob, Thank you so much for responding. As far as the headaches ~ I am on Topamax twice a day, the very lowest dose possible. I feel that the more drugs you...
Kathy Erickson
ozzymommy1962
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Feb 6, 2006
3:27 pm
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