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Holmes Adie's Syndrome   Message List  
Reply | Forward Message #1095 of 1249 |
Re: [adie_syndrome] Holmes Adie's Syndrome

Kathy,
     I'm not sure where you live, if it might be in a high lyme disease area, but, a dilated pupil can be a sign of neurological lyme.  If not treated, lyme is progressive.
     Back to Adie's...When you trip, have you noticed if the side with Adie is the cause?
Don't know if the slowed reflexes are the problem.
     Also, because of slow focusing, there may be a problem with depth perception.  It is usually happens when something is very close.  
    I was afraid it would cause problems playing sports like baseball or basketball when you have to focus on a moving target.  I had a fear that I would get hit in the face when I had a catch with my son.  It has not caused a problem though.
     Everyone seems to have a different degree of problems because it is a syndrome.  Most have a problem with light and headaches.  Some don't have a knee or ankle reflex on the Adie side ( Adie's is asymetrical).
Some have strange sweating patterns (my left forarm does not sweat).
     Adie's alone means you have a dilated pupil.  When you have Adie's Syndrome, it means you have additional signs, lack or absent reflexes, changes in sweating, light sensitivity with possible headaches.
     You should not have to take anything for Adie's except pilocarpine drops for the pupil which some people find helpful.
      Hope some of this is helpful.  Keep researching and continue to ask those docs questions. 
ms
    


Sun Jan 15, 2006 10:08 pm

pea007nut
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Message #1095 of 1249 |
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Wow - so many people with the same problem! I thought I was the only one with this *syndrome*. Quite the frustrating little bugger - it is! I went to the...
ozzymommy1962
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Jan 15, 2006
3:18 am

Kath, Not much is known about this syndrome. Please be aware that other illnesses share some of the same symptoms. The neurologist I saw was not impressed...
MStafford
pea007nut
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Jan 15, 2006
3:51 am

Thank you for the reply - I'm not sure of your name. I was diagnosed with Adies in 1990. I was diagnosed with Holmes Adies Syndrome about a month ago....
Kathy Erickson
ozzymommy1962
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Jan 15, 2006
4:43 pm

I have adies in both sides, and my neurologist believes that it was caused by a mild to severe concussion on my left side. Although I have Adies in both...
A Friend
hot_chica58368
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Jan 16, 2006
1:24 am

Kathy, I'm not sure where you live, if it might be in a high lyme disease area, but, a dilated pupil can be a sign of neurological lyme. If not treated, lyme...
MStafford
pea007nut
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Jan 15, 2006
10:52 pm

When I went to the nuro-opthamologist, he put a solution of medicine that had actual cocaine in my eyes to make sure I had Adies. My pupil did what it was...
Rita Cullum
ritac42
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Jan 16, 2006
4:34 pm

Hi, I just have a quick question for you. Can you tell me the medicine that your doctor was referring to? I am curious as to what kind of side effects that the...
Denise Thilmony
pollyanna95926
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Jan 22, 2006
9:06 pm

Dear Kath , I share your thinking on the medical profession as I came up with the same lack of understanding ,strangely enough this has recent;y improved ,I am...
Robert Batey
bobbikesanda...
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Feb 6, 2006
3:04 am

Bob, Thank you so much for responding. As far as the headaches ~ I am on Topamax twice a day, the very lowest dose possible. I feel that the more drugs you...
Kathy Erickson
ozzymommy1962
Online Now Send Email
Feb 6, 2006
3:27 pm
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