Thank you for the reply - I'm not sure of your name.

     I was diagnosed with Adies in 1990. I was diagnosed with Holmes Adies Syndrome about a month ago. According to my neurologist, they are two different things. Having Adies does not mean that you will develope Holmes Adies Syndrome?? I don't know?? Trusting doctors is not something that I am accustomed to doing. That is why I am trying to find out as much as I can about this little known *syndrome*. From what I gather from this group, it seems that symptoms vary. For a few years now I have been concerned that I had MS, the neurologist ruled that out. I have been falling a lot, on flat ground and stairs. I'm tripping over my own two feet,  just 2 of  the problems I have been having the past few years. My regular doc. writes perscriptions like they are candy. Out of the many she has written the past couple of months, I only take one and keep another on hand. I'll be changing primary docs. soon.

     My nuerologist said that I may end up using a cane, I added the question of a walker or chair - because so little is known. He had me make an appointment to come back in six months to see if I have gotten worse, and if so - how much worse. Probably because of my symptoms. Who knows - I may go back in six months, and he may tell me I have something totally different and send me off somewhere else. I am trying to research this as much as possible, though not much is out there at all. It is very frustrating.

                                                          Kath

MStafford <Mstafford220@...> wrote: