Wow - so many people with the same problem! I thought I was the
only one with this *syndrome*. Quite the frustrating little bugger -
it is! I went to the regular doc yesterday. The neurologist wanted
her to perscribe drugs for the headaches. Why didn't He help me with
that??? I am VERY sceptical of docs., and will not go through life
all drugged up (unless I was terminal). They just seem to make a bit
too many mistakes, so I always question their decisions - ticking off
more than my share of professionals, I'm sure, mainly the one's that
feel that patients should be seen and not heard.
Anyway, she perscribed Triazalam, to help me sleep, which I will
gladly take being as I haven't slept *normal* in close to 25 years.
Does anyone have problems sleeping????
She aslo ordered me up some beta blockers - Atenolol - to
prevent migraines. I have very low blood pressure as it is and don't
want to take this. I e-mailed the doc. and asked her if there was
anything else I could use. Anyone else have chronic migraines????
The last drug she ordered me was Amerge, a six pill perscription
that costs WAY too much. So, I cannot justify the cost and will not
be taking those either.
This doc. never even heard of Holmes Adies Syndrome!!! She was
asking me questions!?!? I am supposed to go and see a neuro -
opthomologist (spelling???) Honestly, I don't know what he is
supposed to do to help me. Has anyone else gone to one of these
specialists??? I won't let him mess with my pupils.
I hope that I am doing this correctly. Am I supposed to go to
the site and post - or answer e-mails??? Do the e-mails go to this
site as well as the individuals???
The neurologist told me that I will end up using a cain - anyone
have that prognosis yet??? Does anyone know if the joints are
affected to the point of cains, or walkers, or wheelchairs???
Does anyone know of any books that are aimed at Adies and it's
wonderful little *syndrome*???? (excuse the attitude please - it's a
very sunny day)

Hope to hear from someone soon,
Thanks,
Kath