--- In adie_syndrome@y..., "Erin Sullivan" <erinsullivan_aus@y...>
wrote:
> Hi all,
>
> I have joined the group and have been watching the mails. I was
interested
> in the number of people who highlight the fact that they get
headaches. I do
> also - more and more. I also went back to the consultant who said
that
> "headaches are not associated with Adies" then I was told that they
were
> PROBABLY migraine. This isn't really good enough treatment ( in my
opinion).
>
> What has raised my attention is how many of us get headaches -
perhaps
> someone should look to verify the throw away comment that there is
no
> association !!!!
>
> PS. Do any of you have joint problems?
>
> Regards
>
> Erin Sullivan (UK)
Hi Erin et al, I originated in the UK, but now live in the US. I
was diagnosed with Adie's this past week, after having unequal pupils
for at least 5 weeks. I too have have a history of migraines,
chickenpox, cold sores, water retention, esp. around my ankles, and
yes, Erin, joint pain, esp. hips, and also pain around my ribs. (Also
have sweating, but put it down to menopause, and the heat here, in
Hawaii!) My ophthomologist says there is no relation between Adie's
and headaches! Yet when he shone the light into my smaller pupil,
boy, did it hurt! He says caused by a virus, and no need for CAT
scan or MRI. He'll check me again "in a few months". Will continue
to read the rest of the postings, but just wanted to say, yes, joint
pain..... Aloha, Lynne