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Holmes - Adie's Syndrome   Message List  
Reply | Forward Message #1088 of 1249 |
Re: Holmes - Adie's Syndrome

Hi Julia
I have tried pilicarpine, but i still got the pain and when it srunk
my pupil down, i got pain from that too and also i was getting
tightness across my chest every time i used it which took hours to
ease off, so im not sure if i should try them again.
what kind of symptoms did you first get from using them and how long
before you got more use to them.
KInd Regards
Michaela
Fri Jan 13, 2006 8:19 am

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michaela_rees
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Forward 		Message #1088 of 1249 |
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Hello - I am new to this group and would like to join in. I was diagnosed with Adie's Pupil 14 years ago, but may have had it longer. Just a bit ago, unrelated... 		ozzymommy1962
Offline Send Email 		Jan 9, 2006
10:49 pm

Hi Sorry but i don't know your name. I don't know anything more about adeis than whats already on the internet and group, there isn't anything much about this...
michaela_rees
Offline Send Email 		Jan 11, 2006
9:52 am

Michaela, My name is Rita. Adies can be painful and alot more. You basically have to try to heal yourself. And you can I believe, or at least get to a point...
Rita Cullum
ritac42
Offline Send Email 		Jan 11, 2006
9:12 pm

Thanks Rita I do all the things you have suggested, but its still very bad. On the Adeis side does anyone get pain and tenderness in the temple area, and...
michaela_rees
Offline Send Email 		Jan 12, 2006
10:38 am

Sorry to hear that you are suffering. Micheala, you mentioned emotional stress. I've never heard that stress causes Adie's, but I'll bet it can make it feel...
linja@...
lajavins
Offline Send Email 		Jan 13, 2006
4:37 am

Thankyou Linda I will try to do more things to relax, i think your right about stress not causing Adeis, because there are so many people under stress, so ...
michaela_rees
Offline Send Email 		Jan 13, 2006
7:44 am

Michaela: Why don't you try the PIlocarpine drops? Try them--they may be just what will ease many of these symptoms you are experiencing--I hate to see you...
jm44dog@...
jmdog2004
Offline Send Email 		Jan 13, 2006
8:07 am

Hi Julia I have tried pilicarpine, but i still got the pain and when it srunk my pupil down, i got pain from that too and also i was getting tightness across...
michaela_rees
Offline Send Email 		Jan 13, 2006
8:20 am

I mostly had unequal vision in both eyes while using the pilocarpine in my Adie's right eye--what strength PIlocarpine did you use? I have gotten the best...
jm44dog@...
jmdog2004
Offline Send Email 		Jan 13, 2006
8:55 am

--Hallo Michaela, I had very similar symptoms and now I use a very low dosage. I get drops from my pharmacy that contains 2 ml Pilocarpin 1% drops in 8 ml of...
pesuwue
Offline Send Email 		Jan 15, 2006
3:17 am

Hi Petra I used a low dose of pilocarpin yesterday, and i did't feel as bad this time, i think it helped me a bit outside in the natural light, but when i went...
michaela_rees
Offline Send Email 		Jan 15, 2006
7:44 pm
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