Michaela,

My name is Rita. Adies can be painful and alot more.
You basically have to try to heal yourself. And you
can I believe, or at least get to a point where things
don't bother you so bad. Wear sunglasses when you are
in daylight. And since sunglasses come in different
stenghts, try a lighter one for night. I will be
praying for you. I know how the headaches can be so
painful and nothing seems to help, but I have faith
that you will find something to ease the pain. Know
that there are others who are just as lost as you are
and can feel everything you are feeling. Don't get
discouraged!!! There are plenty of us on this web
sight. Take care and try to relax.
Rita

--- michaela_rees <michaela_rees@...> wrote:

> Hi
> Sorry but i don't know your name.
> I don't know anything more about adeis than whats
> already on the
> internet and group, there isn't anything much about
> this condition,
> and if you do find something it seems just a mild
> sort of problem,
> to some people it is, but to others it really can be
> awful.
> I myself have have terrible symptoms which nothing
> will help, it
> goes on every day, the constant headaches and
> nausea, the light
> effects me all the time, i don't get out at night
> because the car
> lights hurt so much, and lighting in and around
> places are to
> bright.
> Shops are a nightmare too, there to bright even when
> i have my
> sunglassses on and cap, so most days is a battle for
> me with adeis,
> i was also told years ago i had fibramyalgia, but
> doctors can put
> names to any aches and pains, i don't think they
> fully know much
> about that illness either.
> I have been suffering alot of emotional stress
> before adeis, so i do
> wonder if that contrabuted to me having the
> illnesses that i have.
> You say your symptoms are getting worse, what are
> your symptoms from
> adeis?, how are you suffering and what do you do to
> help your
> suffering?.
> I have been to doctors and eye doctors, and they
> can't offer
> anything but tablets which do not help me, so i find
> there is no
> point going back to them for help any more, because
> there is no help
> for me ive tried everything, so now i just take each
> day and get
> through it the best i can, very isolated most of the
> time, i do
> things i can do and try now not to dwell to much on
> the things i can
> no longer do, which does make my world very small, i
> do feel i get
> depressed and fed up, but know that i have to keep
> going and hoping
> that things will improve one day and it won't always
> be this bad, we
> have to keep hoping and never lose hope no matter
> how bad we are
> feeling, when i feel so bad i remember there is
> always other people
> with a worse illness and feel worse than me, we have
> to keep
> fighting, we are stronger then we think, we have to
> keep pushing
> through our suffering and never lose our hope on
> getting better.
>
> KInd regards
> Michaela
>
>
>
>
>


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