Hi
Sorry but i don't know your name.
I don't know anything more about adeis than whats already on the
internet and group, there isn't anything much about this condition,
and if you do find something it seems just a mild sort of problem,
to some people it is, but to others it really can be awful.
I myself have have terrible symptoms which nothing will help, it
goes on every day, the constant headaches and nausea, the light
effects me all the time, i don't get out at night because the car
lights hurt so much, and lighting in and around places are to
bright.
Shops are a nightmare too, there to bright even when i have my
sunglassses on and cap, so most days is a battle for me with adeis,
i was also told years ago i had fibramyalgia, but doctors can put
names to any aches and pains, i don't think they fully know much
about that illness either.
I have been suffering alot of emotional stress before adeis, so i do
wonder if that contrabuted to me having the illnesses that i have.
You say your symptoms are getting worse, what are your symptoms from
adeis?, how are you suffering and what do you do to help your
suffering?.
I have been to doctors and eye doctors, and they can't offer
anything but tablets which do not help me, so i find there is no
point going back to them for help any more, because there is no help
for me ive tried everything, so now i just take each day and get
through it the best i can, very isolated most of the time, i do
things i can do and try now not to dwell to much on the things i can
no longer do, which does make my world very small, i do feel i get
depressed and fed up, but know that i have to keep going and hoping
that things will improve one day and it won't always be this bad, we
have to keep hoping and never lose hope no matter how bad we are
feeling, when i feel so bad i remember there is always other people
with a worse illness and feel worse than me, we have to keep
fighting, we are stronger then we think, we have to keep pushing
through our suffering and never lose our hope on getting better.

KInd regards
Michaela