Hello - I am new to this group and would like to join in. I was
diagnosed with Adie's Pupil 14 years ago, but may have had it longer.
Just a bit ago, unrelated to Adie's, I had a CT scan, that led to a
MRI, that led me to demand from my doc. to refer me to a neurologist.
(my doc's relpy to my MRI was - every body is different)The
neurologist diagnosed me with Holmes Adies Syndrone. I honestly don't
know how long I have had this syndrome because I have obviously been
misdiagnosed for years. My symptoms are getting on the severe side as
the years pass - though I just deal with them and go on with life. I
have been told I have Fibromyalgia (excuse the spelling if incorrect)
also been told that everything is stress or stress related, looked at
like I was insane, and told by doc.s that they had no idea what I was
talking about. I honestly am not very trusting in the medical
rofession since they seem to make so many mistakes with me. I still
need to go back and read all of the messages in this group to get up
to speed, and also learn as much as I can about this *syndrome*. I am
doing as much research as possible in these last couple of days
since being diagnosed. The neurologist did say that he wants to see
me in six months to ess if I get worse and how much worse I get. He
did say that I will probably be using a cane one day. I just cannot
relate to that and am going to fight this thing.
Does anyone out there know anything about Holmes - Adies
Syndrome other than what can be read on the internet? I've got a lot
of work to do, but was just wondering. How bad does this really get???
Thanks For Listening!