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Mimi:
Don't give up on the pilocarpine drops. I have used them for 18 years, since being diagnosed with adie's pupil. Yes, there is vision distortion, but if you hang in there, you'll adjust to that very quickly and will find that they are the single most helpful treatment we have for this condition. The other benefit is that pilocarpine seems to have a beneficial effect on keeping pressure in the eye low, easing glaucoma worries. Good luck to you.
Julie M
-----Original Message-----
From: Mimi Delorme <md_gosselin@...>
To: adie_syndrome@yahoogroups.com
Sent: Fri, 14 Oct 2005 19:25:47 -0400 (EDT)
Subject: Re: [adie_syndrome] Re: New Adie Group Member
Hi Linda,
Before I found out I had Adies, I was told I may have MPS or myofacial pain syndrome which I looked up & it was linked with fibromyalgia. I have been taking vitamine B's which is known to help neurological problems. There is also a combination juice concentrate from the health food store that is suppose to help many health problems including vision problems. As well I try to eat well. I am in the beginning stages of menopause & am trying to deal & differentiate those symptoms also. (they shoot horses, don't they?)
I tried pilocarpine for my Adies pupil. It does constrict the pupil but distorts my vision. I take Advils for headaches & am looking for an optometrist who has a bit of knowledge on this syndrome, as it sits I figure I need about four different types of eyewear for different situations.
My vision gets progressively worse ( but slowly) . Any positive notes on this subject?
Mimi
linja@... wrote:
linja@... wrote:
A neurologist told me I have fibromyalgia... but I think it just means I have a lot of tender spots.
I have to follow a yeast-syndrome diet too, but I didn't know it could effect my vision. I've been on it for a decade or more. I don't handle sugar well... oh yes! Too much sugar gives me vision migraines, you know, with flashing lights. Very interesting.
Good luck with your research. Have you tried http://scholar.google.com?
In a message dated 10/10/05 7:23:41 PM, adie_syndrome@yahoogroups.com writes:
Date: Fri, 7 Oct 2005 07:37:32 -0700 (PDT)
From: Rita Cullum <ritac42@...>
Subject: Re: Re: New Adie Group Member
I have adie's for about 8 years in my left pupil. I
have found that eating a high protein, low carb diet
improves my vision considerably. I heard someone say
along time ago if your disease is named after someone
think yeast. Since doctors have no clue as to what
causes it or how to get rid of it and since it's named
after "someone" I treat mine like I have a yeast
infection. I starve the yeast by eating protien and
very little carbs. When I abide by this diet my
vision improves considerably. I have no problem with
shadows except when I look at the moon at night and
even then my vision is so close to normal I just
praise God. I have also been trying to do research on
the role of hyalournic acid and the eye. Do any
Adies' sufferers have mitral valve prolaspe or suffer
from fibromyalgia, or TMJ? Isn't it mind boggling
that to be in the 21st century some people have to
search out their own treatments for ailments that
modern medicine should have the cure.
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