I have adie's for about 8 years in my left pupil. I
have found that eating a high protein, low carb diet
improves my vision considerably. I heard someone say
along time ago if your disease is named after someone
think yeast. Since doctors have no clue as to what
causes it or how to get rid of it and since it's named
after "someone" I treat mine like I have a yeast
infection. I starve the yeast by eating protien and
very little carbs. When I abide by this diet my
vision improves considerably. I have no problem with
shadows except when I look at the moon at night and
even then my vision is so close to normal I just
praise God. I have also been trying to do research on
the role of hyalournic acid and the eye. Do any
Adies' sufferers have mitral valve prolaspe or suffer
from fibromyalgia, or TMJ? Isn't it mind boggling
that to be in the 21st century some people have to
search out their own treatments for ailments that
modern medicine should have the cure.

--- Trisha Marie <qcgirl63@...> wrote:

> Been the same for 4 yrs no change yet.
>
> ga_carol11 <carol@...> wrote:About the
> shadows, if I am in a room and the lights get turned
> out,
> I might as well be completely blind for about 15
> minutes. With my
> right eye being dilated, I just cannot adjust to the
> light changes.
> I started having problems with shadows the day my
> eye dilated so if
> you haven't had problems yet with them, hopefully
> you won't.
>
> Has anyone EVER seen any improvement with their
> adie's? None of the
> doctor's I've seen can give me any hope except wear
> sunglasses.
>
> --- In adie_syndrome@yahoogroups.com, "sverige90"
> <sverige90@y...>
> wrote:
> > Hello everyone, I am a little confused...
> > 1. I understand the sensitivity to light--I got
> prescription
> > sunglasses AND quit working in the bar
> > 2. Night vision loss--that's easy, my husband does
> all the night
> > driving, I just drive in town
> > 3. Headaches--a couple of Advil generally
> helps....
> >
> > But I have never had the loss of shadows? What
> exciting occurance
> > should I be waiting for?
> >
> > I have found that by about 4pm my eyes are toast.
> too tired to
> work
> > on the computer anymore. Also when I am just
> plain tired I will
> have
> > a VERY hard time in focusing on the guide on the
> TV. That's about
> the
> > time I turn the TV off.
> >
> > Any close up things I have adapted--eyebrows used
> to take me
> hours,
> > just couldn't see them half the time. I stopped
> being a chicken
> and
> > now get them waxed. I don't wear makeup or
> contacts
> >
> > If someone wants me to read something I take it
> from them and hold
> it
> > to where MY eyes are working at the particular
> moment in time. It
> > varies depending on how tired I am.
> >
> > I also invested in a medicalert braclet, just in
> case. I think
> that
> > is how I got mine--major car accident. I put my
> head between the
> > steering wheel and the door, breaking the dash.
> >
> > I don't go outside without my sunglasses, just
> helps awhole lot. I
> > keep a flashlight in the truck for when I go to
> friends houses and
> > need to see when I head back to the truck, or my
> son holds my hand.
> >
> > Oh and I was diagnosed about 3-4 years ago and am
> a special one
> with
> > Adies in both eyes.
> >
> > anyway, sorry to ramble, could you let me know
> about this loss of
> > shadows thing, please?
> >
> > many thanks
> >
> > anne
> >
> > --- In adie_syndrome@yahoogroups.com, "ga_carol11"
> <carol@p...>
> wrote:
> > > I just found this site and I am suprised to see
> so many others
> with
> > > Adie's. With the condition being so rare, it's
> hard to find
> anyone
> > > who understands.
> > >
> > > I developed Adie's in 2003 after a sinus
> infection. I had a
> really
> > > bad headache that day but thought it was just
> the infection. I
> > really
> > > freaked out when I discovered my right pupil was
> so dialated.
> When I
> > > went to my eye doctor, he took one look and said
> Adie's. Boy, I
> > > wasn't prepared for the sensitivity to light
> (especially strobe
> > > lights-instant migraine!)), loss of shadows,
> night vision loss,
> and
> > > headaches.
> > >
> > > I really haven't found anything that helps, does
> anyone have any
> > > suggestions?
> > >
> > > Thanks for any suggestions.
>
>
>
>
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