Search the web
Sign In
New User? Sign Up
adie_syndrome · Support Group
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
New Adie Group Member   Message List  
Reply | Forward Message #1038 of 1249 |
Re: New Adie Group Member

Hi Carol

I was diagnosed with an Adie's pupil about two and a half years ago.
It happened after a severe migraine which may have been brought on by
dental work and/or heat exhaustion from very hot weather. The
neurologists I saw said I had had a 'brain event' - whatever that
means - I suspect it's another way of saying "we don't know".

My left pupil was fixed open, I had extreme light sensitivity, a lot
of pain around the eye and headaches. I also had other neurological
symptoms which I won't go into here.

The good news is that in the last 2.5 years my eye *did* slowly
improve. The pupil slowly shrunk down to an average size and started
very slowly reacting to light again. The light sensitivity, pain etc
did reduce correspondingly. I still had some pain, tiredness and poor
focus/blurred vision but not as extreme as in the beginning.

I might have been lucky but I suppose this means there is hope for
others. I think improving my health generally and especially learning
ways to cope with stress more effectively may have helped.

Finally, I have recently been seeing a 'Neurolink' practitioner who
has given me results that are nothing short of miraculous:
http://www.neurolinkglobal.com/

All the remaining pain, tiredness, blurriness, inability to focus went
after one treatment. The pupil is still a little slow but that's all
that's left of the symptoms. I keep telling people "I can see I can
see!" I understand if people are wary of trying things and I emphasise
that I have no commercial interest in Neurolink but I just wanted to
tell people it worked for me and may be worth a try if you can find a
practitioner.

All the best

Jay


--- In adie_syndrome@yahoogroups.com, "ga_carol11" <carol@p...> wrote:
> About the shadows, if I am in a room and the lights get turned out,
> I might as well be completely blind for about 15 minutes. With my
> right eye being dilated, I just cannot adjust to the light changes.

> I started having problems with shadows the day my eye dilated so if
> you haven't had problems yet with them, hopefully you won't.
>
> Has anyone EVER seen any improvement with their adie's? None of
the
> doctor's I've seen can give me any hope except wear sunglasses.
>







Thu Oct 6, 2005 10:30 pm

axtis7
Offline Offline
Send Email Send Email

Forward
Message #1038 of 1249 |
Expand Messages Author Sort by Date

I just found this site and I am suprised to see so many others with Adie's. With the condition being so rare, it's hard to find anyone who understands. I...
ga_carol11
Offline Send Email
Jul 25, 2005
8:54 pm

I have not suffered night vision loss but you may want look in to night vision glasses, avoid over head lighting, get yourself a nice bucket hat and be sure to...
Trisha Marie
qcgirl63
Offline Send Email
Jul 26, 2005
6:12 pm

Hello everyone, I am a little confused... 1. I understand the sensitivity to light--I got prescription sunglasses AND quit working in the bar 2. Night vision...
sverige90
Offline Send Email
Sep 29, 2005
4:09 pm

About the shadows, if I am in a room and the lights get turned out, I might as well be completely blind for about 15 minutes. With my right eye being dilated,...
ga_carol11
Offline Send Email
Oct 5, 2005
12:07 am

Been the same for 4 yrs no change yet. ga_carol11 <carol@...> wrote:About the shadows, if I am in a room and the lights get turned out, I might as well...
Trisha Marie
qcgirl63
Offline Send Email
Oct 6, 2005
1:00 am

hiya yes i have had improvement with adies, my pupil isn't as big now. lucy x Trisha Marie <qcgirl63@...> wrote: Been the same for 4 yrs no change yet. ...
lucy gleeson
lucygleeson1uk
Offline Send Email
Oct 7, 2005
10:54 am

I have adie's for about 8 years in my left pupil. I have found that eating a high protein, low carb diet improves my vision considerably. I heard someone say...
Rita Cullum
ritac42
Offline Send Email
Oct 10, 2005
4:11 pm

I am reading these messages for the first time, and BANG, here is one I can add to. I have Mitral Valve prolapse AND Fibromyalgia! Because I have Fibro,...
mama4fabia
Offline Send Email
Nov 7, 2005
4:40 pm

mama4fabia <pgretire@...> wrote: I am reading these messages for the first time, and BANG, here is one I can add to. I have Mitral Valve prolapse AND...
Deb and Dennis Gerond...
mama4fabia
Offline Send Email
Nov 7, 2005
7:19 pm

Deb and Dennis, My eye hurt on the opposite side of the adies pupil and it hurt in my brain. I could pin point the area inside for ever. My adies eye hurts...
Rita Cullum
ritac42
Offline Send Email
Nov 7, 2005
8:39 pm

Hi Carol I was diagnosed with an Adie's pupil about two and a half years ago. It happened after a severe migraine which may have been brought on by dental...
axtis7
Offline Send Email
Oct 10, 2005
4:09 pm

A neurologist told me I have fibromyalgia... but I think it just means I have a lot of tender spots. I have to follow a yeast-syndrome diet too, but I didn't...
linja@...
lajavins
Offline Send Email
Oct 11, 2005
12:53 am

Hi Linda, Before I found out I had Adies, I was told I may have MPS or myofacial pain syndrome which I looked up & it was linked with fibromyalgia. I have been...
Mimi Delorme
md_gosselin
Offline Send Email
Oct 14, 2005
11:25 pm

Mimi: Don't give up on the pilocarpine drops. I have used them for 18 years, since being diagnosed with adie's pupil. Yes, there is vision distortion, but if...
jm44dog@...
jmdog2004
Offline Send Email
Oct 15, 2005
3:22 am
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help