Been the same for 4 yrs no change yet.

ga_carol11 <carol@...> wrote:

About the shadows, if I am in a room and the lights get turned out,
I might as well be completely blind for about 15 minutes.  With my
right eye being dilated, I just cannot adjust to the light changes. 
I started having problems with shadows the day my eye dilated so if
you haven't had problems yet with them, hopefully you won't. 

Has anyone EVER seen any improvement with their adie's?  None of the
doctor's I've seen can give me any hope except wear sunglasses.

--- In adie_syndrome@yahoogroups.com, "sverige90" <sverige90@y...>
wrote:
> Hello everyone, I am a little confused...
> 1. I understand the sensitivity to light--I got prescription
> sunglasses AND quit working in the bar
> 2. Night vision loss--that's easy, my husband does all the night
> driving, I just drive in town
> 3. Headaches--a couple of Advil generally helps....
>
> But I have never had the loss of shadows?  What exciting occurance
> should I be waiting for?
>
> I have found that by about 4pm my eyes are toast.  too tired to
work
> on the computer anymore.  Also when I am just plain tired I will
have
> a VERY hard time in focusing on the guide on the TV.  That's about
the
> time I turn the TV off. 
>
> Any close up things I have adapted--eyebrows used to take me
hours,
> just couldn't see them half the time.  I stopped being a chicken
and
> now get them waxed.  I don't wear makeup or contacts
>
> If someone wants me to read something I take it from them and hold
it
> to where MY eyes are working at the particular moment in time.  It
> varies depending on how tired I am.
>
> I also invested in a medicalert braclet, just in case.  I think
that
> is how I got mine--major car accident.  I put my head between the
> steering wheel and the door, breaking the dash.
>
> I don't go outside without my sunglasses, just helps awhole lot. I
> keep a flashlight in the truck for when I go to friends houses and
> need to see when I head back to the truck, or my son holds my hand.
>
> Oh and I was diagnosed about 3-4 years ago and am a special one
with
> Adies in both eyes. 
>
> anyway, sorry to ramble, could you let me know about this loss of
> shadows thing, please?
>
> many thanks
>
> anne
>
> --- In adie_syndrome@yahoogroups.com, "ga_carol11" <carol@p...>
wrote:
> > I just found this site and I am suprised to see so many others
with
> > Adie's.  With the condition being so rare, it's hard to find
anyone
> > who understands.
> >
> > I developed Adie's in 2003 after a sinus infection.  I had a
really
> > bad headache that day but thought it was just the infection.  I
> really
> > freaked out when I discovered my right pupil was so dialated. 
When I
> > went to my eye doctor, he took one look and said Adie's.  Boy, I
> > wasn't prepared for the sensitivity to light (especially strobe
> > lights-instant migraine!)), loss of shadows, night vision loss,
and
> > headaches.
> >
> > I really haven't found anything that helps, does anyone have any
> > suggestions?
> >
> > Thanks for any suggestions.

---

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