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Reply | Forward Message #1035 of 1249 |
Re: [adie_syndrome] Re: New Adie Group Member

Been the same for 4 yrs no change yet.

ga_carol11 <carol@...> wrote:
About the shadows, if I am in a room and the lights get turned out,
I might as well be completely blind for about 15 minutes.  With my
right eye being dilated, I just cannot adjust to the light changes. 
I started having problems with shadows the day my eye dilated so if
you haven't had problems yet with them, hopefully you won't. 

Has anyone EVER seen any improvement with their adie's?  None of the
doctor's I've seen can give me any hope except wear sunglasses.

--- In adie_syndrome@yahoogroups.com, "sverige90" <sverige90@y...>
wrote:
> Hello everyone, I am a little confused...
> 1. I understand the sensitivity to light--I got prescription
> sunglasses AND quit working in the bar
> 2. Night vision loss--that's easy, my husband does all the night
> driving, I just drive in town
> 3. Headaches--a couple of Advil generally helps....
>
> But I have never had the loss of shadows?  What exciting occurance
> should I be waiting for?
>
> I have found that by about 4pm my eyes are toast.  too tired to
work
> on the computer anymore.  Also when I am just plain tired I will
have
> a VERY hard time in focusing on the guide on the TV.  That's about
the
> time I turn the TV off. 
>
> Any close up things I have adapted--eyebrows used to take me
hours,
> just couldn't see them half the time.  I stopped being a chicken
and
> now get them waxed.  I don't wear makeup or contacts
>
> If someone wants me to read something I take it from them and hold
it
> to where MY eyes are working at the particular moment in time.  It
> varies depending on how tired I am.
>
> I also invested in a medicalert braclet, just in case.  I think
that
> is how I got mine--major car accident.  I put my head between the
> steering wheel and the door, breaking the dash.
>
> I don't go outside without my sunglasses, just helps awhole lot. I
> keep a flashlight in the truck for when I go to friends houses and
> need to see when I head back to the truck, or my son holds my hand.
>
> Oh and I was diagnosed about 3-4 years ago and am a special one
with
> Adies in both eyes. 
>
> anyway, sorry to ramble, could you let me know about this loss of
> shadows thing, please?
>
> many thanks
>
> anne
>
> --- In adie_syndrome@yahoogroups.com, "ga_carol11" <carol@p...>
wrote:
> > I just found this site and I am suprised to see so many others
with
> > Adie's.  With the condition being so rare, it's hard to find
anyone
> > who understands.
> >
> > I developed Adie's in 2003 after a sinus infection.  I had a
really
> > bad headache that day but thought it was just the infection.  I
> really
> > freaked out when I discovered my right pupil was so dialated. 
When I
> > went to my eye doctor, he took one look and said Adie's.  Boy, I
> > wasn't prepared for the sensitivity to light (especially strobe
> > lights-instant migraine!)), loss of shadows, night vision loss,
and
> > headaches.
> >
> > I really haven't found anything that helps, does anyone have any
> > suggestions?
> >
> > Thanks for any suggestions.



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Thu Oct 6, 2005 1:00 am

qcgirl63
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Forward
Message #1035 of 1249 |
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I just found this site and I am suprised to see so many others with Adie's. With the condition being so rare, it's hard to find anyone who understands. I...
ga_carol11
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Jul 25, 2005
8:54 pm

I have not suffered night vision loss but you may want look in to night vision glasses, avoid over head lighting, get yourself a nice bucket hat and be sure to...
Trisha Marie
qcgirl63
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Jul 26, 2005
6:12 pm

Hello everyone, I am a little confused... 1. I understand the sensitivity to light--I got prescription sunglasses AND quit working in the bar 2. Night vision...
sverige90
Offline Send Email
Sep 29, 2005
4:09 pm

About the shadows, if I am in a room and the lights get turned out, I might as well be completely blind for about 15 minutes. With my right eye being dilated,...
ga_carol11
Offline Send Email
Oct 5, 2005
12:07 am

Been the same for 4 yrs no change yet. ga_carol11 <carol@...> wrote:About the shadows, if I am in a room and the lights get turned out, I might as well...
Trisha Marie
qcgirl63
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Oct 6, 2005
1:00 am

hiya yes i have had improvement with adies, my pupil isn't as big now. lucy x Trisha Marie <qcgirl63@...> wrote: Been the same for 4 yrs no change yet. ...
lucy gleeson
lucygleeson1uk
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Oct 7, 2005
10:54 am

I have adie's for about 8 years in my left pupil. I have found that eating a high protein, low carb diet improves my vision considerably. I heard someone say...
Rita Cullum
ritac42
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Oct 10, 2005
4:11 pm

I am reading these messages for the first time, and BANG, here is one I can add to. I have Mitral Valve prolapse AND Fibromyalgia! Because I have Fibro,...
mama4fabia
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Nov 7, 2005
4:40 pm

mama4fabia <pgretire@...> wrote: I am reading these messages for the first time, and BANG, here is one I can add to. I have Mitral Valve prolapse AND...
Deb and Dennis Gerond...
mama4fabia
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Nov 7, 2005
7:19 pm

Deb and Dennis, My eye hurt on the opposite side of the adies pupil and it hurt in my brain. I could pin point the area inside for ever. My adies eye hurts...
Rita Cullum
ritac42
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Nov 7, 2005
8:39 pm

Hi Carol I was diagnosed with an Adie's pupil about two and a half years ago. It happened after a severe migraine which may have been brought on by dental...
axtis7
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Oct 10, 2005
4:09 pm

A neurologist told me I have fibromyalgia... but I think it just means I have a lot of tender spots. I have to follow a yeast-syndrome diet too, but I didn't...
linja@...
lajavins
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Oct 11, 2005
12:53 am

Hi Linda, Before I found out I had Adies, I was told I may have MPS or myofacial pain syndrome which I looked up & it was linked with fibromyalgia. I have been...
Mimi Delorme
md_gosselin
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Oct 14, 2005
11:25 pm

Mimi: Don't give up on the pilocarpine drops. I have used them for 18 years, since being diagnosed with adie's pupil. Yes, there is vision distortion, but if...
jm44dog@...
jmdog2004
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Oct 15, 2005
3:22 am
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