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Reply | Forward Message #1033 of 1249 |
Re: New Adie Group Member

Hello everyone, I am a little confused...
1. I understand the sensitivity to light--I got prescription
sunglasses AND quit working in the bar
2. Night vision loss--that's easy, my husband does all the night
driving, I just drive in town
3. Headaches--a couple of Advil generally helps....

But I have never had the loss of shadows? What exciting occurance
should I be waiting for?

I have found that by about 4pm my eyes are toast. too tired to work
on the computer anymore. Also when I am just plain tired I will have
a VERY hard time in focusing on the guide on the TV. That's about the
time I turn the TV off.

Any close up things I have adapted--eyebrows used to take me hours,
just couldn't see them half the time. I stopped being a chicken and
now get them waxed. I don't wear makeup or contacts

If someone wants me to read something I take it from them and hold it
to where MY eyes are working at the particular moment in time. It
varies depending on how tired I am.

I also invested in a medicalert braclet, just in case. I think that
is how I got mine--major car accident. I put my head between the
steering wheel and the door, breaking the dash.

I don't go outside without my sunglasses, just helps awhole lot. I
keep a flashlight in the truck for when I go to friends houses and
need to see when I head back to the truck, or my son holds my hand.

Oh and I was diagnosed about 3-4 years ago and am a special one with
Adies in both eyes.

anyway, sorry to ramble, could you let me know about this loss of
shadows thing, please?

many thanks

anne

--- In adie_syndrome@yahoogroups.com, "ga_carol11" <carol@p...> wrote:
> I just found this site and I am suprised to see so many others with
> Adie's. With the condition being so rare, it's hard to find anyone
> who understands.
>
> I developed Adie's in 2003 after a sinus infection. I had a really
> bad headache that day but thought it was just the infection. I
really
> freaked out when I discovered my right pupil was so dialated. When I
> went to my eye doctor, he took one look and said Adie's. Boy, I
> wasn't prepared for the sensitivity to light (especially strobe
> lights-instant migraine!)), loss of shadows, night vision loss, and
> headaches.
>
> I really haven't found anything that helps, does anyone have any
> suggestions?
>
> Thanks for any suggestions.








Thu Sep 29, 2005 2:33 am

sverige90
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Forward
Message #1033 of 1249 |
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I just found this site and I am suprised to see so many others with Adie's. With the condition being so rare, it's hard to find anyone who understands. I...
ga_carol11
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Jul 25, 2005
8:54 pm

I have not suffered night vision loss but you may want look in to night vision glasses, avoid over head lighting, get yourself a nice bucket hat and be sure to...
Trisha Marie
qcgirl63
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Jul 26, 2005
6:12 pm

Hello everyone, I am a little confused... 1. I understand the sensitivity to light--I got prescription sunglasses AND quit working in the bar 2. Night vision...
sverige90
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Sep 29, 2005
4:09 pm

About the shadows, if I am in a room and the lights get turned out, I might as well be completely blind for about 15 minutes. With my right eye being dilated,...
ga_carol11
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Oct 5, 2005
12:07 am

Been the same for 4 yrs no change yet. ga_carol11 <carol@...> wrote:About the shadows, if I am in a room and the lights get turned out, I might as well...
Trisha Marie
qcgirl63
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Oct 6, 2005
1:00 am

hiya yes i have had improvement with adies, my pupil isn't as big now. lucy x Trisha Marie <qcgirl63@...> wrote: Been the same for 4 yrs no change yet. ...
lucy gleeson
lucygleeson1uk
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Oct 7, 2005
10:54 am

I have adie's for about 8 years in my left pupil. I have found that eating a high protein, low carb diet improves my vision considerably. I heard someone say...
Rita Cullum
ritac42
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Oct 10, 2005
4:11 pm

I am reading these messages for the first time, and BANG, here is one I can add to. I have Mitral Valve prolapse AND Fibromyalgia! Because I have Fibro,...
mama4fabia
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Nov 7, 2005
4:40 pm

mama4fabia <pgretire@...> wrote: I am reading these messages for the first time, and BANG, here is one I can add to. I have Mitral Valve prolapse AND...
Deb and Dennis Gerond...
mama4fabia
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Nov 7, 2005
7:19 pm

Deb and Dennis, My eye hurt on the opposite side of the adies pupil and it hurt in my brain. I could pin point the area inside for ever. My adies eye hurts...
Rita Cullum
ritac42
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Nov 7, 2005
8:39 pm

Hi Carol I was diagnosed with an Adie's pupil about two and a half years ago. It happened after a severe migraine which may have been brought on by dental...
axtis7
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Oct 10, 2005
4:09 pm

A neurologist told me I have fibromyalgia... but I think it just means I have a lot of tender spots. I have to follow a yeast-syndrome diet too, but I didn't...
linja@...
lajavins
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Oct 11, 2005
12:53 am

Hi Linda, Before I found out I had Adies, I was told I may have MPS or myofacial pain syndrome which I looked up & it was linked with fibromyalgia. I have been...
Mimi Delorme
md_gosselin
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Oct 14, 2005
11:25 pm

Mimi: Don't give up on the pilocarpine drops. I have used them for 18 years, since being diagnosed with adie's pupil. Yes, there is vision distortion, but if...
jm44dog@...
jmdog2004
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Oct 15, 2005
3:22 am
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