Hello each and everyone. I am new member just been accepted. I had adencystic carcinoma of the parotid gland in 1993, so 16 years ago come june, which is when...
no i dont have neural invasion, but i have lived a good long life and i know thru god i have many more years to come. Keep the faith thats what...
Lori you have lived with ACC for 18 years and that gives me hope. Do you have neural invasion. How long has that been there and how does it affect your ...
Hi barbara, about the lung surgery i had, i went 1 hour away to a university hospital cause it coulnt be done where i live. the spots...
hi justine, my name is lori. First i;d like to say how sorry i am that you;ve got this dreaded disease, especially at such a young age. I;m...
Lori, We, my husband & I, were also interested in the surgery you had to remove the cancer from the lungs! Matt's mets is currently in both lungs. Are your...
I really would like to learn more about the lung surgery to have it removed from my lungs. . I did not know there was a surgery to help there. I have a...
hey stephan, my name is lori. I heard your an ACC survivor as well. i was diagnosed in 1990 at age 27. It was in my left maxilary...
Thank you for your response. There is some research that indicate that ACC may be caused by a human papalimoma virus (HPV). that would explain your mother...
Sorry! It was rather strange that both had ACC but in different locations. My mother in law was diagnosed first in the late 80's. ENT...
Justine, My mother-in-law had her right parotid gland removed for the same reason. The ENT cut the facial nerve to the right side...
Thanks Barbara! Every day is a new day with this thing, that is for sure. I feel out of control and don't feel I have the resources to make wise choices....
Good Morning Michele, First, Thanks for your e-mail. We definitely understand how you feel, and the need to find out more information. My husband, Matt, now...
There is a unit here in Texas thats even close to my house. I am still waiting for my oral surgeon to call me back. He is probably waiting for my oncologist to...
... extractions its still scarey, when I went for my hyperbaric treatment there was a lady having 1 tooth removed, she had had her radiotherapy treatment 20...
Hi Tracey, your not a 'goofball' at all, doesnt matter how many extractions its still scarey, when I went for my hyperbaric treatment there was a lady having 1...
Yes, Tracey, there actually is a Gratz, Pennsylvania, named for founder, Simon Gratz. It is a tiny town about 50 miles from Harrisburg and is, or at least...
The bugs may be larger in Houston, but they are huge in Corpus, where my son used to live. You are in the area of Texas where I would like to have my next...
I am in the austin area. There is indeed a hospital in this area that has one. I bealive it is at St. David's. I have an appt there this thursday for a...
... My 'kids' live in Katy, near Houston. By kids, I mean my grownup kid and his kids. LOL Tracy, if you let me know in what general geographic are you live,...
There is a Gratz, Pa.? My last name is Gratz. Actually I am from the Philadelphia area and just moved to Texas. yee haw!! Thank you for the referrals though. ...
... having one. I actually received a call from the oral surgeon today and it was pretty good news about that whole thing. I want to get your take on it...
Tracy, I am making some assumptions when, I see gratz in your internet name, that perhaps you might be in Gratz Pennsylvania. I am from Millersburg and have...
Hi, Of course I dont mind you asking, I had 7 teeth removed, no the healing wasnt painful it was just the length of time it all took, I was worried at first...
Thank you sooo much for the info. I really appreciate it. If you dont mind me asking..... you had multiple teeth extracted? Was the healing process painful??...
Hi, I was diagnosed with ACC of submandibular glad in 2003. In 2005 my teeth started to become loose on the side of the jaw I had the radiotherapy treatment...
Hello all!! i am new to this group. I was diagnosed with ACC in the submandibular gland in 2002 and did the whole radiation thing. So far, so good. However,...
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