Hi,
Thanks to the internet I diagnosed this myself (16 months on internet
before I figured out it was endocin and took me 6 months to conclude
it was secondary over primary). It took 2 years and 5 doctors
(gastroenterologist, neurologist, two endocrinologist and my primary)
before I found one that knew what he was doing.  I'm in St. Louis and
the doctor I use in practises environmental medicine. Their credo is
to treat the cause not just the symptom. If you are ready to kill the
next doctor who tells you to see a shrink check into this.  Only 300
doctors in the whole country.  There is one in Kansas City Mo. and at
least one in Chicago I've heard.  Check out my doctors website. If
only I had found him 20 years ago.

  www.ehac-stlouis.com

I'm interested in meeting anyone that lives near me with primary or
secondary adrenal.

Hello all...my little brother told me about this group and so I
signed up today. I have a son who is now 7 with some type of adrenal
insufficency. We dont have a name for it and may never but he is on
Cortef and Florinef and is being treating like he has CAH. We had a
lots of ups and downs through the years but my problem now is finding
a new pediatric endocronologist. Ours married and moved away and the
one we found first is scaring us saying he wants to pull our son off
his meds to test him and that everything we have been told for the
past 7 years dealing with this is "crap". This may be true but
somehow we have kept him aline with what we were told and we are
concerned about this talk of taking him off his meds...they tried it
once when he was 3 and he almost died. Anyone living in the
southeast US if you have a dotor you could recommend me checking into
I would appreciate. Also would love to talk to any parents of
children with anything similar just to have some one to relate to. I
look forward to learning from everyone...Laura

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FYI - The Neuroendocrine Unit at Massachusetts General Hospital is
conducting a  research study where they are  are replacing
testosterone via an investigational patch to normal female levels to
find out if women have improved energy levels, sex drive, weight,
muscle, and bone density.  They are looking for women who have
hypoadrenalism +/or hypogonadism as a result of a pituitary disorder.

Hi All,

I was accepted into this study.  My brain has a 6mm prolactinoma which
causes secondary addisons, low thyroid, high cholesterol, telling
funny jokes, yada, yada, yada.  I kept telling my Endo that I needed
testosterone for muscle mass and strength since my muscles had
seemingly wasted away and my strength  too.  My levels were just above
the little red line at the bottom but all of the endo's said NO WAY!
you will  grow a beard!  LOL.   I applied with Mass General for the
research study and they said normal was middle of the road not down at
base line so I'm in!  Yeah!

The note below was posted on the MSN Pituitary Chat Web site (a great
site for support).  http://groups.msn.com/PituitaryChat/general.msnw

Hi!  ... I am involved in a research study here at Massachusetts
General Hospital in Boston, MA.  We are looking for women 18-50 years
who have hypoadrenalism +/or hypogonadism as a result of a pituitary
disorder.  I noticed your webite contains information on
panhypopituitarism, so I thought some of the people who obtain
information from you organization may be interested in this study.

In this study we are replacing testosterone via an investigational
patch to normal female levels to find out if women have improved
energy levels, sex drive, weight, muscle, and bone density.

We are providing flight, hotel and remuneration of up to $600 to those
who qualify.  Please let me know how I may advertise this research
study in your newsletter and on your
web page.

Best Regards,
Julie Jones
Nurse Practitioner
Neuroendocrine Unit
Massachusetts General Hospital- BUL 457B
55 Fruit Street
Boston, MA 02114
Email:  jjones18@...
Phone:  617-724-183

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I am glad you are doing better..... since home from
the hospital. Sometimes I think everything we do leads
to an adventure wether good or bad. I have never tried
creatine for the heart muscle.   I do take
vitamins..... multi b, ester c, lots of calcium
citrate(beginning bone loss) and magnesium citrate.
The b helps some for energy, we all know the c helps
immune system and the magnesium replaces what the
calcium depletes and helps the leg and hand cramps as
well.      Let me know how you do with research on
creatine..... I like to know the trial and error and
what helps and what doesn't. I have taken care of most
of the cramps.... but as it gets colder my joints are
getting more stiff and ache.... if anyone has any help
with this one... I was going to check on use of msm
but I haven't got to that yet.   I wish you all the
best.         Louise

__________________________________
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Seriously folks I'm tyold that taking ctreatione whilst doing
excerecise improves the heart muscle as it improves the build -up of
bodily muscloes doing tresistance excercise. Should I contact a
sports therapist? I think I know one on line in the States because I
have been told that it can be detrimental to the liver. Any
information would be a help.

                        JAMES

-How did I get in Hospital, well I telephoned my Doctor who made a
house call and then called the ambulance and got me into the local
National Health Trust hospital. Where I stayed for just under a week
until I'd stabelized. I wish it could have been avoided but they had
no preparations ready. Indeed it was an adventure, one that doesn't
happen that often thank goodness. My symptoms? I was feeling weak I
had an uncontrollable stool (diareah aka -the squids) alow pulse rate
and a doctor who didn't carry hc with him niether did the paramedics
on the ambulance. But thanks to the health service I'm alright now,
baby I'm alright now (do you remember that song)

By the way lots of love and healing energies sent to you from the u.k.

                          James XXX


-- In addisonsdisease@yahoogroups.com, "Singing Spirit"
<singingspirit@a...> wrote:
> Jimmy,
>
> My sincere regards hearing of your hospitalization!  How
> did you get in the hostpital if I may ask? What where your
> symptoms?  Oh my gosh!  How are you now?
>
> I think all of us on this list push ourselves as far as we
> think we can go and hope we do not push too far so any
> info as to what "too far" is will help us all.
>
> Thanks in advance,
>
> Beverly
> Austin, TX USA
> Secondary Addison's
> 6mm Prolactinoma Pituitary Brain Tumor
> Hypopanthyroid (Whatever that is LOL)
> All around great gal when she is not sleeping!
> Mom of 12 year old terrific son
> Care taker of Bingo the Beagle
>
>
> On 14 Sep 2003 10:31:06 -0000
>   addisonsdisease@yahoogroups.com wrote:
> > ------------------------ Yahoo! Groups Sponsor
> >
> > To unsubscribe from this group, send an email to:
> > addisonsdisease-unsubscribe@yahoogroups.com
> >
> >
> > ------------------------------------------------------------------
------
> >
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> >        1. I'm just out of hospital myself -an' I tell
> > you it's frightening.
> >             From: jimmydefish
> >
> >
> >
______________________________________________________________________
__
> >
______________________________________________________________________
__
> >
> > Message: 1
> >     Date: Sat, 13 Sep 2003 18:39:29 -0000
> >     From: jimmydefish
> > Subject: I'm just out of hospital myself -an' I tell you
> > it's frightening.
> >
> > Hi you all, Yeah I'm just out of a few days in hospital
> > an bloody
> > hell was it frightening. Nobody on the general
> > admissions could deal
> > with addison's disease (not ignorance, just that it
> > isn't as common
> > as the cold) so I was being treated like a drug addict.
> > I spent
> > almost a week in hospital and I got the impression from
> > one of the
> > doctors that I was malingering or such was his attitude.
> > I'm glad
> > that I'm out anyway. All that wommitting, and yes I do
> > get bloody
> > awful headaches (my pulse rate was down to forty
> > something) -and they
> > expect you to be running around in admissions. I was
> > doing some
> > pretty disgusting things involuntarily due to the low
> > b.p. now I want
> > to strengthen my heart muscle a bit so that I can cope
> > with the next
> > time a bit better. Quite confidentially though I think
> > that I dealt
> > with it quite well.
> >
> >               Best wishes to you all (All in the same
> > boat, no matter
> > how we got there.) James
> >
> >
> >
> >
______________________________________________________________________
__
> >
______________________________________________________________________
__
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >
> >
>
> "I cannot blame how I feel on my mate. I cannot blame how
> I feel on my children, or on my mother, or on my
> government, or on my society, or on my client, or on the
> other drivers around me. In other words, the experience
> that I'm having is my job. It's all my creation. It's all
> my responsibility."
> Abraham-Hicks -- 3/23/02
> ---------------------------------------------------------------
> ---------------------------------------------------------------
> The Think Different Store
> http://www.thinkdifferentstore.com/
> For All Your Mac Gear
> ---------------------------------------------------------------
> ---------------------------------------------------------------

Hello,

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Jimmy,

My sincere regards hearing of your hospitalization!  How
did you get in the hostpital if I may ask? What where your
symptoms?  Oh my gosh!  How are you now?

I think all of us on this list push ourselves as far as we
think we can go and hope we do not push too far so any
info as to what "too far" is will help us all.

Thanks in advance,

Beverly
Austin, TX USA
Secondary Addison's
6mm Prolactinoma Pituitary Brain Tumor
Hypopanthyroid (Whatever that is LOL)
All around great gal when she is not sleeping!
Mom of 12 year old terrific son
Care taker of Bingo the Beagle


On 14 Sep 2003 10:31:06 -0000
   addisonsdisease@yahoogroups.com wrote:
> ------------------------ Yahoo! Groups Sponsor
>
> To unsubscribe from this group, send an email to:
> addisonsdisease-unsubscribe@yahoogroups.com
>
>
> ------------------------------------------------------------------------
>
> There is 1 message in this issue.
>
> Topics in this digest:
>
>        1. I'm just out of hospital myself -an' I tell
> you it's frightening.
>             From: jimmydefish
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>     Date: Sat, 13 Sep 2003 18:39:29 -0000
>     From: jimmydefish
> Subject: I'm just out of hospital myself -an' I tell you
> it's frightening.
>
> Hi you all, Yeah I'm just out of a few days in hospital
> an bloody
> hell was it frightening. Nobody on the general
> admissions could deal
> with addison's disease (not ignorance, just that it
> isn't as common
> as the cold) so I was being treated like a drug addict.
> I spent
> almost a week in hospital and I got the impression from
> one of the
> doctors that I was malingering or such was his attitude.
> I'm glad
> that I'm out anyway. All that wommitting, and yes I do
> get bloody
> awful headaches (my pulse rate was down to forty
> something) -and they
> expect you to be running around in admissions. I was
> doing some
> pretty disgusting things involuntarily due to the low
> b.p. now I want
> to strengthen my heart muscle a bit so that I can cope
> with the next
> time a bit better. Quite confidentially though I think
> that I dealt
> with it quite well.
>
>               Best wishes to you all (All in the same
> boat, no matter
> how we got there.) James
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

"I cannot blame how I feel on my mate. I cannot blame how
I feel on my children, or on my mother, or on my
government, or on my society, or on my client, or on the
other drivers around me. In other words, the experience
that I'm having is my job. It's all my creation. It's all
my responsibility."
Abraham-Hicks -- 3/23/02
---------------------------------------------------------------
---------------------------------------------------------------
The Think Different Store
http://www.thinkdifferentstore.com/
For All Your Mac Gear
---------------------------------------------------------------
---------------------------------------------------------------

i'm so glad your ok. what a horrible experience...do
you know what put you there? were you run down or
stressed or what?

i've been so low lately and feel like it's taking
forever to snap outta this slump- no energy, muscle
aches, depression, blurry vision, headaches, complete
numbness. i haven't been like this in foreveer- maybe
just got stressed i think and my body and symptoms are
catching up.
i hope relief is on the way. sick of being sick!

so glad you're ok. not a fun thing to go through at
all...i remember being there too. docter told me i had
an eating disorder and it was all in my head....i'll
never forget how sick i was.


--- jimmydefish <no_reply@yahoogroups.com> wrote:
> Hi you all, Yeah I'm just out of a few days in
> hospital an bloody
> hell was it frightening. Nobody on the general
> admissions could deal
> with addison's disease (not ignorance, just that it
> isn't as common
> as the cold) so I was being treated like a drug
> addict. I spent
> almost a week in hospital and I got the impression
> from one of the
> doctors that I was malingering or such was his
> attitude. I'm glad
> that I'm out anyway. All that wommitting, and yes I
> do get bloody
> awful headaches (my pulse rate was down to forty
> something) -and they
> expect you to be running around in admissions. I was
> doing some
> pretty disgusting things involuntarily due to the
> low b.p. now I want
> to strengthen my heart muscle a bit so that I can
> cope with the next
> time a bit better. Quite confidentially though I
> think that I dealt
> with it quite well.
>
>              Best wishes to you all (All in the same
> boat, no matter
> how we got there.) James
>
>

=====

         Heather B. Fiocchi


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Hi you all, Yeah I'm just out of a few days in hospital an bloody
hell was it frightening. Nobody on the general admissions could deal
with addison's disease (not ignorance, just that it isn't as common
as the cold) so I was being treated like a drug addict. I spent
almost a week in hospital and I got the impression from one of the
doctors that I was malingering or such was his attitude. I'm glad
that I'm out anyway. All that wommitting, and yes I do get bloody
awful headaches (my pulse rate was down to forty something) -and they
expect you to be running around in admissions. I was doing some
pretty disgusting things involuntarily due to the low b.p. now I want
to strengthen my heart muscle a bit so that I can cope with the next
time a bit better. Quite confidentially though I think that I dealt
with it quite well.

              Best wishes to you all (All in the same boat, no matter
how we got there.) James

Hi Heever i have muscle fatugue all the time and just from walking up stairs!!
and as far as i know there is nothing u can do about it!!! I get headaches all
the time too!! i always wake up with them which isn't very nice!!!!

I have had addisons disease for 7 years due to a car crash i had!! and sometimes
i get really ill and need to go into hosptail. I had a lump on the back of my
head once and ended up in intenve care!!!! almost dead!!! but u just get over it
and move on!!!!

heever_hlb <heever_hlb@...> wrote:
hey, does anyone else experience major muscle fatigue- like leg
cramps from walking everyday? i don't mean like majorly excerting
oneself either, just normal walking? and headaches and stomach
aches..i've had em all forever and just want to know about other
people as well. how bout dizziness and eye sight- both becoming a
problem.
i've had addison's for 6 years and even though i'm very "healthy"
sometimes i hit slumps and think i may be getting worse.
i knew i had adrenal failure but my docter just told me i have
complete endocrine failure- i'm not making anything on my own- my
adrenals are shot along with my thyroid and my overies.
i'm so tired and down lately...i know it's just a slump- i'd say i
fall into one every six months or so, but man when it hits it hits.
i have to seek new docters now for the right new meds because of all
this and am just so emotional and sensitive about the whole
thing...probibly becaue of how the whole thing was handled in the
first place, but now i'm babling...sorry. just wanted to know or at
least hoped maybe someone else shared these frustrations.


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Love

Kaz

xxxxxxxxxxxxxxxxxxxxxxxxx


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[Non-text portions of this message have been removed]

hey, does anyone else experience major muscle fatigue- like leg
cramps from walking everyday? i don't mean like majorly excerting
oneself either, just normal walking? and headaches and stomach
aches..i've had em all forever and just want to know about other
people as well. how bout dizziness and eye sight- both becoming a
problem.
i've had addison's for 6 years and even though i'm very "healthy"
sometimes i hit slumps and think i may be getting worse.
i knew i had adrenal failure but my docter just told me i have
complete endocrine failure- i'm not making anything on my own- my
adrenals are shot along with my thyroid and my overies.
i'm so tired and down lately...i know it's just a slump- i'd say i
fall into one every six months or so, but man when it hits it hits.
i have to seek new docters now for the right new meds because of all
this and am just so emotional and sensitive about the whole
thing...probibly becaue of how the whole thing was handled in the
first place, but now i'm babling...sorry. just wanted to know or at
least hoped maybe someone else shared these frustrations.

Jimmydefishu
I agree with u!! about the deprestion thing!! it does go after the cortisol goes
up

E-mail me kazy_baby2001@... and that goes to anyone else that wants to
write to me
jimmydefish <no_reply@yahoogroups.com> wrote:
I think not but other people may say yes. I can see depression (not
clinical)being an early factor due to the imbalance of cortisol on
the pretext that the body is an integral part of the mind. When the
meds reach a more 'normal' balance I think that any depression
goes.What is everyone elses opinion on this? I would like a good
concensus.

               James


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[Non-text portions of this message have been removed]

I think not but other people may say yes. I can see depression (not
clinical)being an early factor due to the imbalance of cortisol on
the pretext that the body is an integral part of the mind. When the
meds reach a more 'normal' balance I think that any depression
goes.What is everyone elses opinion on this? I would like a good
concensus.

               James

I am writing to tell you my experience of adshg on the web,hoo ha
they think that a woman who sends other emails that are nothing to do
with the topic of the group. Not even the concern of the person to
who they erroneously sent them are innocently of sending a
diasturbing email -I found it so. Then the person who sends chain
emails to the site (and they get put on!) and more or less tellsa the
membership  that they are a load of self obsessed people and we
should think of this fictitious character dying of cancer -oh yes and
that she's not very well. Lo and behold the first miscreant is now
trying to say that addison's is a cause of mental illness -Lord help
us in our hour of need! Any chemical imbalance in the body could
appear to be a mental illness but sometimes it is best not to do what
one's head tells you, I am an ex-smoker and there are times that my
head tells me to have a ciggi it would be alright BUT I know that is
only the addiction speaking to me. Therefore is smoking a mental
illness -I think not! But addison's if it is treated correctly should
not be any problems. Indeed I sdo not expect anything of my life
other than I have. I have this problem for life but it is not a life
sentance. Stuff stupid women who send emails to the wrong person.
(Actually she wanted her son to fiddle the handbrake to get the car
through the MOT!) and when I told her thjat my mother and Father were
dead the old bitch didn't want to apologise, when I castigated her
for it she displays it on the adshg noticeboard as if I was in the
wrong. The moderator there took this incompetant woman's side so I
left that email group. So this is an inquiry as to whether this group
is anything other that addison's disease in the subject matter. Am I
to be expecting enquiries as to whether I will be comjing to help my
Father (cremated 1980) with his none existant automobile so that my
dead Mother (Cremated 1998) can get on with the decorating. If these
things weren't so tragic they'd be hilarious! Needless to say I've
left the email group, wierdos are not my cup of tea. I am still a
member of adshg though. Sorry if anyone is upset by my telling of
this story but I think I should tell someone. note the names have
been ommitted to protect the guilty.

                        Never mind -onwards and upwards!
                          James .W. Fisher

Hi Jimmy,
              I just got back from PA and am playing catch up with my e-mails . 
About your first ? on the med alert tags, as with any doctor or EMT paramedic
etc. I think it would depend on their level of competence but it is suppose to
be protocal to check for one on a person. It is sad too many times this is not
the case. Also, I wanted to mention a lot of doctor and or medical staff are not
aware of Addisons and really do not know what they are dealing with.  My own
experiences have been many where I actually had to teach the doctor how to treat
me.  As for the tooth removal I would check with your endo. Not so much for the
novacane but for the trama on the body. The doctor may want to increase your
steroid.  I know this isn't much help but maybe you can find out more info and
share with us.
                                                                                 
Best Of Luck,
                                                                                     
Tinajimmydefish <no_reply@yahoogroups.com> wrote:
I think I've asked this question before. I'm making an enquirey at
adshg regarding an op to remove a tooth (where I have to have a tooth
removed, local anathetic). Does anyone know the correct protocol?
                       Please...Sincerely James


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[Non-text portions of this message have been removed]

I think I've asked this question before. I'm making an enquirey at
adshg regarding an op to remove a tooth (where I have to have a tooth
removed, local anathetic). Does anyone know the correct protocol?
                       Please...Sincerely James

That is the question -no matter what side the pond your on it is no
good if you've gone to the trouble to obtain/buy into the scheme, if
the medical proffesionals are not trained to look for them.
     Imagime if you will an addisonian is brought into an accident and
emergency dept (is that an emergency room in the states?) unconcious,
do they look for the information on his person? I hope so -or I'm
wasteing money buying it. Doesn't anybody know?
                       Thanks, Regards   James

Dear Beverly,
             Be responsible for your own health. Don't let some
arrogant endocrinologist call the odds. -Or does he supervise your
life anyway? As a responsible adult I would certainly resent some guy
who I see once in a while dominating me! Who's life is it anyway? Do
you live for him or yourself?
--- In addisonsdisease@yahoogroups.com, "Singing Spirit"
<singingspirit@a...> wrote:
> Hi Jimmy,
>
> I do not carry a medic alert. The endo said I do not need
> one (???).  I have secondary addisions from a prolactinoma
> pitutitary tumor.  I have not had an adrenal crisis thank
> goodness. On the other hand when the tumor was dx'd the doc
> said I was a month away from death and rolling down hill
> from adrenal exhaustion.  So go figure.
>
>  I think it would be prudent to have one though especially
> since it's 98 degrees out there in Austin, Texas, and I am
> a single Mom.
>
> Do you wear the alert on your wrist or necklace or keep it
> in your wallet?  Where did you get yours?
>
> Regards and Health,
>
>
> Beverly
>
>
> -------------------
> >
> > There is 1 message in this issue.
> >
> > Topics in this digest:
> >
> >       1. Do we carry MEDIC - ALERT or S.O.S Medallions?
> >            From: jimmydefish
> >
> >
> >
>
______________________________________________________________________
__
> >
>
______________________________________________________________________
__
> >
> > Message: 1
> >    Date: Mon, 14 Jul 2003 21:42:01 -0000
> >    From: jimmydefish
> > Subject: Do we carry MEDIC - ALERT or S.O.S Medallions?
> >
> >  I carry Medi alert myself, But I have been told that
> > they are
> > ignored by the medical proffesion (a thing which suprised
> > me) Then if
> > the medics do not notice them what's the use of having
> > them. When I
> > have been admitted to hospital in the past I have been
> > able to show
> > the medallion off as I have been conscious. Lord knows
> > what happens
> > if I'm admitted unconscious. Perhaps some medical person
> > could supply
> > the answer. Is it part of medical training to watch out
> > for such
> > things as Medic Alert jewelry or is the arrogance of some
> > of the
> > health service with its doctor knows best attitude
> > paramount.
> >
> >
> >                  jimmydefish@h...
> >
> >
> >
> >
>
______________________________________________________________________
__
> >
>
______________________________________________________________________
__
> >
> >
> >
> > Your use of Yahoo! Groups is subject to
> > http://docs.yahoo.com/info/terms/
> >
> >
>
> Those who want the fewest things are nearest to the gods.
>
> Socrates
> ---------------------------------------------------------------
> ---------------------------------------------------------------
> The Think Different Store
> http://www.thinkdifferentstore.com/
> For All Your Mac Gear
> ---------------------------------------------------------------
> ---------------------------------------------------------------

I agree! My Dr. said to get one and I've had one since I was diagnosed.
I am with the medic Alert Foundation (www.medicalert.org), Thank the
Lord - nothing has ever happened to where it has had to be used, I guess
that would be the real test to see how they respond & if it is worth it,
but I do have one just incase!
Tahnya

	 -----Original Message-----
	 From: david byrd [mailto:freebyrd4517@...]
	 Sent: Tuesday, July 15, 2003 11:04 AM
	 To: addisonsdisease@yahoogroups.com
	 Subject: Re: [Addison's Disease] Digest Number 58


	 my daughter has to wear one all the time. they wouldnt even
release her from the hospital until she had one. we get hers from the
medic alert foundation. u can also register with them so they have all
ur info in their computer so that if a paremedic calls the phone # on
the bracelet they get get all ur info such as emergency contacts and
such. i strongly reccommend it no matter what ur dr says. what if u did
have a crisis and u were unconsious? who would know what was wrong with
you? i also have to keep a shot to give to my daughter in case of loss
of consiousness or severe trauma.

	 Singing Spirit <singingspirit@...> wrote:Hi Jimmy,

	 I do not carry a medic alert. The endo said I do not need
	 one (???).  I have secondary addisions from a prolactinoma
	 pitutitary tumor.  I have not had an adrenal crisis thank
	 goodness. On the other hand when the tumor was dx'd the doc
	 said I was a month away from death and rolling down hill
	 from adrenal exhaustion.  So go figure.

	 I think it would be prudent to have one though especially
	 since it's 98 degrees out there in Austin, Texas, and I am
	 a single Mom.

	 Do you wear the alert on your wrist or necklace or keep it
	 in your wallet?  Where did you get yours?

	 Regards and Health,


	 Beverly


	 -------------------
	 >
	 > There is 1 message in this issue.
	 >
	 > Topics in this digest:
	 >
	 >       1. Do we carry MEDIC - ALERT or S.O.S Medallions?
	 >            From: jimmydefish
	 >
	 >
	 >

________________________________________________________________________
	 >

________________________________________________________________________
	 >
	 > Message: 1
	 >    Date: Mon, 14 Jul 2003 21:42:01 -0000
	 >    From: jimmydefish
	 > Subject: Do we carry MEDIC - ALERT or S.O.S Medallions?
	 >
	 >  I carry Medi alert myself, But I have been told that
	 > they are
	 > ignored by the medical proffesion (a thing which suprised
	 > me) Then if
	 > the medics do not notice them what's the use of having
	 > them. When I
	 > have been admitted to hospital in the past I have been
	 > able to show
	 > the medallion off as I have been conscious. Lord knows
	 > what happens
	 > if I'm admitted unconscious. Perhaps some medical person
	 > could supply
	 > the answer. Is it part of medical training to watch out
	 > for such
	 > things as Medic Alert jewelry or is the arrogance of some
	 > of the
	 > health service with its doctor knows best attitude
	 > paramount.
	 >
	 >
	 >                  jimmydefish@...
	 >
	 >
	 >
	 >

________________________________________________________________________
	 >

________________________________________________________________________
	 >
	 >
	 >
	 > Your use of Yahoo! Groups is subject to
	 > http://docs.yahoo.com/info/terms/
	 >
	 >

	 Those who want the fewest things are nearest to the gods.

	 Socrates
	 ---------------------------------------------------------------
	 ---------------------------------------------------------------
	 The Think Different Store
	 http://www.thinkdifferentstore.com/
	 For All Your Mac Gear
	 ---------------------------------------------------------------
	 ---------------------------------------------------------------



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[Non-text portions of this message have been removed]

my daughter has to wear one all the time. they wouldnt even release her from the
hospital until she had one. we get hers from the medic alert foundation. u can
also register with them so they have all ur info in their computer so that if a
paremedic calls the phone # on the bracelet they get get all ur info such as
emergency contacts and such. i strongly reccommend it no matter what ur dr says.
what if u did have a crisis and u were unconsious? who would know what was wrong
with you? i also have to keep a shot to give to my daughter in case of loss of
consiousness or severe trauma.

Singing Spirit <singingspirit@...> wrote:Hi Jimmy,

I do not carry a medic alert. The endo said I do not need
one (???).  I have secondary addisions from a prolactinoma
pitutitary tumor.  I have not had an adrenal crisis thank
goodness. On the other hand when the tumor was dx'd the doc
said I was a month away from death and rolling down hill
from adrenal exhaustion.  So go figure.

I think it would be prudent to have one though especially
since it's 98 degrees out there in Austin, Texas, and I am
a single Mom.

Do you wear the alert on your wrist or necklace or keep it
in your wallet?  Where did you get yours?

Regards and Health,


Beverly


-------------------
>
> There is 1 message in this issue.
>
> Topics in this digest:
>
>       1. Do we carry MEDIC - ALERT or S.O.S Medallions?
>            From: jimmydefish
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
>    Date: Mon, 14 Jul 2003 21:42:01 -0000
>    From: jimmydefish
> Subject: Do we carry MEDIC - ALERT or S.O.S Medallions?
>
>  I carry Medi alert myself, But I have been told that
> they are
> ignored by the medical proffesion (a thing which suprised
> me) Then if
> the medics do not notice them what's the use of having
> them. When I
> have been admitted to hospital in the past I have been
> able to show
> the medallion off as I have been conscious. Lord knows
> what happens
> if I'm admitted unconscious. Perhaps some medical person
> could supply
> the answer. Is it part of medical training to watch out
> for such
> things as Medic Alert jewelry or is the arrogance of some
> of the
> health service with its doctor knows best attitude
> paramount.
>
>
>                  jimmydefish@...
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

Those who want the fewest things are nearest to the gods.

Socrates
---------------------------------------------------------------
---------------------------------------------------------------
The Think Different Store
http://www.thinkdifferentstore.com/
For All Your Mac Gear
---------------------------------------------------------------
---------------------------------------------------------------



Yahoo! Groups SponsorADVERTISEMENT

To unsubscribe from this group, send an email to:
addisonsdisease-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



---------------------------------
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[Non-text portions of this message have been removed]

Hi Jimmy,

I do not carry a medic alert. The endo said I do not need
one (???).  I have secondary addisions from a prolactinoma
pitutitary tumor.  I have not had an adrenal crisis thank
goodness. On the other hand when the tumor was dx'd the doc
said I was a month away from death and rolling down hill
from adrenal exhaustion.  So go figure.

  I think it would be prudent to have one though especially
since it's 98 degrees out there in Austin, Texas, and I am
a single Mom.

Do you wear the alert on your wrist or necklace or keep it
in your wallet?  Where did you get yours?

Regards and Health,


Beverly


-------------------
>
> There is 1 message in this issue.
>
> Topics in this digest:
>
>       1. Do we carry MEDIC - ALERT or S.O.S Medallions?
>            From: jimmydefish
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
>    Date: Mon, 14 Jul 2003 21:42:01 -0000
>    From: jimmydefish
> Subject: Do we carry MEDIC - ALERT or S.O.S Medallions?
>
>  I carry Medi alert myself, But I have been told that
> they are
> ignored by the medical proffesion (a thing which suprised
> me) Then if
> the medics do not notice them what's the use of having
> them. When I
> have been admitted to hospital in the past I have been
> able to show
> the medallion off as I have been conscious. Lord knows
> what happens
> if I'm admitted unconscious. Perhaps some medical person
> could supply
> the answer. Is it part of medical training to watch out
> for such
> things as Medic Alert jewelry or is the arrogance of some
> of the
> health service with its doctor knows best attitude
> paramount.
>
>
>                  jimmydefish@...
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

Those who want the fewest things are nearest to the gods.

Socrates
---------------------------------------------------------------
---------------------------------------------------------------
The Think Different Store
http://www.thinkdifferentstore.com/
For All Your Mac Gear
---------------------------------------------------------------
---------------------------------------------------------------

I carry Medi alert myself, But I have been told that they are
ignored by the medical proffesion (a thing which suprised me) Then if
the medics do not notice them what's the use of having them. When I
have been admitted to hospital in the past I have been able to show
the medallion off as I have been conscious. Lord knows what happens
if I'm admitted unconscious. Perhaps some medical person could supply
the answer. Is it part of medical training to watch out for such
things as Medic Alert jewelry or is the arrogance of some of the
health service with its doctor knows best attitude paramount.


                  jimmydefish@...

Hey Jimmydefish

Well with me it was a car crash that caused my addisions disease and I nearly
died!!!! more then once!! but i don't let it bother me!!! Sometimes thou it does
bother me very much so espelly when i see the bloke that caused the car crash in
the first place!!! but anyway now im coping fine i think!!! I did see a
counseller not so long ago!! because i have other things wrong with me too not
just addisions but thats another story!!!

Anyway Jimmy what is your e-mail adderss?? mines kazy_baby2001@... and
that goes for others not wanna talk to me!!!

jimmydefish <no_reply@yahoogroups.com> wrote:
Hi again Kaz,

I can't even say it was a car accident that I was involved in when I
was in secondary school -or the years of aggro' I sufferd from
afterwards. I was told it was due to T.B. of the bowel (bla bla
bla...). I am not realy interested about the why, as long as the how
I cope with it  is keeping me on the level, an let me tell you baby
now being on the level is great for me. At one time in hoaspital I
used to chuck up on nearly every meal, and I was realy wretched, I
felt like chucking the towel in there and then. I'm so glad I didn't
though, complications an' all I'm glad to be a survivor, and life is
improving a little each day. Please keep in touch (via hotmail as
it's more private)


Love James xxx


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Love

Kaz

xxxxxxxxxxxxxxxxxxxxxxxxx


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[Non-text portions of this message have been removed]

Hi again Kaz,

I can't even say it was a car accident that I was involved in when I
was in secondary school -or the years of aggro' I sufferd from
afterwards. I was told it was due to T.B. of the bowel (bla bla
bla...). I am not realy interested about the why, as long as the how
I cope with it  is keeping me on the level, an let me tell you baby
now being on the level is great for me. At one time in hoaspital I
used to chuck up on nearly every meal, and I was realy wretched, I
felt like chucking the towel in there and then. I'm so glad I didn't
though, complications an' all I'm glad to be a survivor, and life is
improving a little each day. Please keep in touch (via hotmail as
it's more private)


Love James xxx

Jimmydefish
Yeah I agree that addisions disease can b mangered be a good doctor!!
And god didn't give me this disease a car crash did!!!


h <no_reply@yahoogroups.com> wrote:
Hey Kazy_baby,
              Of course I do not mean it's no affliction? I mean that
having Addison's disease can be managed by the use of a good doctor.
I have complications myself. Regardless of this I lead a normal life
(as long as I keep taking the tablets) Of course one has to grow into
the change (but then that is life) If life's hardships cannot be
taken in one's stride then............ I might as well give up.
Please note that these are my own opinions, If you are not a member
of adshg (Iam) then you are suffering from isolation. Addiason's
disease is no affliction (which I associate with something that is
God given)as long as it is treated in the correct fashion and like it
or loathe it it is part of me whether I wish to have it or not
there's no way out of it. I spent a lot of time in severe pain due to
Crohn's disease, twenty odd years in fact! I managed to live with it
though (even though they have called it irritable bowel, ulcerative
colitus, pancolitus- I called it mouseur de Marquee myself).
Yes join a support group adshg is a good one, I am a member of that -
and although Daniel O'donnel is the patron I don't think you have to
be a fan. email address adshg@yahoogroups.com . I don't blame anyone
for it (but then who do I sue? -the list is endless.)


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Love

Kaz

xxxxxxxxxxxxxxxxxxxxxxxxx


---------------------------------
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[Non-text portions of this message have been removed]