I have been dealing with doglover through email and asked her to post
what she was taking. I wanted her to hear other opinions and I
thought 1 mg was max dose, but wasn't sure, but suspected her dose
was way to much. I can't imagine.

Doglover also I've never heard of anyone taking just .3 mg of DHEA.
The lowest dose is more like 10 mg. Even then it might not be
enough. If the doc is telling you this, then this is another thing
he doesn't know squat about.

It sounds to me like you need to find another doc, before this one
hurts or even kills you. Try looking for a holistic doctor. They
tend to be good with adrenals and thyroid.

Also don't lower the dex yourself. You could really mess your self
up, but don't ask this doc to help you lower it. I would not trust
him, especially since he was giving you at least 15 times to much
dex.

Chris



--- In addisonsdisease@yahoogroups.com, joy pollock
<doglover392002@y...> wrote:
> that tells you how much the doctors know about the disease up in
north queensland.. i go through a bottle of dexamethesone in two
weeks. i am also on fludrocortisone and thyroxine for thyroid. i was
prednisone and hydrocortisone but the took me off it they said i
didnt have enough cortisone in my system. i am also taking dhea
tablets 0.3mg twice a day.they seem to be helping a lot. only thing
is im like a bloody toad. cant seem to get rid of the fluid.
thankyou for your help i will keep in contact with you. bye for now
joy
>
> janchup <no_reply@yahoogroups.com> wrote:First, screw "they." You
have to do it yourself. Second, if you were put on 5mg dex, "2in
> the morning and 1 at night" adds up to 3! Third, if you are on 5 mg
dex your brain is fried
> already. The dose is 0.50mg and even that dose, if calculated as 50
to 80X stronger than
> HC as recommended by the English ASddisons Association, is too
much. Personally I hated
> dex... it never shuts off; in normal people no HC whatsoever
(unless feverish) is produced
> from 4 hours before bedtime through the first 4 hours of sleep.
Pred will do in a pinch but
> dex is horrible...my personal opinion of course. P.S. the worst
thing you can do is justify
> and start taking too much steroid. I just spent 10 days with a
neuro-endocrine
> pharmacologist on a boat and he says anything more than 20 mg HC or
5 mg pred and
> you are really asking for trouble. Jim
>
> --- In addisonsdisease@yahoogroups.com, "doglover392002"
<doglover392002@y...>
> wrote:
> > i was on prednisone they took me off it and put me on
dexamethesone
> > 5mg 2in the morning and 1 at night . i can also double my dose if
i
> > really need it. i feel like im coping with it at the moment. im
also
> > on dheas which has stopped me from a crisis. i feel like a
different
> > women. is prednisone the only tablet they prescribe to you people
> > over there. that is all i seem to read. if i was you id be
looking
> > in to something different especiallyif you think you are going
down
> > hill quickly. this not having any cortisone in your system for 4
mths
> > that is a sign of the tablets are not working or suitable. i
have
> > only got to forget my tablets i can feel myself going down hill
> > quick. joy.
>
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