It's been 3 days and now I'm starting to suffer. Arthritis like pain
in my hands. Legs weak, don't walk quite as well as before.
Nauseousness, I don't want to do much (didn't go to work )and sleep
is just around the corner, but I am fighting it. I can't type more,
I have to stop.

Chris




--- In addisonsdisease@yahoogroups.com, "Chris Jackson"
<chrisgj@s...> wrote:
> You have to figure that my already poorly working pituitary is
> surpressed from the pred. Permanantly I hope it hasn't been long
> enough. I want to give it plenty of time to come up. After 1/2 a
mg
> total. I'm going to wait a couple of months to see if my symptoms
> disapear and to make sure I don't wreck myself again. Severe
adrenal
> suppression (SAS) is unreal I told the doc after arguing with the
doc
> about how slow I wanted to go. I only in the last week or two
> started gaining weight. I started cortef in early dec 03 and was
> switched to pred early jan 04.
>
> Remember I tried to lower 1 mg for a day and could not do it. I
told
> him I could do it anyway.
>
> I look aweful, hopefully lowering will help improve my looks so I
> don't look like a monster anymore.
>
> Maybe my pituitary condition is more severe than yours, but be very
> careful anyway. I would rather die than go through the SAS again.
> SAS can make it look like you have MS and I had 90% of the
symptoms.
> You have no idea.
>
> Any one that wants the notes I have to the neurologist when I was
> going through it, just email me.
>
> Chris
>
>
> --- In addisonsdisease@yahoogroups.com, janchup <no_reply@y...>
wrote:
> >
> > >to avoid repeating
> > > the severe adrenal suppression again...
> >
> > Aren't they now totally and permanently suppressed? That's why
you
> take prednisolone in
> > the first place. It started in the pituitary but after long
enough
> time on steroids the
> > adrenals will no longer produce anything.
> > You definitely are on a slow taper! Practically geologic time!
I'm
> not sure what being
> > hypopit has to do with needing such a pace. I'm hypopit too and
> dropped from 30HC to 5
> > pred in one day with no drama at all. I was surprised how easy it
> was. I think it was
> > because my endo said there was no way as a secondary that I
needed
> more than 20HC/5
> > pred daily and I believed him.... if I were showing signs of
> Cushing's I would not linger for
> > a moment anywhere above a true replacement dose. Only my opinion:
> it seems silly to
> > take two months to get from 6 to 5.5. Just do it! Every excess
> molecule of pred is
> > contributing to the damage. Agreed: all this is unsolicited
advice
> and quite likely useless.
> > Just my 2 cents... Jim