You have to figure that my already poorly working pituitary is
surpressed from the pred. Permanantly I hope it hasn't been long
enough. I want to give it plenty of time to come up. After 1/2 a mg
total. I'm going to wait a couple of months to see if my symptoms
disapear and to make sure I don't wreck myself again. Severe adrenal
suppression (SAS) is unreal I told the doc after arguing with the doc
about how slow I wanted to go. I only in the last week or two
started gaining weight. I started cortef in early dec 03 and was
switched to pred early jan 04.

Remember I tried to lower 1 mg for a day and could not do it. I told
him I could do it anyway.

I look aweful, hopefully lowering will help improve my looks so I
don't look like a monster anymore.

Maybe my pituitary condition is more severe than yours, but be very
careful anyway. I would rather die than go through the SAS again.
SAS can make it look like you have MS and I had 90% of the symptoms.
You have no idea.

Any one that wants the notes I have to the neurologist when I was
going through it, just email me.

Chris


--- In addisonsdisease@yahoogroups.com, janchup <no_reply@y...> wrote:
>
> >to avoid repeating
> > the severe adrenal suppression again...
>
> Aren't they now totally and permanently suppressed? That's why you
take prednisolone in
> the first place. It started in the pituitary but after long enough
time on steroids the
> adrenals will no longer produce anything.
> You definitely are on a slow taper! Practically geologic time! I'm
not sure what being
> hypopit has to do with needing such a pace. I'm hypopit too and
dropped from 30HC to 5
> pred in one day with no drama at all. I was surprised how easy it
was. I think it was
> because my endo said there was no way as a secondary that I needed
more than 20HC/5
> pred daily and I believed him.... if I were showing signs of
Cushing's I would not linger for
> a moment anywhere above a true replacement dose. Only my opinion:
it seems silly to
> take two months to get from 6 to 5.5. Just do it! Every excess
molecule of pred is
> contributing to the damage. Agreed: all this is unsolicited advice
and quite likely useless.
> Just my 2 cents... Jim