Hello!

i didn't take my meds at a scheduled time either and a new docter told me that
was not good...that you should take both doses at the same time everyday- no
matter what- it made a huge difference in how i felt...
i take my am at 6 and then again at noon...your body doesn't need the corteff
that late at night- do you have trouble sleeping- cause i did when i was taking
it too late in the day, and yes...when i'm late or miss a dose- i'm sick as a
dog the next day- shaking, headaches, shortness of breath- the whole bit...no
fun.
i'm gonna start taking florneff again..i was taken off it a while back but my
energy is soooo low and i remember it being better when i was on it.

yes- i'm having so much trouble keeping weight off. i was 120- which was too
thin, but...now i'm 150 and soooo frustrated- i have no energy to work out but
when i force myslef to it's when i feel best..so i must keep at it.

hope this helps!

Heather

"Sherwood, Tahnya" <tsherwood@...> wrote:
Hi,
When I was first diagnosed, my endocrinologist could not believe I was
still alive! :-) I started out with like 120 Mg of the cortef, but
tapered off...that was in 1996. Now I take 25mg/day, 15 mg in the a.m
and 10mg in the pm, I didn't realize about what time I should take
it...usually I take the 1st dose whenever I eat breakfast (anywhere from
8-11 am), then I take the 10 mg after dinner (anywhere from 5 pm - 9pm)
as for the Florinef, I take it in the winter time every other day, in
the summer time I take it every day.

Do you take your cortef with food?

Can anyone give me a recommendation on if I should adjust my times?

I also take Synthroid for Hypothyroid and take it in the am with the
Cortef & Florinef.

I'm doing pretty good for the most part. My energy level seems average,
not GREAT, but OK. I have noticed if I take my PM Cortef too late or
not at all, the next morning I am nauseous and sometimes vomit (dry
heave mostly), sorry to be so gross sounding, but any advice would be
most appreciative!!!

Also, do any of you have trouble with your weight? Any advice for this?
I weighed 115 when 1st diagnosed (1996) which I looked very sickly and
now I weigh 180, I try to work out (aerobics) at least 30 minutes a day
but don't always have time for this and my job consists of sitting at a
computer all day! Help!!!

Tahnya from Georgia!

-----Original Message-----
From: Richard Banducci [mailto:rickb@...]
Sent: Monday, December 15, 2003 10:02 AM
To: addisonsdisease@yahoogroups.com
Subject: [Addison's Disease] recently diagnosed


I had an Addison's crisis and ended up hospitalized and
diagnosed a few
months back. I'm now on 25 mg. per day of cortisone acetate and
0.1 mg.
per day of fludrocortisone. My doctor also recommended I take
1200
mg. of calcium carbonate(I'm taking 800 and have increased my
dairy
intake) and a multivitamin daily. And also told me to get a flu
shot.
Is this all pretty much standard?

I have been reading with interest about alternative treatments
some of
you are trying. People I know are telling me I should be
trying
alternative means of stregthening specifically my adrenal gland
and
immune system. I've never been much of a believer in
conventional
medicine and it seems strange to be following solely that path
so far.
Any advice on alternatives anyone else has found helpful would
be most
welcome.

Lastly, when I'm not feeling well its not clear to me whether
I'm
experiencing Addison's symptoms, side effects of the medication,
or
another sickness separate from the Addison's. I recently had
head and
body aches along with tiredness for almost 2 weeks but all those

symptoms are gone. Flu? Reaction to the flu shot? Maybe it
doesn't
matter what caused it? Any thoughts from you veterans?

Thanks! Rick





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