Hello all...my little brother told me about this group and so I
signed up today. I have a son who is now 7 with some type of adrenal
insufficency. We dont have a name for it and may never but he is on
Cortef and Florinef and is being treating like he has CAH. We had a
lots of ups and downs through the years but my problem now is finding
a new pediatric endocronologist. Ours married and moved away and the
one we found first is scaring us saying he wants to pull our son off
his meds to test him and that everything we have been told for the
past 7 years dealing with this is "crap". This may be true but
somehow we have kept him aline with what we were told and we are
concerned about this talk of taking him off his meds...they tried it
once when he was 3 and he almost died. Anyone living in the
southeast US if you have a dotor you could recommend me checking into
I would appreciate. Also would love to talk to any parents of
children with anything similar just to have some one to relate to. I
look forward to learning from everyone...Laura
Hello everyone, My name is Alan and I'm a 49 year old married male from a southwest suburb of Denver, Colorado. I was diagnosed with Addisons the first part...
-Hello Alan in Denver your letter sounded so familiar :) and no one knows unless they KNOW...we still function and no one guesses until we are ill or notice...
Hi Mova106 Thank you and you are so right. I try everyday to be happy and smile but sometimes it is hard to feel good. It's not been a very good day today...
... and watch your salt!!!My friends tease me about buying me a salt lick:) balance that potassium too..I am a nurse and my husband is an undertaker so I have...
HI Mova, Thank you. I'm glad they got you back then. It happened to me too. Doctors didn't know what I had and when they finally figured it out I was almost...
Hi Alan, It was good to hear from you although im sorry to hear you've had such a bad time of it! I was diagnosed last Novemeber after a very similar...
Hi Marcus, I'm glad you are feeling good and can do most everything. I wish I could have more energy at times. My doctor is interested in what everyone is...
Alan, wow, your story is so similar to mine is blows my mind. it just makes me feel so much better to hear other people are actually going through what i am,...
Hi Heather, Thank you so very much for writing me. The more I write and either tell my story or hear others I know that they have gone through things that I...
Hi Alan, I'm so glad you wrote back, and I'm sorry to hear that your not feeling well. I hope this day finds you feeling healthier! That's so funny about you...
Heather, Thank you for writing me back. It is something that we have the same things going on with our bodies. The diarhea stopped and I'm regaining some of...
Alan, I think i've been very lucky at the moment in that i have recovered from my crisis very well. I am now on Hydrocortisone which i take 20mg inthe morning...
Alan, I know things seem really rough right now, but I'm sure that once your body ajusts and your all rested up, your going to start feeling much better and ...
Hi Alan What a sad story. I got hypothyroidism just over 3 years ago. It took about 8 moths to diagnose - which was my fault - I just assumed that I was under...
Hi Marcus, Thank you so very much for your concern. My diarhea has stopped but it was pretty bad. I lost about 5 to 10 lbs of water in a little more than 24...
Hello all...my little brother told me about this group and so I signed up today. I have a son who is now 7 with some type of adrenal insufficency. We dont have...
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