this is my first time posting here. my daughter was diagnosed with addisons
disease a year and a half ago at 9. she almost died. she was in a crisis and her
blood sugar dropped to 19. she was so dark that she looked like she was from the
middle east. all of her life she had been thin and dark but doctors said nothing
was wrong. its still all really hard to talk about. her father died at age 28 of
a cerebral hemmorage. drs now say he had addisons disease. the only reason it
was caught in my daughter was because an intern saw her and saw how dark her
gums were and said off-handedly she almost looks like someone with addisons
disease. the other doctors said no way shes to young. but after lots of testing
they found out thats what it was. since she began taking cortisol and florinef
she is like a new person. she is the same size as her peers now (before she was
much smaller) and she is about ten shades lighter. she also has the energy to
play. im ashamed to say i just thought she was
lazy before. i hope she will live a normal life with this disease but i fear
she wont. does anyone else out there know any other children with this disease?

Kaz Richardson <kazy_baby2001@...> wrote:jimmydefish

Whats that meant to mean?? do u think people with addisions disease just have it
in thier head and theres nothing really wrong with them?? please write back as i
would love to know more on what u mean

jimmydefish <no_reply@yahoogroups.com> wrote:
I resent the thought that this illness is an affliction (now come on
it is not a punishment from God) and if it is a resource for people
who have this disease (which is a fact of life, NOT a bloody curse
from Jehova). I'm glad I don't believe in this Israeli shite.

Who uses this site? I don't think any real adisonians do, I refer
all people who have this condition to adshg (GET WISED UP!)



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Love

Kaz

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