Hi All,

Sending you thoughts of high levels of energy today!

How interesting to have gotten Addison's from a fall from a
horse. I wonder how that happened?

I'm very happy to hear of someone else getting neck cramps.
I used to get such bad neck cramps that half my tongue
cramped and I could not talk and thought I might strangle!

Also do you all know about this group:

http://groups.msn.com/PituitaryTumor

Even though Addison's only affects 1:10,000 people thre are
few Addison's patients on the MSN board.

Do you all know of any other Addison's groups?

Also Maggie; weight gain, hair loss, round face and the
Buddha belly are all signs of an over dose of cortisol. But
then if your having crisis' then your not getting an
overdose.

I have secondary adrenal insuffiency caused by a tumor in
my pituitary. Any other prolactinoma patients on this list?

I'm bringing my cortisol intake down by 1/2 a pill a day
over a period of weeks from 30mg (10, 10, 10 to 10, 5, 5).
I have not figured out if I'm feeling the same other than
my appetite has calmed down.

Do you all carry cortisol hypodermics with you in case of
crisis?

So many questions,

Beverly

On 1 Jun 2003 07:31:33 -0000
addisonsdisease@yahoogroups.com wrote:
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> There is 1 message in this issue.
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> Topics in this digest:
>
> 1. Re: I've had Addisons for 6 years after a horse
> riding ac...
> From: maragetsct@...
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
> Date: Sat, 31 May 2003 04:11:18 EDT
> From: maragetsct@...
> Subject: Re: I've had Addisons for 6 years after a horse
> riding ac...
>
> In a message dated 27/05/2003 23:28:13 GMT Daylight Time,
> nevos4@...
> writes:
>
> >
> >
> > Hi all just thought i'd join a few addisons disease
> groups as it is
> > a great way to communicate and share our problems with
> this
> > disease.i am 37 years old (getting older)male live in
> the uk at a
> > town called Newmarket.I fell of a racehorse one morning
> and fell on
> > my head ,i just got back up and got back on my horse.A
> few days
> > later i started getting bad cramp round my
> neck,shoulders and
> > legs .I just thought it was from falling off so didnt
> do anything
> > about it.A few weeks later my cramp was getting worse
> and i fell off
> > again (lol),this time i didnt get back up and ended up
> in hospital
> > (Addenbrookes Cambridge). I nearly died as they said my
> kidneys had
> > packed up and i was nearly in a coma.Thats when they
> found id
> > damaged my brain and that had affected my addrenal
> glands.What i was
> > going though is what we now call a addisonal
> crisis.With the
> > medication i take i live a normal life but gave up
> riding rachorses
> > for living. If anyone wants to chat about addisons
> disease just send
> > me a e-mail nevos4@...
> >
> >
> >
> > hello my nane is maggie and i am 48 now like you one
> day i was ok then the
> > next in a mess i was 39 when i got it and i thourt it
> was the flu it took
> > weeks to get the help i needed i was in hospital in
> doncaster 2 weeks on drips
> > and told i was close to diying it makes you think the
> only think that is hard
> > on me right no is weight i have puta lot on and it up
> sets me but my addisons
> > i live with some times i can go a year with been ill
> like this year i have
> > had to criss and spent time in hospital but sin my
> ills i have made my self
> > dop more i learn to drive and go on pc foster kids and
> home start so i have
> > got a live now i take day by day and make the best of
> it yours maggie
> > www.maragetsct@...
> >
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
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Those who want the fewest things are nearest to the gods.

Socrates
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