hello everyone, i wanted to reply also- it just blows my mind how we all share
the - which i think nuttiest symptoms of this disease- but at the same time
makes me feel so much better to know i'm not the only one.i struggle with the
weight issue and depression but have a pretty good handle on that. i'm on zolaft
and my corteff is at 20mg a day.it seems to be the best match for me yet and i
think when you take your meds plays a huge part as well...i was taking my meds
at the wrong time of day and hitting a huge wall everyday at around mid
afternoon- i could barely hold my head up...now i take them at different times
per my docter and i'm doing much better as far as daily energy goes.losing
weight seems so much harder as time goes on...i know age plays a roll, but i
know it's more the steriods over time. i used to be 120 and now am 145 ideally
i'd like to be 135 cause 120 was too small for me anyways- those were the days,
but even when i eat extremely well- which i tend to anyways to feel better and
exercise- i still really can't get it off, and i can't work out hard enough to
take it off cause it just wipes me out....i think the thing i have to do is find
a happy medium and be greatful i'm as healthy as i am. but it's frustrates me
so!the salt-i'm a beast- i can' t get enough- and someone mentioning the salt
hangover- that was great- i get that all the time...i go nuts without it...eat
WAY too much but what can ya do- we need to.anyways that's enough for me- just
wanted to share. take care everyone.

"Sherwood, Tahnya" <tsherwood@...> wrote:Hi Everyone,
I just wanted to respond as well, I've been diagnosed with Hypothyroid
in 1995 and Addison's in 1996. Before being diagnosed, I worked out 1-2
times every single day & during the time was barely able to walk up a
flight of stairs without having to 'rest' for a few minutes. Now, I can
work out again, but I also struggle with the weight problem. When 1st
diagnosed I was 115 lbs. & now about 170 lbs. It is tough, I also crave
salt a lot too. I'm on about the lowest dose of the steroids I can be
on (30 mg/day) and I also take Paxil (20mg). I still struggle with
tiredness a lot but over all I do pretty well. Incase you haven't yet,
here are a couple of good sights to look at:

http://www.niddk.nih.gov/health/endo/pubs/addison/addison.htm

http://www.medhelp.org/nadf/


Sincerely,
Tahnya Sherwood
Answer His Call
Tell His story
Change Your world

-----Original Message-----
From: Singing Spirit [mailto:singingspirit@...]
Sent: Wednesday, May 07, 2003 7:09 AM
To: addisonsdisease@yahoogroups.com
Subject: Re: [Addison's Disease] Digest Number 44


Hi Beth,

Thanks so much for your input. You know, my
Endocronologist did not say anything about salt. Wierd
since my web research yesterday was all over it. So I'll
try that. I noticed I have a larger desire for salt. Never
used it before but sure do now.

I also noticed on that Australian Addisions web site that
taking the cortisone as soon as I get up in the morning
matches our bodies natural daily cycle. So I am trying that
today.

I don't want to take an antidepressant. I'm already taking
like five drugs a day to shrink the tumor and since my last
visit to the Endo last week high cholesterol and high blood
pressure medicine too now (related to Addisons I discovered
yesterday). So I feel more like a walking pharmacy. LOL

Thanks again for your input I'm looking forward to
participating in this group.

Regards,

Beverly




On 7 May 2003 07:32:51 -0000
addisonsdisease@yahoogroups.com wrote:
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>
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>

------------------------------------------------------------------------
>
> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Wow Great Group!
> From: "beainaustin"
> <singingspirit@...>
> 2. Re: Wow Great Group!
> From: bamb_99
>
>
>

________________________________________________________________________
>

________________________________________________________________________
>
> Message: 1
> Date: Tue, 06 May 2003 16:30:03 -0000
> From: "beainaustin" <singingspirit@...>
> Subject: Wow Great Group!
>
> Hello,
>
> My name is Beverly and I was diagnosed with a prolactin
> producing
> Pituitary tumor back in August of 2001. After the
> testing it was
> found that this tumor also caused adrenalin insuffiency
> or Addisons.
> What fun!
>
> Actually it was terrific news since I found out and was
> justified
> finally as to why I was soooooo tired all my life and why
> I got major
> infections seemingly every month that took multiple doses
> of
> antibiotics to cure.
>
> Anyway I'm thrilled to find this group. I have a few
> questions:
>
> Has anyone found medical studies about depression and
> addison's?
>
> How about the long term affects of taking cortisone? My
> hair is
> falling out, my fingernails are thin as paper, I'm
> getting this huge
> belly, it's almost impossible to lose weight and I"m
> still tired
> though less so.
>
> Also it's very difficult to go through a day without
> taking at least a
> short nap. Sleeping at night is about 6 hours, but even
> if I sleep 8
> hours I still feel the overwhelming need to lay down for
> about an hour
> around noon every day. This makes it difficult to work.
>
> Also, after about 4:PM in the afternoon all I want to do
> is sit still.
>
> Does this sound like anyone else on this list?
>
> Thanks in advance,
>
> Beverly
>
>
>
>
>

________________________________________________________________________
>

________________________________________________________________________
>
> Message: 2
> Date: Tue, 06 May 2003 20:55:25 -0000
> From: bamb_99
> Subject: Re: Wow Great Group!
>
> Hi Beverly,
>
> Welcome to the group. I was diagnosed in Sept. 1974 and
> I am now 42.
> Apparently, I had somehow lost my adrenal cortex. The
> years have
> been filled with ups and downs with regard to Addisons.
> Fortunately,
> the condition has not gotten in my way too much over all.
>
>
> I wanted to respond to your question about depression. I
> have been
> experiencing moderate depression lately. I thought it
> was perhaps
> some residual effects from my surgery last November
> (hysterectomy)
> but that is already months ago.
>
> So I finally called my Endo yesterday and his nurse told
> me to come
> in ASAP! Most of the time, with Addisons I have not had
> to wait very
> long to see a doctor. Which I guess is perhaps the only
> benefit.
> Anyway, my doctor gave me Paxil(sp?). He said it is a
> good choice
> for this condition especially if you are have sleep
> problems. It
> does take time to work so I am still waiting with my
> fingers
> crossed.
>
> We are still trying to adjust my Thyroid medication to
> the best
> level. When I stopped eating iodinized salt several
> years ago my
> blood levels began to show that I was receiving too much
> medicine.
> My Doc is gradually decreasing the medication. Maybe I
> won't need
> Thyroid med at all. Its my hope anyway.
>
> I haven't noticed great deal of side effects from
> steroids with the
> exception of weight gain. That has been a battle since
> the first
> prescription my mother filled. I was 13 and in four
> months I went
> from 68 pounds to 105 and I thought I was horribly fat!
> Well I
> stayed 115 (with much work and not all of it healthy)
> until I was
> about 25 and then it just started creeping up. Now it is
> driving me
> crazy. I find that it is the salt cravings that do me
> in. I eat
> high fat, high sodium snacks.
>
> There are times when I feel sodium depleted and I must
> have salt!
> Some people drink Gatorade or something like that but
> that does not
> help me because it is also high in potassium. When I feel
> like that,
> I don't need balanced electrolytes...I need salt and
> fast.
>
> Unfortunately, I overdo and have a 'salt hangover' which
> most people
> with this condition probably know about. This morning I
> felt a
> little depleted so I had beef boulion soup and then ate a
> normal
> breakfast and lunch. The soup is better if you put
> Italian herbs in
> it. If I wait too long to eat salt then it's too late
> and I have to
> eat a lot of salt in a hurry.
>
> It's a crazy disease in a way. I hope this helps.
>
> Beth
>
> --- In addisonsdisease@yahoogroups.com, "beainaustin"
> <singingspirit@a...> wrote:
> > Hello,
> >
> > My name is Beverly and I was diagnosed with a prolactin
> producing
> > Pituitary tumor back in August of 2001. After the
> testing it was
> > found that this tumor also caused adrenalin insuffiency
> or Addisons.
> > What fun!
> >
> > Actually it was terrific news since I found out and was
> justified
> > finally as to why I was soooooo tired all my life and
> why I got
> major
> > infections seemingly every month that took multiple
> doses of
> > antibiotics to cure.
> >
> > Anyway I'm thrilled to find this group. I have a few
> questions:
> >
> > Has anyone found medical studies about depression and
> addison's?
> >
> > How about the long term affects of taking cortisone?
> My hair is
> > falling out, my fingernails are thin as paper, I'm
> getting this huge
> > belly, it's almost impossible to lose weight and I"m
> still tired
> > though less so.
> >
> > Also it's very difficult to go through a day without
> taking at
> least a
> > short nap. Sleeping at night is about 6 hours, but
> even if I sleep
> 8
> > hours I still feel the overwhelming need to lay down
> for about an
> hour
> > around noon every day. This makes it difficult to
> work.
> >
> > Also, after about 4:PM in the afternoon all I want to
> do is sit
> still.
> >
> > Does this sound like anyone else on this list?
> >
> > Thanks in advance,
> >
> > Beverly
>
>
>
>

________________________________________________________________________
>

________________________________________________________________________
>
>
>
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> http://docs.yahoo.com/info/terms/
>
>

Those who want the fewest things are nearest to the gods.

Socrates
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