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Re: [Addison's Disease] Digest Number 44   Message List  
Reply | Forward Message #433 of 1215 |
Hi Beth,

Thanks so much for your input. You know, my
Endocronologist did not say anything about salt. Wierd
since my web research yesterday was all over it. So I'll
try that. I noticed I have a larger desire for salt. Never
used it before but sure do now.

I also noticed on that Australian Addisions web site that
taking the cortisone as soon as I get up in the morning
matches our bodies natural daily cycle. So I am trying that
today.

I don't want to take an antidepressant. I'm already taking
like five drugs a day to shrink the tumor and since my last
visit to the Endo last week high cholesterol and high blood
pressure medicine too now (related to Addisons I discovered
yesterday). So I feel more like a walking pharmacy. LOL

Thanks again for your input I'm looking forward to
participating in this group.

Regards,

Beverly




On 7 May 2003 07:32:51 -0000
addisonsdisease@yahoogroups.com wrote:
> ------------------------ Yahoo! Groups Sponsor
>
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>
>
------------------------------------------------------------------------
>
> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Wow Great Group!
> From: "beainaustin"
> <singingspirit@...>
> 2. Re: Wow Great Group!
> From: bamb_99
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
> Date: Tue, 06 May 2003 16:30:03 -0000
> From: "beainaustin" <singingspirit@...>
> Subject: Wow Great Group!
>
> Hello,
>
> My name is Beverly and I was diagnosed with a prolactin
> producing
> Pituitary tumor back in August of 2001. After the
> testing it was
> found that this tumor also caused adrenalin insuffiency
> or Addisons.
> What fun!
>
> Actually it was terrific news since I found out and was
> justified
> finally as to why I was soooooo tired all my life and why
> I got major
> infections seemingly every month that took multiple doses
> of
> antibiotics to cure.
>
> Anyway I'm thrilled to find this group. I have a few
> questions:
>
> Has anyone found medical studies about depression and
> addison's?
>
> How about the long term affects of taking cortisone? My
> hair is
> falling out, my fingernails are thin as paper, I'm
> getting this huge
> belly, it's almost impossible to lose weight and I"m
> still tired
> though less so.
>
> Also it's very difficult to go through a day without
> taking at least a
> short nap. Sleeping at night is about 6 hours, but even
> if I sleep 8
> hours I still feel the overwhelming need to lay down for
> about an hour
> around noon every day. This makes it difficult to work.
>
> Also, after about 4:PM in the afternoon all I want to do
> is sit still.
>
> Does this sound like anyone else on this list?
>
> Thanks in advance,
>
> Beverly
>
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 2
> Date: Tue, 06 May 2003 20:55:25 -0000
> From: bamb_99
> Subject: Re: Wow Great Group!
>
> Hi Beverly,
>
> Welcome to the group. I was diagnosed in Sept. 1974 and
> I am now 42.
> Apparently, I had somehow lost my adrenal cortex. The
> years have
> been filled with ups and downs with regard to Addisons.
> Fortunately,
> the condition has not gotten in my way too much over all.
>
>
> I wanted to respond to your question about depression. I
> have been
> experiencing moderate depression lately. I thought it
> was perhaps
> some residual effects from my surgery last November
> (hysterectomy)
> but that is already months ago.
>
> So I finally called my Endo yesterday and his nurse told
> me to come
> in ASAP! Most of the time, with Addisons I have not had
> to wait very
> long to see a doctor. Which I guess is perhaps the only
> benefit.
> Anyway, my doctor gave me Paxil(sp?). He said it is a
> good choice
> for this condition especially if you are have sleep
> problems. It
> does take time to work so I am still waiting with my
> fingers
> crossed.
>
> We are still trying to adjust my Thyroid medication to
> the best
> level. When I stopped eating iodinized salt several
> years ago my
> blood levels began to show that I was receiving too much
> medicine.
> My Doc is gradually decreasing the medication. Maybe I
> won't need
> Thyroid med at all. Its my hope anyway.
>
> I haven't noticed great deal of side effects from
> steroids with the
> exception of weight gain. That has been a battle since
> the first
> prescription my mother filled. I was 13 and in four
> months I went
> from 68 pounds to 105 and I thought I was horribly fat!
> Well I
> stayed 115 (with much work and not all of it healthy)
> until I was
> about 25 and then it just started creeping up. Now it is
> driving me
> crazy. I find that it is the salt cravings that do me
> in. I eat
> high fat, high sodium snacks.
>
> There are times when I feel sodium depleted and I must
> have salt!
> Some people drink Gatorade or something like that but
> that does not
> help me because it is also high in potassium. When I feel
> like that,
> I don't need balanced electrolytes...I need salt and
> fast.
>
> Unfortunately, I overdo and have a 'salt hangover' which
> most people
> with this condition probably know about. This morning I
> felt a
> little depleted so I had beef boulion soup and then ate a
> normal
> breakfast and lunch. The soup is better if you put
> Italian herbs in
> it. If I wait too long to eat salt then it's too late
> and I have to
> eat a lot of salt in a hurry.
>
> It's a crazy disease in a way. I hope this helps.
>
> Beth
>
> --- In addisonsdisease@yahoogroups.com, "beainaustin"
> <singingspirit@a...> wrote:
> > Hello,
> >
> > My name is Beverly and I was diagnosed with a prolactin
> producing
> > Pituitary tumor back in August of 2001. After the
> testing it was
> > found that this tumor also caused adrenalin insuffiency
> or Addisons.
> > What fun!
> >
> > Actually it was terrific news since I found out and was
> justified
> > finally as to why I was soooooo tired all my life and
> why I got
> major
> > infections seemingly every month that took multiple
> doses of
> > antibiotics to cure.
> >
> > Anyway I'm thrilled to find this group. I have a few
> questions:
> >
> > Has anyone found medical studies about depression and
> addison's?
> >
> > How about the long term affects of taking cortisone?
> My hair is
> > falling out, my fingernails are thin as paper, I'm
> getting this huge
> > belly, it's almost impossible to lose weight and I"m
> still tired
> > though less so.
> >
> > Also it's very difficult to go through a day without
> taking at
> least a
> > short nap. Sleeping at night is about 6 hours, but
> even if I sleep
> 8
> > hours I still feel the overwhelming need to lay down
> for about an
> hour
> > around noon every day. This makes it difficult to
> work.
> >
> > Also, after about 4:PM in the afternoon all I want to
> do is sit
> still.
> >
> > Does this sound like anyone else on this list?
> >
> > Thanks in advance,
> >
> > Beverly
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>

Those who want the fewest things are nearest to the gods.

Socrates
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Wed May 7, 2003 11:08 am

beainaustin
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Forward
Message #433 of 1215 |
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Hi Beth, Thanks so much for your input. You know, my Endocronologist did not say anything about salt. Wierd since my web research yesterday was all over it....
Singing Spirit
beainaustin
Offline Send Email
May 7, 2003
12:01 pm

Hi Everyone, I just wanted to respond as well, I've been diagnosed with Hypothyroid in 1995 and Addison's in 1996. Before being diagnosed, I worked out 1-2 ...
Sherwood, Tahnya
blondi7544
Offline Send Email
May 7, 2003
12:27 pm

hello everyone, i wanted to reply also- it just blows my mind how we all share the - which i think nuttiest symptoms of this disease- but at the same time...
Heather Fiocchi
heever_hlb
Offline Send Email
May 7, 2003
5:29 pm

... Hi Beverly, I have just joined the list - and was 'pleased' to see your email! I know that sounds crazy, but just to hear of someone else that has the...
Robin Shutt
r_shutt
Offline Send Email
May 7, 2003
10:57 pm
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