Hi Beth,
Thanks so much for your input. You know, my
Endocronologist did not say anything about salt. Wierd
since my web research yesterday was all over it. So I'll
try that. I noticed I have a larger desire for salt. Never
used it before but sure do now.
I also noticed on that Australian Addisions web site that
taking the cortisone as soon as I get up in the morning
matches our bodies natural daily cycle. So I am trying that
today.
I don't want to take an antidepressant. I'm already taking
like five drugs a day to shrink the tumor and since my last
visit to the Endo last week high cholesterol and high blood
pressure medicine too now (related to Addisons I discovered
yesterday). So I feel more like a walking pharmacy. LOL
Thanks again for your input I'm looking forward to
participating in this group.
Regards,
Beverly
On 7 May 2003 07:32:51 -0000
addisonsdisease@yahoogroups.com wrote:
> ------------------------ Yahoo! Groups Sponsor
>
> To unsubscribe from this group, send an email to:
> addisonsdisease-unsubscribe@yahoogroups.com
>
>
>
------------------------------------------------------------------------
>
> There are 2 messages in this issue.
>
> Topics in this digest:
>
> 1. Wow Great Group!
> From: "beainaustin"
> <singingspirit@...>
> 2. Re: Wow Great Group!
> From: bamb_99
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 1
> Date: Tue, 06 May 2003 16:30:03 -0000
> From: "beainaustin" <singingspirit@...>
> Subject: Wow Great Group!
>
> Hello,
>
> My name is Beverly and I was diagnosed with a prolactin
> producing
> Pituitary tumor back in August of 2001. After the
> testing it was
> found that this tumor also caused adrenalin insuffiency
> or Addisons.
> What fun!
>
> Actually it was terrific news since I found out and was
> justified
> finally as to why I was soooooo tired all my life and why
> I got major
> infections seemingly every month that took multiple doses
> of
> antibiotics to cure.
>
> Anyway I'm thrilled to find this group. I have a few
> questions:
>
> Has anyone found medical studies about depression and
> addison's?
>
> How about the long term affects of taking cortisone? My
> hair is
> falling out, my fingernails are thin as paper, I'm
> getting this huge
> belly, it's almost impossible to lose weight and I"m
> still tired
> though less so.
>
> Also it's very difficult to go through a day without
> taking at least a
> short nap. Sleeping at night is about 6 hours, but even
> if I sleep 8
> hours I still feel the overwhelming need to lay down for
> about an hour
> around noon every day. This makes it difficult to work.
>
> Also, after about 4:PM in the afternoon all I want to do
> is sit still.
>
> Does this sound like anyone else on this list?
>
> Thanks in advance,
>
> Beverly
>
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
> Message: 2
> Date: Tue, 06 May 2003 20:55:25 -0000
> From: bamb_99
> Subject: Re: Wow Great Group!
>
> Hi Beverly,
>
> Welcome to the group. I was diagnosed in Sept. 1974 and
> I am now 42.
> Apparently, I had somehow lost my adrenal cortex. The
> years have
> been filled with ups and downs with regard to Addisons.
> Fortunately,
> the condition has not gotten in my way too much over all.
>
>
> I wanted to respond to your question about depression. I
> have been
> experiencing moderate depression lately. I thought it
> was perhaps
> some residual effects from my surgery last November
> (hysterectomy)
> but that is already months ago.
>
> So I finally called my Endo yesterday and his nurse told
> me to come
> in ASAP! Most of the time, with Addisons I have not had
> to wait very
> long to see a doctor. Which I guess is perhaps the only
> benefit.
> Anyway, my doctor gave me Paxil(sp?). He said it is a
> good choice
> for this condition especially if you are have sleep
> problems. It
> does take time to work so I am still waiting with my
> fingers
> crossed.
>
> We are still trying to adjust my Thyroid medication to
> the best
> level. When I stopped eating iodinized salt several
> years ago my
> blood levels began to show that I was receiving too much
> medicine.
> My Doc is gradually decreasing the medication. Maybe I
> won't need
> Thyroid med at all. Its my hope anyway.
>
> I haven't noticed great deal of side effects from
> steroids with the
> exception of weight gain. That has been a battle since
> the first
> prescription my mother filled. I was 13 and in four
> months I went
> from 68 pounds to 105 and I thought I was horribly fat!
> Well I
> stayed 115 (with much work and not all of it healthy)
> until I was
> about 25 and then it just started creeping up. Now it is
> driving me
> crazy. I find that it is the salt cravings that do me
> in. I eat
> high fat, high sodium snacks.
>
> There are times when I feel sodium depleted and I must
> have salt!
> Some people drink Gatorade or something like that but
> that does not
> help me because it is also high in potassium. When I feel
> like that,
> I don't need balanced electrolytes...I need salt and
> fast.
>
> Unfortunately, I overdo and have a 'salt hangover' which
> most people
> with this condition probably know about. This morning I
> felt a
> little depleted so I had beef boulion soup and then ate a
> normal
> breakfast and lunch. The soup is better if you put
> Italian herbs in
> it. If I wait too long to eat salt then it's too late
> and I have to
> eat a lot of salt in a hurry.
>
> It's a crazy disease in a way. I hope this helps.
>
> Beth
>
> --- In addisonsdisease@yahoogroups.com, "beainaustin"
> <singingspirit@a...> wrote:
> > Hello,
> >
> > My name is Beverly and I was diagnosed with a prolactin
> producing
> > Pituitary tumor back in August of 2001. After the
> testing it was
> > found that this tumor also caused adrenalin insuffiency
> or Addisons.
> > What fun!
> >
> > Actually it was terrific news since I found out and was
> justified
> > finally as to why I was soooooo tired all my life and
> why I got
> major
> > infections seemingly every month that took multiple
> doses of
> > antibiotics to cure.
> >
> > Anyway I'm thrilled to find this group. I have a few
> questions:
> >
> > Has anyone found medical studies about depression and
> addison's?
> >
> > How about the long term affects of taking cortisone?
> My hair is
> > falling out, my fingernails are thin as paper, I'm
> getting this huge
> > belly, it's almost impossible to lose weight and I"m
> still tired
> > though less so.
> >
> > Also it's very difficult to go through a day without
> taking at
> least a
> > short nap. Sleeping at night is about 6 hours, but
> even if I sleep
> 8
> > hours I still feel the overwhelming need to lay down
> for about an
> hour
> > around noon every day. This makes it difficult to
> work.
> >
> > Also, after about 4:PM in the afternoon all I want to
> do is sit
> still.
> >
> > Does this sound like anyone else on this list?
> >
> > Thanks in advance,
> >
> > Beverly
>
>
>
>
________________________________________________________________________
>
________________________________________________________________________
>
>
>
> Your use of Yahoo! Groups is subject to
> http://docs.yahoo.com/info/terms/
>
>
Those who want the fewest things are nearest to the gods.
Socrates
---------------------------------------------------------------
---------------------------------------------------------------
>Next Version of Mac OS X, code named "Panther."
........... previewed and WWDC
http://developer.apple.com/wwdc/applelinks.html
----------------------------------------------------
The Think Different Store
http://www.thinkdifferentstore.com/
---------------------------------------------------------------
---------------------------------------------------------------