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Re: [Addison's Disease] (unknown) KAZ   Message List  
Reply | Forward Message #339 of 1216 |
Re: [Addison's Disease] (unknown) KAZ

"text book" case meaning i had every single symtom in
the book yet they couldn't figure out what the hell
was wrong with me....
i couldn't stand either- i had to crawl to pee and
that's the only time i got off the couch
couldn't brush my teeth or feed myself...wow it amazes
me that i was that sick.
when i read about the symtoms it makes me so angry
that my docters didn't know- i had every single one of
them....and for years before i finally went into
crisis...
i had migranes and stomach problems for years -from
about 15 to the age of 20 then it started to get bad
fast...my hair started falling out, lost a whole
eyebrow, didn't get my period, was dizzy all the time,
the salt cravings, the black outs, the weight loss, my
skin turned orange, i brused and scared very easily, i
couldn't eat- was starving but when i ate got terrible
diareaha...the room would spin- it was a nightmare and
my body has been slowly breaking down since i was 15
until finally it distroyed the whole organ and that's
when i went into crisis.
and get this- i have a first cousing with
addisons...she was diagnose 3 years before me...almost
died as well and they had NO idea what was wrong with
her...that's the only reason we knew to ask for that
test cause my symptoms were similar to hers
--- Kaz Richardson <kazy_baby2001@...> wrote:
>
> What do u mean a text book case?? It was hell for me
> becasue i was at collage and in the middle of my
> exams!!! and i was blacking out everywhere and stuff
> and being sick all over my work!! once one of the
> teachers had to carry me to the medical room!!! i
> just couldn't stand up what so ever!!!!
> Heather Bannister wrote:my docter said the exact
> same thing- unreal
> he said that it was all in my head and that i had an
> eating disorder and discharged me from the hospital
> when my body was shutting down
> my family had him do the test, which they said they
> didn't want to and there was no way that's what it
> was, even though i was blacking out, lost 20 pounds
> in
> 2 weeks, my skin was orange and my blood pressure
> was
> so bad and of coures worse when i tried to walk-
> because mostly all i could do was crawl- and only on
> special occasions like having to go the bathroom- it
> was really hard but god- its unreal how often this
> seems to happen to us...you think they'd start to
> pick
> up on it...i mean if i wasn't a text book case...
>
> --- Kaz Richardson <kazy_baby2001@...>
> wrote:
> >
> > Oh no thats horrable!!!! I had the symptoms for
> > about 4 months the doctor thought it was all in my
> > head!!! u know all the being sick and not
> > eatting!!!! He thought I had some eatting
> > disorder!!!!!! it wasn't very nice!! anyway in the
> > end the doctor at the hosptail did the test and it
> > was possative!!!! which was nice in a way becasue
> it
> > meant i wasn't going mad!!!!
> >
> > Do u cope ok with it??
> >
> >
> > baileythewriter@... wrote:I had the symptoms
> of
> > addison's since I was a teenager and the doctors
> > told
> > me I was anemic and lots of other things. For all
> > of these years I had been
> > suffereing with it.
> >
> > In the last couple of months prior to my
> diagnosis,
> > I began blacking out.
> > That terrified my husband and myself and I decided
> > to find a new doctor.
> > When he read my blood pressure he said he was
> amazed
> > that I was actually up
> > walking and talking. It was something like 60/80.
>
> > He was pretty sure that I
> > had addison's then but went ahead and did the
> test.
> > It was the most painful
> > test I'd ever taken. When it came back positive I
> > was put on cortisone acet.
> > He said that there is an additional medication
> that
> > goes along with that
> > medication to help with iron levels but my iron
> was
> > at a good level and I
> > wouldn't have to take them. Isn't that funny, all
> > of these years (I'm 35
> > now)I thought I was anemic and then I find out
> that
> > I'm not.
> >
> > I guess the best thing for all of us is to make
> sure
> > we get a doctor we can
> > trust and who will be thorough.
> >
> > Blessings,
> >
> > April
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
> > Yahoo! Groups SponsorADVERTISEMENT
> >
> > To unsubscribe from this group, send an email to:
> > addisonsdisease-unsubscribe@yahoogroups.com
> >
> >
> >
> > Your use of Yahoo! Groups is subject to the Yahoo!
> > Terms of Service.
> >
> >
> >
> > Love
> >
> > Kaz
> >
> > xxxxxxxxxxxxxxxxxxxxxxxxx
> >
> >
> >
> >
> > ---------------------------------
> > Get a bigger mailbox -- choose a size that fits
> your
> > needs.
> >
> >
> > [Non-text portions of this message have been
> > removed]
> >
> >
>
>
> __________________________________________________
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>
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> Your use of Yahoo! Groups is subject to the Yahoo!
> Terms of Service.
>
>
>
> Love
>
> Kaz
>
> xxxxxxxxxxxxxxxxxxxxxxxxx
>
>
>
>
> ---------------------------------
> Get a bigger mailbox -- choose a size that fits your
> needs.
>
>
> [Non-text portions of this message have been
> removed]
>
>


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Fri Aug 30, 2002 8:08 pm

heever_hlb
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Forward
Message #339 of 1216 |
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Kaz, You just sent messages to others who have addisons. You have the option when you sign up of having emails sent for each entry that is posted on the site....
baileythewriter@...
aprilreinz
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Aug 30, 2002
6:34 pm

April Wow someone else who has addsions disease!! I don't know anyone else with the conition and was feeling very alone!!....I have had addisons disease for...
Kaz Richardson
kazy_baby2001
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Aug 30, 2002
7:15 pm

i've had addisons for 3 years now and doing fairly well, ups and downs of course but for the most part know what i need to do to keep healthy and have my ...
Heather Bannister
heever_hlb
Offline Send Email
Aug 30, 2002
7:21 pm

Hi Heather!! Im sorry but im not sure what u mean!!!sorry again im qiute new to this!!!How did u get digonosed?? it took the doctors along time to work out...
Kaz Richardson
kazy_baby2001
Offline Send Email
Aug 30, 2002
7:26 pm

I had the symptoms of addison's since I was a teenager and the doctors told me I was anemic and lots of other things. For all of these years I had been ...
baileythewriter@...
aprilreinz
Offline Send Email
Aug 30, 2002
7:40 pm

Oh no thats horrable!!!! I had the symptoms for about 4 months the doctor thought it was all in my head!!! u know all the being sick and not eatting!!!! He...
Kaz Richardson
kazy_baby2001
Offline Send Email
Aug 30, 2002
7:47 pm

my docter said the exact same thing- unreal he said that it was all in my head and that i had an eating disorder and discharged me from the hospital when my...
Heather Bannister
heever_hlb
Offline Send Email
Aug 30, 2002
7:53 pm

What do u mean a text book case?? It was hell for me becasue i was at collage and in the middle of my exams!!! and i was blacking out everywhere and stuff and...
Kaz Richardson
kazy_baby2001
Offline Send Email
Aug 30, 2002
7:58 pm

"text book" case meaning i had every single symtom in the book yet they couldn't figure out what the hell was wrong with me.... i couldn't stand either- i had...
Heather Bannister
heever_hlb
Offline Send Email
Aug 30, 2002
8:08 pm

Thats horrable!!!! ........the reason y i got my addisons disease was because of a car crash I had!!! I had tummy acid that got on my glands which stoped them...
Kaz Richardson
kazy_baby2001
Offline Send Email
Aug 30, 2002
9:14 pm

baileythewriter@... wrote: I had the symptoms of addison's since I was a teenager and the doctors told me I was anemic and lots of other things. For all...
lavender lace
lavenderlace215
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Aug 30, 2002
7:48 pm

Yes, I'm learning to cope with it. I was like you, relieved at first because all that was going wrong with me finally had a name. Now, I have accepted it and...
baileythewriter@...
aprilreinz
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Aug 30, 2002
10:38 pm

i am the same exact way- i always know when i'm gonna have an off day and now they are much less frequent so i'm thankful for that... and yes, do i ever know...
Heather Bannister
heever_hlb
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Aug 30, 2002
11:25 pm

Yeah I think I know what u mean!!! the groggy days are nasty!!!luckly I don't get many of them baileythewriter@... wrote:Yes, I'm learning to cope with it....
Kaz Richardson
kazy_baby2001
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Aug 31, 2002
12:56 pm

i think i'm in the middle of a little "addison's down cycle" i got a bad head cold two weeks ago and now even though the cold is gone it's taking me forever to...
heever_hlb
Offline Send Email
Oct 11, 2002
1:24 am

Tina, I can't think of the name of it but I remember that it starts with an F. I found a site one day on addisons that gives information and the different ...
baileythewriter@...
aprilreinz
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Aug 30, 2002
10:40 pm

April, Thank you so much! I'm wondering if the med you are referring to is florinef. I was recently put on that along with the hydrocort. The doctor did...
lavender lace
lavenderlace215
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Aug 31, 2002
9:41 pm

Kaz, I know that feeling all too well. I was thinking about getting a f/t job but just thinking about it scares me. I'm afraid I might collapse right in the ...
baileythewriter@...
aprilreinz
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Oct 11, 2002
1:55 am

most of my days are acutally good days, but then instead of a bad day , i have like a bad week or two....it's almost like it's always all or nothing for...
Heather Bannister
heever_hlb
Offline Send Email
Oct 11, 2002
2:02 am

Kaz, I have three children. My son is 17 and my daughters are 9 and 7. They motivate me so much. I think they are the reason for most of my 'good days'. I...
baileythewriter@...
aprilreinz
Offline Send Email
Oct 11, 2002
2:14 am

Hey, I have one kid!!! and being preganat nearly killed me becuase of addisions disease and it was manged be lots of doctors and having to stay in...
Kaz Richardson
kazy_baby2001
Offline Send Email
Oct 11, 2002
5:30 pm
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