Alan,
I know things seem really rough right now, but I'm
sure that once your body ajusts and your all rested
up, your going to start feeling much better and
learning how to pace yourself. I just want to give you
some positive vibes cause you sound so down! It's so
frustrating, but you will see light at the end of the
tunnel!!! I promise! :)
I do know how you feel when it comes to your
spouse...I'm always hoping that I'm not letting my
husband down and never want him to think I don't
desire him, but with such low energy it's tough...he's
the most understanding wonderful man, but no matter
what he says I'll always feel guilty, it's hard, but I
have to learn to cope.
I wish you a wonderful day, and hope you start feeling
better soon.
take care, and I always love hearing from you!
Heather
--- Alan Keiser <adk20022002@...> wrote:
>
> Heather,
> Thank you for writing me back. It is something that
> we have the same things going on with our bodies.
> The diarhea stopped and I'm regaining some of my
> strength. I thought I may have been going into a
> crisis but everything calmed down and I'm getting
> better. I'm so sorry that you feel the way you do
> sometimes. I feel the same way at times. I wonder
> if I will be able to do anything after I retire and
> have enough energy to do it. I wonder everyday if I
> can keep up with my wife and do the things her and
> the family do. I feel very inadequite and sometimes
> people try to understand but they can't. My sex
> life has also suffered greatly and I worry about my
> wife thinking I don't desire her anymore. I do
> greatly and I do everything I can to show her I love
> her and at times I have the urge and can perform.
> This disease can affect you both physically and
> mentally. I hope your husband can understand the
> disease more and know what it is at times.Yes do
> keep in touch and feel free to e-mail me directly if
> you want. Take care Heather.
> Your friend for Denver, Alan
> Heather Bannister <heever_hlb@...> wrote: Hi
> Alan,
> I'm so glad you wrote back, and I'm sorry to hear
> that
> your not feeling well. I hope this day finds you
> feeling healthier!
> That's so funny about you saying you shake at night,
> sometimes I wake up drenched in sweat, and am
> shaking
> uncontrolably- I hadn't heard anyone else talk about
> the shakes so that makes me feel better. It's unreal
> how many symtoms we have and how frustrating it all
> is.
> I'm trying so hard at this point to take things one
> day at a time and try soooo hard not to get down
> when
> i don't feel well. I'm still trying to accept that I
> have this disease, and I know that will be a huge
> part
> of my healing...but man, still 3 years later and I'm
> angry, but I've had a really good 4 weeks, and I'm
> so
> optimistic- I haven't felt this good in a long time,
> and my energy has been really good.
> Hang in there, it's not easy, and chatting together
> can really help us both!
> I'm from Washington DC- and by the way, my husbands
> name is Alan too! We just got married in Jan!
> That's another thing too- I always feel I'm
> burdening
> him with my illness and that he thinks i'm faking or
> it's always something- he doesn't think that way
> ...i
> do, but that's a whole nother issue.
> have a great day. take care, and i'll talk to you
> soon.
> heather
> --- Alan Keiser <adk20022002@...> wrote:
> >
> > Hi Heather,
> > Thank you so very much for writing me. The more I
> > write and either tell my story or hear others I
> know
> > that they have gone through things that I have.
> I'm
> > so sorry to hear your story though, because you
> > sound just like me. For the last 24 hours I have
> > been suffering with a sick stomach and very bad
> > diahrea. I went to work but I had to come home.
> I
> > hadn't been able to eat but I ate some tonight and
> > it seems to be staying down and my diahrea has
> > slowed down. I was really afraid that I was going
> > through a crisis and I'm still afraid I will but
> I'm
> > drowning myself in liquid and doubling up my
> > medicine. What a horrible disease and it's
> > something that has really changed my life style
> and
> > out look on life. Yes I would like to keep in
> > touch, since we sound like we go through the same
> > things with this disease. Do you have
> fibromyalgia.
> > My doctor said mine probably was brought on by
> the
> > addisons. It can be so painful at times that my
> > wife says my body shakes the whole bed at night.
> > During the day I feel like I'm a 90 year old man.
> > Take care Heather and I really have alot more time
> > to go before I would have this disease full blown
> as
> > long as you have. Bye for now. By the way, where
> > are you from if you want to say.
> > Your friend from Denver, Alan
> >
> > Heather Bannister <heever_hlb@...> wrote:
> > Alan,
> > wow, your story is so similar to mine is blows my
> > mind. it just makes me feel so much better to hear
> > other people are actually going through what i am,
> > and
> > know how i feel, it's comforting, and i was really
> > glad to read your letter.
> > i was diagnosed 3 years ago, and still have all
> the
> > symptoms as you stated, sweating, being so tired,
> > depressed and i too am on an anti
> > depressant...always
> > getting sick and then infections on top of that
> > making
> > healing so much harder and then of course the
> utter
> > frustration of it all brings on the depression- it
> a
> > viscious cycle.
> > i think i was sick for over 5 years before i was
> > finally diagnosed- lost hair, lost weight, was
> > always
> > on the toilet- was always tired, always camping,
> > always out of breath, they too thought it was
> > problems
> > with my thyroid and i was misdiagnosed several
> > times-
> > i was about 2 days away from not making it when i
> > finally ended up in the hospital cause i was so
> weak
> > i
> > couldn't even walk from the couch to the bathroom
> > and
> > i was so dizzy when i stood up i'd black out.
> > i'm so sorry to hear your suffering, and i'm
> always
> > here to listen..i try very hard to keep a positive
> > attitude and was angry for a very long time- still
> > am
> > a little, i was just sick for 4 weeks during my
> > honeymoon- talk about frustrating, but keeping a
> > schedule is the only thing that i find keeps me
> > feeling my best all around...sleeping enough,
> > napping
> > when i have to, eating right, exercising and
> > drinking
> > so much water!!! i know it seems silly but it's
> the
> > only thing that keeps me going to have that
> rigemin.
> > i just wanted you to know, i totally can relate,
> and
> > if you ever want to chat, i'd be happy to listen.
> > take care of yourself
> > heather
> > --- adkprofile <adk20022002@...> wrote:
> > > Hello everyone,
> > >
> > > My name is Alan and I'm a 49 year old married
> male
> > > from a southwest
> > > suburb of Denver, Colorado. I was diagnosed
> with
> > > Addisons the first
> > > part of Nov, 2001 after I had an extreme
> Addisons
> > > crisis episode.
> > > They think I have had adrenal insufficency most
> of
> > > my life, but it
> > > came to a head last October and November. For a
> > > long time, when I
> > > would get stressed or sick with a virus I would
> be
> > > sicker than what
> > > I should have been and it always turned into an
> > > infection or
> > > something else. Like a mini crisis. In the
> > spring
> > > of 2001, I had
> > > extreme stress due to problems with two of my
> > sons.
> > > (drugs got them
> > > and dropping out of school, running away,
> > assaulted
> > > and stole from
> > > us, and several other things. The first of May
> I
> > > had a nervous
> > > breakdown, chest pains, real high blood pressure
> > and
> > > many other
> > > things that got me in the hospital for 7 days.
> > > During treatment
> > > they had to treat my with a high dose of
> cortisone
> > > so they could
> > > give me a iodine test since I am allergic to
> > Iodine
> > > and they needed
> > > to reduce my reaction. Well all of a sudden I
> got
>
=== message truncated ===


__________________________________________________
Do You Yahoo!?
Yahoo! Tax Center - online filing with TurboTax
http://taxes.yahoo.com/