Alan,

I think i've been very lucky at the moment in that i have recovered
from my crisis very well. I am now on Hydrocortisone which i take
20mg inthe morning and 10mg in the afternoon and also fludrocortisone
which i take 20ug in the morning. I also take an energy supplement
drink most days to give me an extra boost and provide extra vitamins
(called Enlive - but im sure you have others available to you)

Im 28 years old which may be the reason why i have managed to ight
off the symptoms quickly but i still have some bad days when all i
can do is rest. DO take care and if there is anything else you
require please mail me

By the way there is a very good self help group set up in the UK with
a good website - useful guide on there which you can down load
www.surreyweb.net/adshg/

regards


Marcus


--- In addisonsdisease@y..., Alan Keiser <adk20022002@y...> wrote:
>
> Heather,
> Thank you for writing me back. It is something that we have the
same things going on with our bodies. The diarhea stopped and I'm
regaining some of my strength. I thought I may have been going into
a crisis but everything calmed down and I'm getting better. I'm so
sorry that you feel the way you do sometimes. I feel the same way at
times. I wonder if I will be able to do anything after I retire and
have enough energy to do it. I wonder everyday if I can keep up with
my wife and do the things her and the family do. I feel very
inadequite and sometimes people try to understand but they can't. My
sex life has also suffered greatly and I worry about my wife thinking
I don't desire her anymore. I do greatly and I do everything I can
to show her I love her and at times I have the urge and can perform.
This disease can affect you both physically and mentally. I hope
your husband can understand the disease more and know what it is at
times.Yes do keep in touch and feel free to e-mail me directly if you
want. Take care Heather.
> Your friend for Denver, Alan
> Heather Bannister <heever_hlb@y...> wrote: Hi Alan,
> I'm so glad you wrote back, and I'm sorry to hear that
> your not feeling well. I hope this day finds you
> feeling healthier!
> That's so funny about you saying you shake at night,
> sometimes I wake up drenched in sweat, and am shaking
> uncontrolably- I hadn't heard anyone else talk about
> the shakes so that makes me feel better. It's unreal
> how many symtoms we have and how frustrating it all
> is.
> I'm trying so hard at this point to take things one
> day at a time and try soooo hard not to get down when
> i don't feel well. I'm still trying to accept that I
> have this disease, and I know that will be a huge part
> of my healing...but man, still 3 years later and I'm
> angry, but I've had a really good 4 weeks, and I'm so
> optimistic- I haven't felt this good in a long time,
> and my energy has been really good.
> Hang in there, it's not easy, and chatting together
> can really help us both!
> I'm from Washington DC- and by the way, my husbands
> name is Alan too! We just got married in Jan!
> That's another thing too- I always feel I'm burdening
> him with my illness and that he thinks i'm faking or
> it's always something- he doesn't think that way ...i
> do, but that's a whole nother issue.
> have a great day. take care, and i'll talk to you
> soon.
> heather
> --- Alan Keiser <adk20022002@y...> wrote:
> >
> > Hi Heather,
> > Thank you so very much for writing me. The more I
> > write and either tell my story or hear others I know
> > that they have gone through things that I have. I'm
> > so sorry to hear your story though, because you
> > sound just like me. For the last 24 hours I have
> > been suffering with a sick stomach and very bad
> > diahrea. I went to work but I had to come home. I
> > hadn't been able to eat but I ate some tonight and
> > it seems to be staying down and my diahrea has
> > slowed down. I was really afraid that I was going
> > through a crisis and I'm still afraid I will but I'm
> > drowning myself in liquid and doubling up my
> > medicine. What a horrible disease and it's
> > something that has really changed my life style and
> > out look on life. Yes I would like to keep in
> > touch, since we sound like we go through the same
> > things with this disease. Do you have fibromyalgia.
> > My doctor said mine probably was brought on by the
> > addisons. It can be so painful at times that my
> > wife says my body shakes the whole bed at night.
> > During the day I feel like I'm a 90 year old man.
> > Take care Heather and I really have alot more time
> > to go before I would have this disease full blown as
> > long as you have. Bye for now. By the way, where
> > are you from if you want to say.
> > Your friend from Denver, Alan
> >
> > Heather Bannister <heever_hlb@y...> wrote:
> > Alan,
> > wow, your story is so similar to mine is blows my
> > mind. it just makes me feel so much better to hear
> > other people are actually going through what i am,
> > and
> > know how i feel, it's comforting, and i was really
> > glad to read your letter.
> > i was diagnosed 3 years ago, and still have all the
> > symptoms as you stated, sweating, being so tired,
> > depressed and i too am on an anti
> > depressant...always
> > getting sick and then infections on top of that
> > making
> > healing so much harder and then of course the utter
> > frustration of it all brings on the depression- it a
> > viscious cycle.
> > i think i was sick for over 5 years before i was
> > finally diagnosed- lost hair, lost weight, was
> > always
> > on the toilet- was always tired, always camping,
> > always out of breath, they too thought it was
> > problems
> > with my thyroid and i was misdiagnosed several
> > times-
> > i was about 2 days away from not making it when i
> > finally ended up in the hospital cause i was so weak
> > i
> > couldn't even walk from the couch to the bathroom
> > and
> > i was so dizzy when i stood up i'd black out.
> > i'm so sorry to hear your suffering, and i'm always
> > here to listen..i try very hard to keep a positive
> > attitude and was angry for a very long time- still
> > am
> > a little, i was just sick for 4 weeks during my
> > honeymoon- talk about frustrating, but keeping a
> > schedule is the only thing that i find keeps me
> > feeling my best all around...sleeping enough,
> > napping
> > when i have to, eating right, exercising and
> > drinking
> > so much water!!! i know it seems silly but it's the
> > only thing that keeps me going to have that rigemin.
> > i just wanted you to know, i totally can relate, and
> > if you ever want to chat, i'd be happy to listen.
> > take care of yourself
> > heather
> > --- adkprofile <adk20022002@y...> wrote:
> > > Hello everyone,
> > >
> > > My name is Alan and I'm a 49 year old married male
> > > from a southwest
> > > suburb of Denver, Colorado. I was diagnosed with
> > > Addisons the first
> > > part of Nov, 2001 after I had an extreme Addisons
> > > crisis episode.
> > > They think I have had adrenal insufficency most of
> > > my life, but it
> > > came to a head last October and November. For a
> > > long time, when I
> > > would get stressed or sick with a virus I would be
> > > sicker than what
> > > I should have been and it always turned into an
> > > infection or
> > > something else. Like a mini crisis. In the
> > spring
> > > of 2001, I had
> > > extreme stress due to problems with two of my
> > sons.
> > > (drugs got them
> > > and dropping out of school, running away,
> > assaulted
> > > and stole from
> > > us, and several other things. The first of May I
> > > had a nervous
> > > breakdown, chest pains, real high blood pressure
> > and
> > > many other
> > > things that got me in the hospital for 7 days.
> > > During treatment
> > > they had to treat my with a high dose of cortisone
> > > so they could
> > > give me a iodine test since I am allergic to
> > Iodine
> > > and they needed
> > > to reduce my reaction. Well all of a sudden I got
> > > better and I was
> > > discharged with a diagnosis of stress related
> > > syndrome with
> > > depression and anxiety. Come to find out, they
> > > unknowingly treated
> > > my addisons with the cortisone. I got put on
> > paxil
> > > for my
> > > depression and anxiety. After getting out of the
> > > hospital I started
> > > to have all kinds of symptoms. Vomiting, Diarhea,
> > > loss of hair,
> > > darking of the skin (which I've had several
> > years),
> > > loss of weight,
> > > weakness, shaking, muscle pain, almost every
> > syptoms
> > > of addisons
> > > they list. I lost 55 lbs in 2 1/2 months. They
> > > found that my
> > > thyroid level was way down so they started to
> > treat
> > > me for
> > > hypothyroidism. I still got worse and worse and
> > the
> > > low blood
> > > pressure and dehydration and low sodium started to
> > > be a constant
> > > problem. I can't remember too much of anything
> > that
> > > happened after
> > > the 9-11 Trade Towers attack. They say that the
> > > stress from seeing
> > > that and reacting like most Americans, and going
> > on
> > > high alert at my
> > > job(I'm a Police Detective in Denver) it was the
> > > last straw (stress)
> > > my body could take. Everything is kind of a blur
> > for
> > > a couple of
> > > months. Two days before I went into crisis in
> > first
> > > part of
> > > November, the doctor give me 4 bags of saline
> > > solution and I was
> > > still dehydrated. I went home but couldn't do
> > > anything but
> > > literally had to crawl to bed. That night the
> > doctor
> > > called and he
> > > said he researched my condition and said he
> > believed
> > > I had addisons.
> > > He wanted to see me the next day. I went in, he
> > did
> > > an injection
> > > test and in an hour I passed out on them and off
> > to
> > > the hospital by
> > > ambulance I went. I got to the hospital and my
> > body
> > > was shutting
> > > down. They said I had about an hour or two and it
> > > would have been
> > > too late to save me. That put a real different
> > > perspective on
> > > life. Since then it's been up and down for me. I
> > > have developed
> > > fibromyalgia that is very painful and sometimes
> > it's
> > > hard to walk or
> > > move around. This addisons disease has changed my
> > > life quite a
> > > bit. I am tired all the time, I can not do the
> > > simplest thing in
> > > life without wearing out and sweating. Sweating.
> > > That's all I do.
> > > If I do anything stressful or just go shopping or
> > do
> > > some things
> > > around the house, I sweat and need to sit or lay
> > > down to recover. I
> > > run out of breath. I have shakes and my muscles
> > > twitch all over
> >
> === message truncated ===
>
>
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