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Reply | Forward Message #312 of 1215 |
Re: [Addison's Disease] Re: New Member


Hi Marcus,
I'm glad you are feeling good and can do most everything. I wish I could have
more energy at times. My doctor is interested in what everyone is taking. If
you wouldn't mind could you let me know what your doctor has you on. Also
Marcus could you tell me your age. Maybe that is the difference. I'm going to
be 50 this year. Take care and thank you.
Your friend from Denver, Alan

mjaspden <no_reply@yahoogroups.com> wrote: Hi Alan,

It was good to hear from you although im sorry to hear you've had
such a bad time of it! I was diagnosed last Novemeber after a very
similar experience to yourself. Luckily having being diagnosed very
quickly and put on the right medication I am now leading a very
active and normal life which is unbelieveable compared to how i was 4
months ago. I only very occassionally get a bad day when i feel
drained of energy but that i probably just as much to do with my very
busy job and lifestyle. As long as i take care of myself and know
when to slow down i have been fine but i must admit dehydration is a
problem - i just have to remeber to drink a lot of water.

Keep in touch if you want a chat or have any queries although like
yourself i am also very new to this disease.

take care

Marcus




--- In addisonsdisease@y..., Alan Keiser <adk20022002@y...> wrote:
>
> HI Mova,
> Thank you. I'm glad they got you back then. It happened to me
too. Doctors didn't know what I had and when they finally figured it
out I was almost dead. I was kind of like a ginnie pig for doctors
that have never seen it and for studing. You too have a noble
profession. Thank you. Yes I am taking care of myself and drinking
gatoraid and other things. I was just able to eat something tonight
and it feels like a lead weight in my stomach. I hope it stays down
and I hope I can make it at work. Take care.
> Your friend from Denver, Alan
> mova106 <no_reply@y...> wrote: --- In addisonsdisease@y..., Alan
Keiser <adk20022002@y...> wrote:
> >Hello Alan I know what you mean you are getting dehydrated be sure
> and watch your salt!!!My friends tease me about buying me a salt
> lick:) balance that potassium too..I am a nurse and my husband is
an
> undertaker so I have seen a bit...you won't in any way gross me out
I
> think it is quite interesting that you are a detective...you should
> be very proud of your work and the contribution you make every
> day...and a lot of those days you don't feel like getting out of
bed,
> I became ill in 82 weighed 98 pounds, orange as a carrot, fever of
> 107, passed out on the bathroom floor and my 3 year old found me
and
> woke up his dad to take me to the hospital they thought I had toxic
> shock syndrome and I wasn't treated for about 18 hours, on a
cooling
> blanket, they called in my family It was a trip...but someone
noticed
> my ACTH was zero and there you go :) so I am on Cortisone and
> lopressor and lots of other things I have Graves too and I take
> Tapazole and nurses don't always mind their doctors and anymore
they
> say what should we do and I sort of tell them what my body is
telling
> me, we have to self regulate...or I wouldn't have made it this
> far...we both have had stress in our past and stressful jobs andwe
> are both too stubborn to believe what they tell us :) hang in there
> and keep in touch, now go have some electrolyes:) Your friend in
> Virginia
> > Hi Mova106
> > Thank you and you are so right. I try everyday to be happy and
> smile but sometimes it is hard to feel good. It's not been a very
> good day today for me. I have bad diaheria and sick feeling. I
> don't know if it's something I ate or what. I'm pouring in the
> liquids, taking my medicines and watching myself and hopefully it
> will stop and I don't start vomiting because I have a sick stomach
> too. I hope that did not gross you out. I feel kind of drained and
> it is a bummer you have to watch everything you do and happens to
> you. Thanks for the answer and I will keep in touch.
> > Your friend from Denver, Alan
> > mova106 <no_reply@y...> wrote: -Hello Alan in Denver your
letter
> sounded so familiar :) and no one
> > knows unless they KNOW...we still function and no one guesses
until
> > we are ill or notice our tan never goes away...keep up with your
> > vitamins and the most important thing is to laugh every day if it
> > hurts even kep in touch and take care :) -- In
> > addisonsdisease@y..., "adkprofile" <adk20022002@y...> wrote:
> >
> >
> >
> > ---------------------------------
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> > Yahoo! Tax Center - online filing with TurboTax
> >
> > [Non-text portions of this message have been removed]
>
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Thu Apr 11, 2002 1:39 am

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Forward
Message #312 of 1215 |
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Hello everyone, My name is Alan and I'm a 49 year old married male from a southwest suburb of Denver, Colorado. I was diagnosed with Addisons the first part...
adkprofile
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Apr 7, 2002
5:09 am

-Hello Alan in Denver your letter sounded so familiar :) and no one knows unless they KNOW...we still function and no one guesses until we are ill or notice...
mova106
Offline
Apr 7, 2002
1:52 pm

Hi Mova106 Thank you and you are so right. I try everyday to be happy and smile but sometimes it is hard to feel good. It's not been a very good day today...
Alan Keiser
adkprofile
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Apr 8, 2002
1:54 am

... and watch your salt!!!My friends tease me about buying me a salt lick:) balance that potassium too..I am a nurse and my husband is an undertaker so I have...
mova106
Offline
Apr 9, 2002
1:36 am

HI Mova, Thank you. I'm glad they got you back then. It happened to me too. Doctors didn't know what I had and when they finally figured it out I was almost...
Alan Keiser
adkprofile
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Apr 9, 2002
1:56 am

Hi Alan, It was good to hear from you although im sorry to hear you've had such a bad time of it! I was diagnosed last Novemeber after a very similar...
mjaspden
Offline
Apr 9, 2002
5:49 pm

Hi Marcus, I'm glad you are feeling good and can do most everything. I wish I could have more energy at times. My doctor is interested in what everyone is...
Alan Keiser
adkprofile
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Apr 11, 2002
1:39 am

Alan, wow, your story is so similar to mine is blows my mind. it just makes me feel so much better to hear other people are actually going through what i am,...
Heather Bannister
heever_hlb
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Apr 8, 2002
2:34 pm

Hi Heather, Thank you so very much for writing me. The more I write and either tell my story or hear others I know that they have gone through things that I...
Alan Keiser
adkprofile
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Apr 9, 2002
1:36 am

Hi Alan, I'm so glad you wrote back, and I'm sorry to hear that your not feeling well. I hope this day finds you feeling healthier! That's so funny about you...
Heather Bannister
heever_hlb
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Apr 9, 2002
12:54 pm

Heather, Thank you for writing me back. It is something that we have the same things going on with our bodies. The diarhea stopped and I'm regaining some of...
Alan Keiser
adkprofile
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Apr 11, 2002
2:09 am

Alan, I think i've been very lucky at the moment in that i have recovered from my crisis very well. I am now on Hydrocortisone which i take 20mg inthe morning...
mjaspden
Offline
Apr 11, 2002
8:06 am

Alan, I know things seem really rough right now, but I'm sure that once your body ajusts and your all rested up, your going to start feeling much better and ...
Heather Bannister
heever_hlb
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Apr 11, 2002
12:47 pm

Hi Alan What a sad story. I got hypothyroidism just over 3 years ago. It took about 8 moths to diagnose - which was my fault - I just assumed that I was under...
jah_marcus
Offline
Apr 10, 2002
1:41 pm

Hi Marcus, Thank you so very much for your concern. My diarhea has stopped but it was pretty bad. I lost about 5 to 10 lbs of water in a little more than 24...
Alan Keiser
adkprofile
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Apr 11, 2002
1:50 am

Hello all...my little brother told me about this group and so I signed up today. I have a son who is now 7 with some type of adrenal insufficency. We dont have...
llladylost
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Dec 1, 2003
3:33 am
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