Hi Alan,
It was good to hear from you although im sorry to hear you've had
such a bad time of it! I was diagnosed last Novemeber after a very
similar experience to yourself. Luckily having being diagnosed very
quickly and put on the right medication I am now leading a very
active and normal life which is unbelieveable compared to how i was 4
months ago. I only very occassionally get a bad day when i feel
drained of energy but that i probably just as much to do with my very
busy job and lifestyle. As long as i take care of myself and know
when to slow down i have been fine but i must admit dehydration is a
problem - i just have to remeber to drink a lot of water.
Keep in touch if you want a chat or have any queries although like
yourself i am also very new to this disease.
take care
Marcus
--- In addisonsdisease@y..., Alan Keiser <adk20022002@y...> wrote:
>
> HI Mova,
> Thank you. I'm glad they got you back then. It happened to me
too. Doctors didn't know what I had and when they finally figured it
out I was almost dead. I was kind of like a ginnie pig for doctors
that have never seen it and for studing. You too have a noble
profession. Thank you. Yes I am taking care of myself and drinking
gatoraid and other things. I was just able to eat something tonight
and it feels like a lead weight in my stomach. I hope it stays down
and I hope I can make it at work. Take care.
> Your friend from Denver, Alan
> mova106 <no_reply@y...> wrote: --- In addisonsdisease@y..., Alan
Keiser <adk20022002@y...> wrote:
> >Hello Alan I know what you mean you are getting dehydrated be sure
> and watch your salt!!!My friends tease me about buying me a salt
> lick:) balance that potassium too..I am a nurse and my husband is
an
> undertaker so I have seen a bit...you won't in any way gross me out
I
> think it is quite interesting that you are a detective...you should
> be very proud of your work and the contribution you make every
> day...and a lot of those days you don't feel like getting out of
bed,
> I became ill in 82 weighed 98 pounds, orange as a carrot, fever of
> 107, passed out on the bathroom floor and my 3 year old found me
and
> woke up his dad to take me to the hospital they thought I had toxic
> shock syndrome and I wasn't treated for about 18 hours, on a
cooling
> blanket, they called in my family It was a trip...but someone
noticed
> my ACTH was zero and there you go :) so I am on Cortisone and
> lopressor and lots of other things I have Graves too and I take
> Tapazole and nurses don't always mind their doctors and anymore
they
> say what should we do and I sort of tell them what my body is
telling
> me, we have to self regulate...or I wouldn't have made it this
> far...we both have had stress in our past and stressful jobs andwe
> are both too stubborn to believe what they tell us :) hang in there
> and keep in touch, now go have some electrolyes:) Your friend in
> Virginia
> > Hi Mova106
> > Thank you and you are so right. I try everyday to be happy and
> smile but sometimes it is hard to feel good. It's not been a very
> good day today for me. I have bad diaheria and sick feeling. I
> don't know if it's something I ate or what. I'm pouring in the
> liquids, taking my medicines and watching myself and hopefully it
> will stop and I don't start vomiting because I have a sick stomach
> too. I hope that did not gross you out. I feel kind of drained and
> it is a bummer you have to watch everything you do and happens to
> you. Thanks for the answer and I will keep in touch.
> > Your friend from Denver, Alan
> > mova106 <no_reply@y...> wrote: -Hello Alan in Denver your
letter
> sounded so familiar :) and no one
> > knows unless they KNOW...we still function and no one guesses
until
> > we are ill or notice our tan never goes away...keep up with your
> > vitamins and the most important thing is to laugh every day if it
> > hurts even kep in touch and take care :) -- In
> > addisonsdisease@y..., "adkprofile" <adk20022002@y...> wrote:
> >
> >
> >
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