Hi Alan,
I'm so glad you wrote back, and I'm sorry to hear that
your not feeling well. I hope this day finds you
feeling healthier!
That's so funny about you saying you shake at night,
sometimes I wake up drenched in sweat, and am shaking
uncontrolably- I hadn't heard anyone else talk about
the shakes so that makes me feel better. It's unreal
how many symtoms we have and how frustrating it all
is.
I'm trying so hard at this point to take things one
day at a time and try soooo hard not to get down when
i don't feel well. I'm still trying to accept that I
have this disease, and I know that will be a huge part
of my healing...but man, still 3 years later and I'm
angry, but I've had a really good 4 weeks, and I'm so
optimistic- I haven't felt this good in a long time,
and my energy has been really good.
Hang in there, it's not easy, and chatting together
can really help us both!
I'm from Washington DC- and by the way, my husbands
name is Alan too! We just got married in Jan!
That's another thing too- I always feel I'm burdening
him with my illness and that he thinks i'm faking or
it's always something- he doesn't think that way ...i
do, but that's a whole nother issue.
have a great day. take care, and i'll talk to you
soon.
heather
--- Alan Keiser <adk20022002@...> wrote:
>
> Hi Heather,
> Thank you so very much for writing me. The more I
> write and either tell my story or hear others I know
> that they have gone through things that I have. I'm
> so sorry to hear your story though, because you
> sound just like me. For the last 24 hours I have
> been suffering with a sick stomach and very bad
> diahrea. I went to work but I had to come home. I
> hadn't been able to eat but I ate some tonight and
> it seems to be staying down and my diahrea has
> slowed down. I was really afraid that I was going
> through a crisis and I'm still afraid I will but I'm
> drowning myself in liquid and doubling up my
> medicine. What a horrible disease and it's
> something that has really changed my life style and
> out look on life. Yes I would like to keep in
> touch, since we sound like we go through the same
> things with this disease. Do you have fibromyalgia.
> My doctor said mine probably was brought on by the
> addisons. It can be so painful at times that my
> wife says my body shakes the whole bed at night.
> During the day I feel like I'm a 90 year old man.
> Take care Heather and I really have alot more time
> to go before I would have this disease full blown as
> long as you have. Bye for now. By the way, where
> are you from if you want to say.
> Your friend from Denver, Alan
>
> Heather Bannister <heever_hlb@...> wrote:
> Alan,
> wow, your story is so similar to mine is blows my
> mind. it just makes me feel so much better to hear
> other people are actually going through what i am,
> and
> know how i feel, it's comforting, and i was really
> glad to read your letter.
> i was diagnosed 3 years ago, and still have all the
> symptoms as you stated, sweating, being so tired,
> depressed and i too am on an anti
> depressant...always
> getting sick and then infections on top of that
> making
> healing so much harder and then of course the utter
> frustration of it all brings on the depression- it a
> viscious cycle.
> i think i was sick for over 5 years before i was
> finally diagnosed- lost hair, lost weight, was
> always
> on the toilet- was always tired, always camping,
> always out of breath, they too thought it was
> problems
> with my thyroid and i was misdiagnosed several
> times-
> i was about 2 days away from not making it when i
> finally ended up in the hospital cause i was so weak
> i
> couldn't even walk from the couch to the bathroom
> and
> i was so dizzy when i stood up i'd black out.
> i'm so sorry to hear your suffering, and i'm always
> here to listen..i try very hard to keep a positive
> attitude and was angry for a very long time- still
> am
> a little, i was just sick for 4 weeks during my
> honeymoon- talk about frustrating, but keeping a
> schedule is the only thing that i find keeps me
> feeling my best all around...sleeping enough,
> napping
> when i have to, eating right, exercising and
> drinking
> so much water!!! i know it seems silly but it's the
> only thing that keeps me going to have that rigemin.
> i just wanted you to know, i totally can relate, and
> if you ever want to chat, i'd be happy to listen.
> take care of yourself
> heather
> --- adkprofile <adk20022002@...> wrote:
> > Hello everyone,
> >
> > My name is Alan and I'm a 49 year old married male
> > from a southwest
> > suburb of Denver, Colorado. I was diagnosed with
> > Addisons the first
> > part of Nov, 2001 after I had an extreme Addisons
> > crisis episode.
> > They think I have had adrenal insufficency most of
> > my life, but it
> > came to a head last October and November. For a
> > long time, when I
> > would get stressed or sick with a virus I would be
> > sicker than what
> > I should have been and it always turned into an
> > infection or
> > something else. Like a mini crisis. In the
> spring
> > of 2001, I had
> > extreme stress due to problems with two of my
> sons.
> > (drugs got them
> > and dropping out of school, running away,
> assaulted
> > and stole from
> > us, and several other things. The first of May I
> > had a nervous
> > breakdown, chest pains, real high blood pressure
> and
> > many other
> > things that got me in the hospital for 7 days.
> > During treatment
> > they had to treat my with a high dose of cortisone
> > so they could
> > give me a iodine test since I am allergic to
> Iodine
> > and they needed
> > to reduce my reaction. Well all of a sudden I got
> > better and I was
> > discharged with a diagnosis of stress related
> > syndrome with
> > depression and anxiety. Come to find out, they
> > unknowingly treated
> > my addisons with the cortisone. I got put on
> paxil
> > for my
> > depression and anxiety. After getting out of the
> > hospital I started
> > to have all kinds of symptoms. Vomiting, Diarhea,
> > loss of hair,
> > darking of the skin (which I've had several
> years),
> > loss of weight,
> > weakness, shaking, muscle pain, almost every
> syptoms
> > of addisons
> > they list. I lost 55 lbs in 2 1/2 months. They
> > found that my
> > thyroid level was way down so they started to
> treat
> > me for
> > hypothyroidism. I still got worse and worse and
> the
> > low blood
> > pressure and dehydration and low sodium started to
> > be a constant
> > problem. I can't remember too much of anything
> that
> > happened after
> > the 9-11 Trade Towers attack. They say that the
> > stress from seeing
> > that and reacting like most Americans, and going
> on
> > high alert at my
> > job(I'm a Police Detective in Denver) it was the
> > last straw (stress)
> > my body could take. Everything is kind of a blur
> for
> > a couple of
> > months. Two days before I went into crisis in
> first
> > part of
> > November, the doctor give me 4 bags of saline
> > solution and I was
> > still dehydrated. I went home but couldn't do
> > anything but
> > literally had to crawl to bed. That night the
> doctor
> > called and he
> > said he researched my condition and said he
> believed
> > I had addisons.
> > He wanted to see me the next day. I went in, he
> did
> > an injection
> > test and in an hour I passed out on them and off
> to
> > the hospital by
> > ambulance I went. I got to the hospital and my
> body
> > was shutting
> > down. They said I had about an hour or two and it
> > would have been
> > too late to save me. That put a real different
> > perspective on
> > life. Since then it's been up and down for me. I
> > have developed
> > fibromyalgia that is very painful and sometimes
> it's
> > hard to walk or
> > move around. This addisons disease has changed my
> > life quite a
> > bit. I am tired all the time, I can not do the
> > simplest thing in
> > life without wearing out and sweating. Sweating.
> > That's all I do.
> > If I do anything stressful or just go shopping or
> do
> > some things
> > around the house, I sweat and need to sit or lay
> > down to recover. I
> > run out of breath. I have shakes and my muscles
> > twitch all over
>
=== message truncated ===


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