Hi Heather,
Thank you so very much for writing me. The more I write and either tell my
story or hear others I know that they have gone through things that I have. I'm
so sorry to hear your story though, because you sound just like me. For the
last 24 hours I have been suffering with a sick stomach and very bad diahrea. I
went to work but I had to come home. I hadn't been able to eat but I ate some
tonight and it seems to be staying down and my diahrea has slowed down. I was
really afraid that I was going through a crisis and I'm still afraid I will but
I'm drowning myself in liquid and doubling up my medicine. What a horrible
disease and it's something that has really changed my life style and out look on
life. Yes I would like to keep in touch, since we sound like we go through the
same things with this disease. Do you have fibromyalgia. My doctor said mine
probably was brought on by the addisons. It can be so painful at times that my
wife says my body shakes the whole bed at night. During the day I feel like I'm
a 90 year old man. Take care Heather and I really have alot more time to go
before I would have this disease full blown as long as you have. Bye for now.
By the way, where are you from if you want to say.
Your friend from Denver, Alan

Heather Bannister <heever_hlb@...> wrote: Alan,
wow, your story is so similar to mine is blows my
mind. it just makes me feel so much better to hear
other people are actually going through what i am, and
know how i feel, it's comforting, and i was really
glad to read your letter.
i was diagnosed 3 years ago, and still have all the
symptoms as you stated, sweating, being so tired,
depressed and i too am on an anti depressant...always
getting sick and then infections on top of that making
healing so much harder and then of course the utter
frustration of it all brings on the depression- it a
viscious cycle.
i think i was sick for over 5 years before i was
finally diagnosed- lost hair, lost weight, was always
on the toilet- was always tired, always camping,
always out of breath, they too thought it was problems
with my thyroid and i was misdiagnosed several times-
i was about 2 days away from not making it when i
finally ended up in the hospital cause i was so weak i
couldn't even walk from the couch to the bathroom and
i was so dizzy when i stood up i'd black out.
i'm so sorry to hear your suffering, and i'm always
here to listen..i try very hard to keep a positive
attitude and was angry for a very long time- still am
a little, i was just sick for 4 weeks during my
honeymoon- talk about frustrating, but keeping a
schedule is the only thing that i find keeps me
feeling my best all around...sleeping enough, napping
when i have to, eating right, exercising and drinking
so much water!!! i know it seems silly but it's the
only thing that keeps me going to have that rigemin.
i just wanted you to know, i totally can relate, and
if you ever want to chat, i'd be happy to listen.
take care of yourself
heather
--- adkprofile <adk20022002@...> wrote:
> Hello everyone,
>
> My name is Alan and I'm a 49 year old married male
> from a southwest
> suburb of Denver, Colorado. I was diagnosed with
> Addisons the first
> part of Nov, 2001 after I had an extreme Addisons
> crisis episode.
> They think I have had adrenal insufficency most of
> my life, but it
> came to a head last October and November. For a
> long time, when I
> would get stressed or sick with a virus I would be
> sicker than what
> I should have been and it always turned into an
> infection or
> something else. Like a mini crisis. In the spring
> of 2001, I had
> extreme stress due to problems with two of my sons.
> (drugs got them
> and dropping out of school, running away, assaulted
> and stole from
> us, and several other things. The first of May I
> had a nervous
> breakdown, chest pains, real high blood pressure and
> many other
> things that got me in the hospital for 7 days.
> During treatment
> they had to treat my with a high dose of cortisone
> so they could
> give me a iodine test since I am allergic to Iodine
> and they needed
> to reduce my reaction. Well all of a sudden I got
> better and I was
> discharged with a diagnosis of stress related
> syndrome with
> depression and anxiety. Come to find out, they
> unknowingly treated
> my addisons with the cortisone. I got put on paxil
> for my
> depression and anxiety. After getting out of the
> hospital I started
> to have all kinds of symptoms. Vomiting, Diarhea,
> loss of hair,
> darking of the skin (which I've had several years),
> loss of weight,
> weakness, shaking, muscle pain, almost every syptoms
> of addisons
> they list. I lost 55 lbs in 2 1/2 months. They
> found that my
> thyroid level was way down so they started to treat
> me for
> hypothyroidism. I still got worse and worse and the
> low blood
> pressure and dehydration and low sodium started to
> be a constant
> problem. I can't remember too much of anything that
> happened after
> the 9-11 Trade Towers attack. They say that the
> stress from seeing
> that and reacting like most Americans, and going on
> high alert at my
> job(I'm a Police Detective in Denver) it was the
> last straw (stress)
> my body could take. Everything is kind of a blur for
> a couple of
> months. Two days before I went into crisis in first
> part of
> November, the doctor give me 4 bags of saline
> solution and I was
> still dehydrated. I went home but couldn't do
> anything but
> literally had to crawl to bed. That night the doctor
> called and he
> said he researched my condition and said he believed
> I had addisons.
> He wanted to see me the next day. I went in, he did
> an injection
> test and in an hour I passed out on them and off to
> the hospital by
> ambulance I went. I got to the hospital and my body
> was shutting
> down. They said I had about an hour or two and it
> would have been
> too late to save me. That put a real different
> perspective on
> life. Since then it's been up and down for me. I
> have developed
> fibromyalgia that is very painful and sometimes it's
> hard to walk or
> move around. This addisons disease has changed my
> life quite a
> bit. I am tired all the time, I can not do the
> simplest thing in
> life without wearing out and sweating. Sweating.
> That's all I do.
> If I do anything stressful or just go shopping or do
> some things
> around the house, I sweat and need to sit or lay
> down to recover. I
> run out of breath. I have shakes and my muscles
> twitch all over
> especially when I am laying down or resting. At
> times my mind does
> not work as sharp or as good as it use to and I do
> get confused at
> times. They say you can lead a normal life. Well I
> don't think I
> can but I am trying to do as good as I can. I'm
> learning to live
> with this disease and I think only people with it
> can understand
> what it is like. I hope I did not bore everyone
> with this story.
> It does help sometimes to be able to tell someone
> about what
> happened to and is going on with me. I would like
> to hear some of
> your stories if you want to share them. I'm glad
> and privileged to
> be part of this group. Keep in touch.
> Your Friend from Denver, Alan
>
>


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