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Reply | Forward Message #303 of 1215 |
Re: New Member

-Hello Alan in Denver your letter sounded so familiar :) and no one
knows unless they KNOW...we still function and no one guesses until
we are ill or notice our tan never goes away...keep up with your
vitamins and the most important thing is to laugh every day if it
hurts even kep in touch and take care :) -- In
addisonsdisease@y..., "adkprofile" <adk20022002@y...> wrote:
> Hello everyone,
>
> My name is Alan and I'm a 49 year old married male from a southwest
> suburb of Denver, Colorado. I was diagnosed with Addisons the
first
> part of Nov, 2001 after I had an extreme Addisons crisis episode.
> They think I have had adrenal insufficency most of my life, but it
> came to a head last October and November. For a long time, when I
> would get stressed or sick with a virus I would be sicker than what
> I should have been and it always turned into an infection or
> something else. Like a mini crisis. In the spring of 2001, I had
> extreme stress due to problems with two of my sons. (drugs got them
> and dropping out of school, running away, assaulted and stole from
> us, and several other things. The first of May I had a nervous
> breakdown, chest pains, real high blood pressure and many other
> things that got me in the hospital for 7 days. During treatment
> they had to treat my with a high dose of cortisone so they could
> give me a iodine test since I am allergic to Iodine and they needed
> to reduce my reaction. Well all of a sudden I got better and I was
> discharged with a diagnosis of stress related syndrome with
> depression and anxiety. Come to find out, they unknowingly treated
> my addisons with the cortisone. I got put on paxil for my
> depression and anxiety. After getting out of the hospital I started
> to have all kinds of symptoms. Vomiting, Diarhea, loss of hair,
> darking of the skin (which I've had several years), loss of weight,
> weakness, shaking, muscle pain, almost every syptoms of addisons
> they list. I lost 55 lbs in 2 1/2 months. They found that my
> thyroid level was way down so they started to treat me for
> hypothyroidism. I still got worse and worse and the low blood
> pressure and dehydration and low sodium started to be a constant
> problem. I can't remember too much of anything that happened after
> the 9-11 Trade Towers attack. They say that the stress from seeing
> that and reacting like most Americans, and going on high alert at
my
> job(I'm a Police Detective in Denver) it was the last straw
(stress)
> my body could take. Everything is kind of a blur for a couple of
> months. Two days before I went into crisis in first part of
> November, the doctor give me 4 bags of saline solution and I was
> still dehydrated. I went home but couldn't do anything but
> literally had to crawl to bed. That night the doctor called and he
> said he researched my condition and said he believed I had
addisons.
> He wanted to see me the next day. I went in, he did an injection
> test and in an hour I passed out on them and off to the hospital by
> ambulance I went. I got to the hospital and my body was shutting
> down. They said I had about an hour or two and it would have been
> too late to save me. That put a real different perspective on
> life. Since then it's been up and down for me. I have developed
> fibromyalgia that is very painful and sometimes it's hard to walk
or
> move around. This addisons disease has changed my life quite a
> bit. I am tired all the time, I can not do the simplest thing in
> life without wearing out and sweating. Sweating. That's all I do.
> If I do anything stressful or just go shopping or do some things
> around the house, I sweat and need to sit or lay down to recover.
I
> run out of breath. I have shakes and my muscles twitch all over
> especially when I am laying down or resting. At times my mind does
> not work as sharp or as good as it use to and I do get confused at
> times. They say you can lead a normal life. Well I don't think I
> can but I am trying to do as good as I can. I'm learning to live
> with this disease and I think only people with it can understand
> what it is like. I hope I did not bore everyone with this story.
> It does help sometimes to be able to tell someone about what
> happened to and is going on with me. I would like to hear some of
> your stories if you want to share them. I'm glad and privileged to
> be part of this group. Keep in touch.
> Your Friend from Denver, Alan




Sun Apr 7, 2002 1:52 pm

mova106
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Message #303 of 1215 |
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Hello everyone, My name is Alan and I'm a 49 year old married male from a southwest suburb of Denver, Colorado. I was diagnosed with Addisons the first part...
adkprofile
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Apr 7, 2002
5:09 am

-Hello Alan in Denver your letter sounded so familiar :) and no one knows unless they KNOW...we still function and no one guesses until we are ill or notice...
mova106
Offline
Apr 7, 2002
1:52 pm

Hi Mova106 Thank you and you are so right. I try everyday to be happy and smile but sometimes it is hard to feel good. It's not been a very good day today...
Alan Keiser
adkprofile
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Apr 8, 2002
1:54 am

... and watch your salt!!!My friends tease me about buying me a salt lick:) balance that potassium too..I am a nurse and my husband is an undertaker so I have...
mova106
Offline
Apr 9, 2002
1:36 am

HI Mova, Thank you. I'm glad they got you back then. It happened to me too. Doctors didn't know what I had and when they finally figured it out I was almost...
Alan Keiser
adkprofile
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Apr 9, 2002
1:56 am

Hi Alan, It was good to hear from you although im sorry to hear you've had such a bad time of it! I was diagnosed last Novemeber after a very similar...
mjaspden
Offline
Apr 9, 2002
5:49 pm

Hi Marcus, I'm glad you are feeling good and can do most everything. I wish I could have more energy at times. My doctor is interested in what everyone is...
Alan Keiser
adkprofile
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Apr 11, 2002
1:39 am

Alan, wow, your story is so similar to mine is blows my mind. it just makes me feel so much better to hear other people are actually going through what i am,...
Heather Bannister
heever_hlb
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Apr 8, 2002
2:34 pm

Hi Heather, Thank you so very much for writing me. The more I write and either tell my story or hear others I know that they have gone through things that I...
Alan Keiser
adkprofile
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Apr 9, 2002
1:36 am

Hi Alan, I'm so glad you wrote back, and I'm sorry to hear that your not feeling well. I hope this day finds you feeling healthier! That's so funny about you...
Heather Bannister
heever_hlb
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Apr 9, 2002
12:54 pm

Heather, Thank you for writing me back. It is something that we have the same things going on with our bodies. The diarhea stopped and I'm regaining some of...
Alan Keiser
adkprofile
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Apr 11, 2002
2:09 am

Alan, I think i've been very lucky at the moment in that i have recovered from my crisis very well. I am now on Hydrocortisone which i take 20mg inthe morning...
mjaspden
Offline
Apr 11, 2002
8:06 am

Alan, I know things seem really rough right now, but I'm sure that once your body ajusts and your all rested up, your going to start feeling much better and ...
Heather Bannister
heever_hlb
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Apr 11, 2002
12:47 pm

Hi Alan What a sad story. I got hypothyroidism just over 3 years ago. It took about 8 moths to diagnose - which was my fault - I just assumed that I was under...
jah_marcus
Offline
Apr 10, 2002
1:41 pm

Hi Marcus, Thank you so very much for your concern. My diarhea has stopped but it was pretty bad. I lost about 5 to 10 lbs of water in a little more than 24...
Alan Keiser
adkprofile
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Apr 11, 2002
1:50 am

Hello all...my little brother told me about this group and so I signed up today. I have a son who is now 7 with some type of adrenal insufficency. We dont have...
llladylost
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Dec 1, 2003
3:33 am
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