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Re: [Addison's Disease] looking for support (Heather)   Message List  
Reply | Forward Message #300 of 1215 |
That 'getting out of bed' symptom

Hi all,

its good to hear form all of you and discover your diferent
experiences I was diagnosed 3 months ago and coping extremely well
considering I had a major crisis. My only problem I am experiencing
at the moment is the 'getting out of bed' syndrome which I sure all
of you agree is very hard to get over - still we can only carry on
taking the pills and lead as normal a life as possible

Keep in touch and take care

Marcus

--- In addisonsdisease@y..., Heather Bannister <heever_hlb@y...>
wrote:
> April,
> Thank you so much for writing, it was so good to hear
> from someone.
> Don't get me wrong, when i was diagnosed and got my
> meds i'd never been so healthy and felt so good in my
> life, but as time goes on and the body levels off
> somewhat I, just became sytomatic more often than not-
> sort of a catch 22- totally happy to have treatment
> that makes me better- totally bummed that i've got all
> these sides effects and symtoms to deal with.
> I know how it feels to have no energy- i have to push
> myself alot- like today i have a urinary tract
> infection and being on the antibiotics make me so sick
> and tired but i know it's temporary and i'll feel good
> again soon, just have to cope.
> i guess i'm learning that i can't do what i used to,
> and i do have limitations...which before i was having
> a hard time coming to terms with- i'm a completely
> active person, but sometimes it's so hard just to get
> out of bed.
> It's great to know that more people feel the way i do,
> and know that there is a cause and i'm not crazy- but
> frustrating at the same time- ya know!
> I hope i haven't rambled on for too long.
> Thank you so much for writing, it really does help to
> hear from people going through the same thing.
> I hope you have a great day and are feeling well- and
> I'd love to write anytime!
> take care,
> heather
> --- baileythewriter@a... wrote:
> > Dear Heather,
> >
> > I just just diagnosed with Addison's Disease 5
> > months ago. So far the
> > cortisone acet is helping me. I had no idea that it
> > gets worse. I thought
> > this little pill twice a day would make my world
> > much better. But as of
> > late, the fatigue has returned. I get so angry
> > because I feel as though I
> > cant do anything. We had our first snow 2 weeks ago
> > and I had to sit beside
> > the window and watch my children play. I wanted so
> > desperately to go out
> > there with him but just thinking about the cold
> > weather made me ill. On top
> > of the fact that I had no energy.
> >
> > I don't have any answers, Heather. But, if your
> > looking for someone to
> > correspond with, someone to listen. I can do that.
> >
> > My email address is Baileythewriter@a...
> >
> > I wish you the best.
> >
> > April
> >
>
>
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Fri Mar 1, 2002 2:34 pm

mjaspden
Offline Offline

Forward
Message #300 of 1215 |
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Dear Heather, I just just diagnosed with Addison's Disease 5 months ago. So far the cortisone acet is helping me. I had no idea that it gets worse. I thought...
baileythewriter@...
aprilreinz
Offline Send Email
Feb 28, 2002
1:06 pm

April, Thank you so much for writing, it was so good to hear from someone. Don't get me wrong, when i was diagnosed and got my meds i'd never been so healthy...
Heather Bannister
heever_hlb
Offline Send Email
Feb 28, 2002
6:12 pm

Hi all, its good to hear form all of you and discover your diferent experiences I was diagnosed 3 months ago and coping extremely well considering I had a...
mjaspden
Offline
Mar 1, 2002
2:34 pm
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