hello i was just here to throw around my idea. thanks to those who commented on my final draft for the note to my friend. the thing is though, i think he is...
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nina zhito
photozhito
Feb 19, 2006 7:56 pm
geraldine... my opinion as someone who was likewise diagnosed by a friend is that by being direct, forthright, caring, supportive, and present you are doing...
212
nina zhito
photozhito
Feb 19, 2006 8:14 pm
hi becky.... i hear you on the vanity thang. sorry for your distress. i know how it feels. for an entertaining game, we can play "spot the acromegalic"....
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Geraldine Tan
geraldinet2
Feb 20, 2006 2:15 am
thank you nina! i've not sent it to him yet, i only thought of the indirect approach a few hours ago. i need to rewrite my note and presentation of the info,...
214
Geraldine Tan
geraldinet2
Feb 21, 2006 4:10 pm
hello all! i sent my friend the info, but i made it a mass e-mail, so that he wouldn't feel i was directly referring to him. i presented it as a health...
215
Geraldine Tan
geraldinet2
Feb 25, 2006 7:03 pm
Hello everybody. I would like to ask you whether you know of anyone (orig. w/o acro) who developed any adverse pituitary-related effects from taking HGH...
216
Geraldine Tan
geraldinet2
Mar 7, 2006 3:03 pm
Dear Group, I just wanted to say hello to you. I think fondly of how warmly you all welcomed me to the group. I already updated you, telling you that I sent...
218
compass_rose07
Mar 13, 2006 6:32 pm
Hi, My name is Rosie. I just joined the group. I have been diagnosed with acromegaly. I have already spent a few days at the Mayo clinic in MN and will see...
219
Geraldine Tan
geraldinet2
Mar 14, 2006 10:07 am
Welcome, Rosie! I'm somewhat new in this group myself. I joined on behalf of someone I know who appears to have the disorder. You'll find the people in this...
223
xolenta
Nov 2, 2006 4:45 am
Hi, everyone. I joined the group because my doctor thinks I might have acromegaly. I'm having an MRI tomorrow morning and I did a whole bunch of bloodwork...
224
tiajalmu2
Nov 2, 2006 9:26 pm
Hello everyone too, I am also new in this group, but I know that I have acromegaly. However, I was diagnosed in June, so I am still getting used to it. First...
225
Jeff Jones
iareengineer
Nov 3, 2006 5:02 pm
First off welcome. I was diagnosed about 4.5 years ago and underwent surgery 3.5 years ago. At diagnosis I was told that my little adenoma started growing...
226
linneatress
Feb 24, 2007 12:59 pm
I would love to hear about side effects of gamma knife radiation. Anyone have any info?...
227
Geraldine Tan
geraldinet2
Feb 25, 2007 1:49 pm
dear miguel, i'm a member of this group, bec. i knew someone whom i thought might have it. i forwarded this person's e-mail to you. hope you might be able to...
228
Vince Patron
vpatron0
Feb 25, 2007 10:15 pm
Hi, I don't think there really are any side effects. I had the procedure done almost a year ago. I had asked my neurosurgeon all about side effects and I don't...
229
linneatress
Feb 26, 2007 3:29 pm
Hi there folks, thank you for your responses. The gamma knife procedure itself doesn't sound too bad, but I am concerned about the side effects in years to...
230
Jeff Jones
iareengineer
Feb 26, 2007 5:15 pm
You are correct about the potential long term side effects. As with any procedure there are risks. The gamma knife has been proven to aid in long-term...
231
Geraldine Tan
geraldinet2
Feb 26, 2007 6:19 pm
dear miguel, thank you very much for your very prompt response. the question is on behalf of someone from the acromegaly yahoo group. i once had a friend, whom...
232
linneatress
Feb 27, 2007 12:34 pm
I already had the surgery and my choice now is between gamma knife and meds or just meds. As far as being invasive goes, the surgery was the most invasive,...
233
almudena martín
tiajalmu2
Feb 27, 2007 1:40 pm
Hi all! I had surgery in October to remove a 4.5x4.5x3.5 cm macroadenoma and they didn't get it all, so, I am waiting for "Stereotactic Fractionated...
234
Vince Patron
vpatron0
Feb 27, 2007 3:07 pm
You can ask for the film on CD-ROM. It's a lot easier than dragging a huge film package around, and you can view it on your computer. -Vince ... From:...
235
Vince Patron
vpatron0
Feb 27, 2007 3:43 pm
I found this good site explaining the difference between the radiosurgery (gamma knife) and radiotheraphy. Yes, I guess they are using radiotheraphy because of...
236
linneatress
Feb 28, 2007 12:23 am
Your posting is great! It is so nice to hear from someone who is comfortable with taking meds for hormone replacement. I have considered it as a 'risk'...
237
almudena martín
tiajalmu2
Mar 5, 2007 7:44 am
Thanks a lot for your answers and the info about radio, I try to consider this illness in the most positive way I can, is not that I feel comfortable, is just...
238
almudena martín
tiajalmu2
Mar 5, 2007 7:44 am
Thanks a lot for your answers and the info about radio, I try to consider this illness in the most positive way I can, is not that I feel comfortable, is just...
239
linneatress
Apr 11, 2007 7:25 pm
So I went for it today and did the gamma knife. It was a pretty crazy procedure, but I am relieved that it is over with. Next, I guess I start the meds....
240
tiajalmu2
Apr 12, 2007 5:59 am
Hi all! That sounds great, it is already done! I think that the worst periods are always while you are waiting. I hope you feel weel after it. Did it hurt...
251
Carolanne
softheart710
Apr 30, 2007 3:19 am
Note: forwarded message attached. Carolanne ... Ahhh...imagining that irresistible "new car" smell? Check outnew cars at Yahoo! Autos. Give it a try! Why not?...
257
karenpassion0408
karenpassion...
Jun 17, 2007 8:47 am
Karen have added you to her favorite list, check Karen's profile here http://karenabxpassion.googlepages.com/bikerchicks.htm...
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bouwienberkenbosch
bouwienberke...
Feb 18, 2008 7:15 pm
My friend: Is a woman of 36. Diagnosed with acromegalie in December 2003. Had an operation April 2004: tumor was not fully removed. After that on medication:...
