hi everyone. This is my first time on this website and boy am I glad
to see that there are others with this rare syndrome. I'm a mother of
a 4 year old diagnosed with acrodysostosis. I've been searching for
other families with this syndrome in order to get more informaiton.
Can any of you share with me how old you are? What type of health
problems you are having or had at any point in your life and what you
think I should do as a mother to help my son. I need to know if there
is something that you wished your mother or father would have done for
you as a child to make your adult life easier. Please help!!!!