Hello,

My name is Jill, and I have a boyfriend that has Achon...and him nor
I know much about it. All I know is they have short arms and short
legs and they are strong. My boyfriend also has a caved in chest. So
if anyone can help me I would appreciate it.

ok i'm an achon. and my daughter who is going to be born sept1st is a
dwarf also just hasnt had her dig. is there anything i need to know
about dwarf babies that is different from an average baby?? please
let me know.

At 43 my life's evolved
Alone again, no hand to hold
My luck with life and love's been sparce
The road so far's been bumpy and harsh
I need a friend, someone sincere
Who's not afraid to say "I'm here"
Through thick and thin with endless strength
I have the heart for him with depth
If you empathize and need a friend
Take a chance, who knows the end
I am an LP and search for the same
Someone to share in life's strange game
Desperate I am not, just alone and sad
Is there someone out there to share life's path?

----- Original Message -----

From: amanda STUNTZ

To: achondroplastic_dwarfism ; dwarfismandshortpeople

Sent: Friday, July 30, 2004 9:54 AM

Subject: [achondroplastic_dwarfism]

I hope my experiences may be of interest to someone. I am 43 and Achon. I live in the U.K. with my 10 year old son. Since birth I have never slept properly. My parents said as a baby I seemed like I sometimes stopped breathing, and my snoring, that is another thing! I have very recently been diagnosed with sleep apnea. I looked at the LPA site and when I read the medical link I had a "light bulb" moment (as Oprah would say!). For the past umpteen years I have been prescribed anti-depressants, valium , sleeping pills etc. and have been diagnosed as having depression etc. Not one of my Doctors even suggested apnea as a problem to do with being an Achon. I printed the stuff off the net and showed it to my Doctor. She said "that makes sense" and referred me for a sleep study. The study was conclusive and I now have a CPAP machine and am coming off all the pills I have been on for so long. I have never been depressed, just suffering all the things associated with not sleeping right! At first I was annoyed and very angry, what a waste of 15 odd years with the wrong diagnosis! Now I am moving on with my life with a whole new outlook.  I am going to be pill free soon and that feels great! At least my Doctors here in England now know about Apnea and Achondroplasia, they had obviously not come across my kind of case before. Funny though, I lived in Texas for many years and I was on pills there also so I guess the Doctors I came into contact with there had no idea too! I would be interested to hear any other stories and experiences (whether good or bad). This finding has been so "big" in my life and I just wanted to share it. Amanda

Hey All,

All I know about achon's is they have short arms and short legs, and
not to make of you all but they have bubble butts. I need more
information here...like I said I am a newcomer onlearning about
Achon's? So if anyone can help please let me know as soon as
possible. Is there any website where I can read about Achon's if
there is please send me the link. Or someone please give me their
yahoo name and I will add them and please be on so I can ask
questions & and have them answered.

Jill

Hey All,

I need some information please on Achon

Jill

Hello My name is Jill. I do not have achon, but I have a boyfriend
that does and I am trying to get more information for him. I have
Morquios Syndrome....so if that is anyone out there that can help me
please contact me @ jill_martin2003@... alos have a yahoo
account jill_martin2003

thanks,
Jill

Hello,

My name is Jill, and I don't have achon, but I have a boyfriend that
does and I'm here to get more information on it. I am also a dwarf
but I have Morquios Syndrome.

Jill

Hiya
I was just looking around and found this site. I already recognise
some members!
I am Mum to 4 children, the youngest of which has achondroplasia. He
is 5, and we live in New Zealand. Jeremy has recently started school
and is a bright wee boy and doing very well.

Caela

i'm sorry... you guys might think i'm irrating... but i'm very
intereted it in... there is not books in my school library or any
iformation about dwarfism and achondroplasia... so i need all the
help from you guys... if you're willing to help... can you suggest me
some book titles sites i can go to... also what mutation cause
achondroplasia... that would help...

mahalo,
chey

Hello,

I know I don't belong on here.
I, myself am 5ft 7in.
I have no friends or relatives who have any kind of dwarfism.
I'm not even a therapist!
But I do wish to support you in any way that I can.

I wanted to say that you guys and gals are wonderful.
And if you're ever having a rough day always remember that you
are loved.

And how come one can never find a short guy on a dating service
website?  I'm going to be truthful.  Tall guys freak me out!
I'm tempted to check out that link that was posted earlier.

DiDi

Hi everyone.  Please help support Peter Dinklage, a dwarf and star of
the new movie THE STATION AGENT.

Check out this FOXNews article about Peter:

"PETER DINKLAGE, the star of THE STATION AGENT is starting to look
more and more like an Oscar contender.

A dwarf as Best Actor? Well, why not?  Dinklage is turning out to be
the surprise of the fall season…"

Read the whole article at:
http://www.foxnews.com/story/0,2933,99976,00.html

THEN, START SPREADING THE WORD ABOUT THE STATION AGENT!!


Opening TODAY in Select Cities!

Miramax Films presents
Sundance Triple Award Winner

THE STATION AGENT

The Station Agent is "a beautifully-made comic drama that mixes
warmth, emotional sophistication and dead on deadpan humor" (Los
Angeles Times).

  "An Absolute Stunner."
Rolling Stone's Peter Travers

  "Irresistible… an immensely moving film."
Newsday

  "A Treasure… Two thumbs up."
Roger Ebert

AWARDS

Sundance Film Festival
*Audience Award* *Special Jury Prize* *Waldo Salt Screenwriting Award*

San Sebastian International Film Festival
*Special Jury Prize*

Aspen Filmfest
*Audience Award for Favorite Feature*
*Emerging Actor Award – Peter Dinklage*

Check out the TRAILER and
enter the LANDMARK THEATERS SWEEPSTAKES now at:
http://www.thestationagent.com

See THE STATION AGENT this Friday!
Atlanta, Boston, Chicago, Cleveland, Dallas, Denver, Detroit, Houston,
Los Angeles, Miami, Minneapolis, New York City, Philadelphia,
Portland, San Diego, San Francisco, Santa Monica, Seattle, Washington
DC, Westchester County

For theater information, showtimes, and the lastest news on when &
where THE STATION AGENT will be opening next, go to:
http://thestationagent.com/community.html

Support THE STATION AGENT, please pass this email along!

I found a dating site a couple of days ago called
www.datealittle.com which appears to be for LPs only.

So far I like it!  Its free, and it seems legit but has anyone heard
anything?

I searched the members and it seems to be real - only LPs with an
exception here and there.  ;-)

My name is Sara and I am an occupational therapist at an elementary
school in the Northeast. I have just aquired a 4 year old boy with
Achondroplasia and am trying to cover all of the bases to make his
transition to our school an easy one. I am writing to anyone who has
experienced the elementary school environment first hand to
determine what you found to be the most hindering/helpful. We are
currently planning environmental modifications and adaptations. At
this time he is enrolled in pre-school where his stature is not an
issue, however, in the elementary school there are many obstacles to
be overcome. I would enjoy hearing from anyone with thoughts on this
subject!!  Thank you in advance for your time :)

Hi Ellen,
I hope you are not too wind blown and wet from Isabel.
Have a nice day I hope you and yours are safe and sound.
                                           ^i^Angel


--- In achondroplastic_dwarfism@yahoogroups.com, "nclady44"
<nclady44@y...> wrote:
> Hi All........If anyone would like to chat sometime....drop me a
> line.....have a nice day!  Ellen :-)

Hi All........If anyone would like to chat sometime....drop me a
line.....have a nice day!  Ellen :-)

Hi,
Alli does handle things better than I do. I hope that as she gets
older she still handles all the attention good/bad with the same
attitude she has now.
                                                  ^i^Angel

PS Thank you for the advice, I will pass it on Alli......




--- In achondroplastic_dwarfism@yahoogroups.com, "JULIE RIDING"
<PeterandJules@r...> wrote:
> Hi angel - I am small - I have hypochondroplasia - a sort of lesser
> condition- I am 4 ft 6. I am 34 yrs and still encounter people
staring.
> Children are the worst.
>
> I hate school holidays when all the kids are out.
>
> The other day a little girl came right up to me and said out
loud "your
> small" - I just looked at her - to be honest I never know quite
what to say.
>
> It is just one of those things I live with.
>
> Tell your daughter to ignore them and walk away if they ever call
names - it
> does not make you feel any better to have a go back.
>
>.

Hi,
I am Angel I have 3 kids, Mallori (AH) who is almost 16, Boomer (AH)
who is 12 and Alli (Achon) who is 5 ½. Alli is in 1st grade. The
first week of school 3 boys (maybe 5th or 6th grade) came up to us
and asked how old Alli was and if she went to school there. After I
told them yes, one boy hit one of the other boys and said see I told
you. Then the second week 3 girls were walking maybe 3 feet behind
us. One hollered across the play ground to some boy and said "look it
is that little kid again".  I stopped and turned and looked at the
girls, the one who hollered looked at me like she couldn't believe we
heard her. I turned back around walked a few feet then turned back
and told them that her name is Alli. Yesterday Alli went to a friends
birthday party at a park, Alli, myself and a couple of the kids from
the party were standing by the play ground talking and 4 boys (4 to
10 yrs old) came and stood behind us, and said "wow she can talk and
she has a big head". That was said a few times. I didn't say anything
for a few reasons. One: being it pissed me off it is the first time I
have heard that comment and Two: I was stunned. It hurt and I didn't
want to make a big deal out of it just in case Alli didn't hear it. I
hope that she didn't. She hasn't said anything yet. She has a great
group of friends who don't treat her any other way then her being
just Alli. It kills me to know that she will encounter rude and mean
people in her life. I wish I could protect her, she is such a neat
kid. Sorry this was so long.
Hugs, ^I^Angel

Luisa,

I regret being the bearer of bad news, but Dr. Kopits passed away
last year. I believe it was in the month of June.

My family lives in Md, so I don't know personally of any good
dwarfism specialists in NY, but I suggest that you go to the LPA
Online site. They have a list of dwarfism specialists all over the
country at http://www.lpaonline.org/lpa_mab.html . A good person to
contact as a starting point would be Dee Miller at the Greenberg
Center for Skeletal Dysplasias in Baltimore (410) 614-0977. She is a
very nice person and will be more than happy to help you locate the
specialists no matter what part of the country you live in.

Good luck.
Amelia Schuler (mom to Sam; 22 months, achondroplasia)




--- In achondroplastic_dwarfism@yahoogroups.com, "Luisa"
<Luludeming@a...> wrote:
> I heard Dr.kopits retired!!! Does anybody know if this is true or
> not? Also does anybody know of any good doctors in NY or area?
Please
> help me!!!!!!!!!!!!!!!!!! If anybody has any info contact me at
> Luisademing1@a...

I heard Dr.kopits retired!!! Does anybody know if this is true or
not? Also does anybody know of any good doctors in NY or area? Please
help me!!!!!!!!!!!!!!!!!! If anybody has any info contact me at
Luisademing1@...

Hi, My kids r normal stature. I have a almost 2 yr old and a 7 month
old both boys. I am a achon and growing up it was hard from time to
time. But now being 20 yrs old with 2 kids i either ignore it or say
something back to them. Last night i was in the store and a guy
walked in and started laughing at me. I looked at the guy and laughed
myself. He had mud from head to toe all over his clothes and he was
an adult.I did say duh to him because i was very very agravated. When
kids do it it is one thing but when an adult does it to me that is
very very childish. If you have any questions about achon i can help
as much as i can. E-mail me at LDEMING@...
I wish you the best of luck with your birth. Being pregnant and being
told your child could have something could be very very scary. I was
told my son had pulmonary stenosis and they didn't know if he would
be able to live outside the uterus. I was also told he could be down
sindrome. Then is was told he has spinal bifida. Needless to say I
was scared reall really bad. Well when my youngest came out he has
pulmoary stenosis witch is a heart problem and has a whole in one on
his valves in his heart. Please e-mail me i will help as much as i
can--- In achondroplastic_dwarfism@yahoogroups.com, "Michelle"
<lisavidak@y...> wrote:
> Hi...new to group. I have an 18 month old son of normal height, and
a
> second son due the 28th of March just diagnosed in utero with
Achon.
> I am filled with an entire range of emotions that I sometimes can
not
> process. There are so many questions, with so very few answers. My
> doctors can not even confirm the diagnosis until after birth so I
am
> left to wait. My husband and I are ELATED to welcome our new son
> Justin into this world, but greive for the struggles he will face
in
> the future. We want to make sure that we provide him with only the
> very best, but are unclear of what he will need. Any information
that
> can be provided regarding the care of our son, (doctors, medical
> information, parental care instructions, adaptive assistance
needed,
> etc.) will be greatly appreciated.
>
> Best wishes and warm thanks,
> Lisa

----- Original Message -----

From: Michelle

To: achondroplastic_dwarfism@yahoogroups.com

Sent: Saturday, March 22, 2003 11:12 PM

Subject: [achondroplastic_dwarfism] New baby

Hi...new to group. I have an 18 month old son of normal height, and a
second son due the 28th of March just diagnosed in utero with Achon.
I am filled with an entire range of emotions that I sometimes can not
process. There are so many questions, with so very few answers. My
doctors can not even confirm the diagnosis until after birth so I am
left to wait. My husband and I are ELATED to welcome our new son
Justin into this world, but greive for the struggles he will face in
the future. We want to make sure that we provide him with only the
very best, but are unclear of what he will need. Any information that
can be provided regarding the care of our son, (doctors, medical
information, parental care instructions, adaptive assistance needed,
etc.) will be greatly appreciated.

Best wishes and warm thanks,
Lisa




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Hi...new to group. I have an 18 month old son of normal height, and a
second son due the 28th of March just diagnosed in utero with Achon.
I am filled with an entire range of emotions that I sometimes can not
process. There are so many questions, with so very few answers. My
doctors can not even confirm the diagnosis until after birth so I am
left to wait. My husband and I are ELATED to welcome our new son
Justin into this world, but greive for the struggles he will face in
the future. We want to make sure that we provide him with only the
very best, but are unclear of what he will need. Any information that
can be provided regarding the care of our son, (doctors, medical
information, parental care instructions, adaptive assistance needed,
etc.) will be greatly appreciated.

Best wishes and warm thanks,
Lisa