Hello Tamiko,
My name is Katherine and I am from Ecuador, South America.
I have a 6 month old son with Achondroplasia and I would like to get
the "Health Supervision for Children with Achondroplasia", how can I
do it. I am worried about Kyphosis, do you know any treatment.

Thanks,

Kathy

> Hi Micheala,
>
> Congratulations! I have a 3 1/2 year old son with achondroplasia as
> well. We fell into an atypical situation, one that you probably
won't
> have to go through. Eli was born early, and had a few problems due
to
> that. He was a bit more delayed on some milestones, I think because
> he worked so hard to play catch-up.
>
> He also had a severe problem with obstructive sleep apnea and has
> needed a trach the last two years. Most kids with achondroplasia
have
> some type of obstructive sleep apnea, only 10% need surgery and
only
> 2% of those need a trach.
>
> He has badly bowed legs and will need surgery to correct them.
>
> Who are your doctors and do you have "Health Supervision for
Children
> with Achondroplasia" ?
>
> At 3 1/2, Eli is doing great. He obviously has a number of medical
> complications, and most kids don't necessarily have a bunch of
> problems. I read an email from a mom of a 2yo who is going to
> convention. She said they'd had no real problems and were just
going
> to socialize.
>
> It's a wonderful, difficult road....your life will have brighter
> colors, sweeter moments, deeper downs, more acute appreciation....I
> wouldn't trade him in for that average sized kid I expected;-)
>
> Tamiko