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Hi Michelle
We have 2 girls regular height, and our son has achondroplasia. I too was nervous and had a variety of emotions when he was born, so I understand where youare at.
I have to say that I have been totally amazed and surprised at how absolutely easy it has been with Philip. He is 8 now, and quite simply just a regular kid who's shorter. He has good friends and they accept him the way he is. People stare or look from time to time, but that is all just part of his experience and he seems to have just gotten used to it. I try to keep the dialogue open so that I know if anything is bothering him, and he does have his moments, but so does every other kid. Adaptations are taken care of as they come up. Can't reach the toilet....buy a stool, needs a bike..look a bit harder for one that does fit....clothing, I just buy regular and have them altered. This site is great for tips...and advice on adaptations.
Anyway, I ran into someone on holidays several years ago who had a son who was 13, and we chatted a bit. She told me exctly waht I am saying to you, and I have to admit, I wasn't totally convinced.....I thought she was perhaps trying to make me feel better. However, I see now, much to my delight and surprise, that Philip is no different than my other children....just a little shorter.
Enjoy your new baby, and God Bless,
Brenda
----- Original Message -----From: MichelleSent: Saturday, March 22, 2003 11:12 PMSubject: [achondroplastic_dwarfism] New babyHi...new to group. I have an 18 month old son of normal height, and a
second son due the 28th of March just diagnosed in utero with Achon.
I am filled with an entire range of emotions that I sometimes can not
process. There are so many questions, with so very few answers. My
doctors can not even confirm the diagnosis until after birth so I am
left to wait. My husband and I are ELATED to welcome our new son
Justin into this world, but greive for the struggles he will face in
the future. We want to make sure that we provide him with only the
very best, but are unclear of what he will need. Any information that
can be provided regarding the care of our son, (doctors, medical
information, parental care instructions, adaptive assistance needed,
etc.) will be greatly appreciated.
Best wishes and warm thanks,
Lisa
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