>Hi. I am new to this site. I have a 7 month old son with
>Achondroplasia. I am interested in talking to parents or individuals
>with the same type of dwarfism about what to expect in the future,
>any problems they have, etc.
>Thanks for you help.
>Micheala
>
>
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Hi Micheala,

Congratulations! I have a 3 1/2 year old son with achondroplasia as
well. We fell into an atypical situation, one that you probably won't
have to go through. Eli was born early, and had a few problems due to
that. He was a bit more delayed on some milestones, I think because
he worked so hard to play catch-up.

He also had a severe problem with obstructive sleep apnea and has
needed a trach the last two years. Most kids with achondroplasia have
some type of obstructive sleep apnea, only 10% need surgery and only
2% of those need a trach.

He has badly bowed legs and will need surgery to correct them.

Who are your doctors and do you have "Health Supervision for Children
with Achondroplasia" ?

At 3 1/2, Eli is doing great. He obviously has a number of medical
complications, and most kids don't necessarily have a bunch of
problems. I read an email from a mom of a 2yo who is going to
convention. She said they'd had no real problems and were just going
to socialize.

It's a wonderful, difficult road....your life will have brighter
colors, sweeter moments, deeper downs, more acute appreciation....I
wouldn't trade him in for that average sized kid I expected;-)

Tamiko