hello Kelly my name is Dan Iam 47 yrs old and have 3
daughters one who is acodro. Me and my family live in
a little town called Mt. Clair Ill. just outside
Gillespie Ill. So go ahead and E-Mail me anytime Dan
--- kelly <kbmandy@...> wrote:
> hello! my name is kelly i am an achondroplasia dwarf
> i am 37yrs old.
> my 7yr old daughter is also an achondroplasia
> dwarf.we live in cahokia
> illinois its about 15 min. away from the gateway
> arch in st.louis mo.
> i am looking for people to talk to friends to
> make(hopefully)questions
> to ask and hopefully answers.i have been recently to
> many drs.
> neuroligists,ear nose throat drs had 10 mris on
> brain 6ct scans i have
> a lot of problems also now they say nerve problems i
> have to see
> another neuro dr. each dr i go to has a different
> opinion and none are
> familar with any types of dwarfs or dwarfisms at all
> they tell me well
> i can look it up!that is not a good answer for
> me.every dr has a
> different cause and effect i have also been told i
> have mastoiditis i
> know i am in a LOT of pain everyday and am on
> percocet for pain and a
> lot of other meds. it does not seem to help
> though!does anyone have
> any suggestions or answers please let me know,each
> day seems harder
> and harder to get through each day. please let me
> know of any
> suggestions or answers or if you would like to write
> me and talk more
> feel free to do so!! thankyou for your time ,kelly
>
>
>
>
>
>
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